These one-day virtual conferences, co-hosted by The LAM Foundation, featured leading researchers and regionally based clinicians specializing in TSC and lymphangioleiomyomatosis (LAM). The conference offered a progressive three-part series with a focus on topics relevant for a Pediatric Breakout Session (Track 1), a LAM Specific Breakout Session (Track 2) and an Adults with TSC Breakout Session (Track 3).
2020 Virtual TSC & LAM Conference Series, Part 1
(Featuring clinicians from Memphis, TN)
September 12, 2020
Watch video recordings from Part 1:
- Welcome and Opening Session — Living with COVID-19 Today: TSC & LAM
- Track 1 TSC Pediatric — How TSC Impacts the Brain: Seizures, Treatment Options and Rescue Medication
- Track 1 TSC Pediatric — TAND Checklist, Aggressive Behavior and Neuropsychiatric Testing
- Track 2 LAM — Pregnancy and Delivery in Women with LAM
- Track 3 TSC Adult — New Horizon in Treatments Managing Kidney Issues
- Track 3 TSC Adult — Treating Skin Issues
2020 Virtual TSC & LAM Conference Series, Part 2
(Featuring clinicians from Gainesville, FL)
October 17, 2020 11 am Eastern | 10 am Central | 9 am Mountain | 8 am Pacific
Watch video recordings from Part 2:
- Welcome and Opening Session — Taking an Active Role in Research in TSC & LAM
- Track 1 TSC Pediatric — Updates on Brain Imaging, Surgery and Managing Seizures
- Track 1 TSC Pediatric — TAND: Severe Behavior Management & Effective Behavioral Interventions
- Track 2 LAM — Complications of LAM
- Track 3 TSC Adult — New Treatment Options for Skin Manifestations in TSC
- Track 3 TSC Adult — Managing Day to Day Kidney Issues
2020 Virtual TSC & LAM Conference Series, Part 3
(Featuring clinicians from Denver, CO)
November 7, 2020 1 pm Eastern | 12 pm Central | 11 am Mountain | 10 am Pacific
Watch video recordings from Part 3:
- Welcome and Opening Session — Patient Resources through the American Thoracic Society, The LAM Foundation and The TSC Alliance
- Track 1 TSC Pediatric — Managing Drug-Resistant Epilepsy Long-Term (applies to children and adults)
- Track 1 TSC Pediatric — TAND: Autism Spectrum Disorder, Biomarkers, Therapeutic Options and Clinical Trials
- Track 2 LAM — Quality of Life: What Can We Learn from the Literature and Each Other?
- Track 3 TSC Adult — Genetics & Future of Gene Therapy in TSC
- Track 3 TSC Adult — Part One: Managing Your Mental Health; Part Two: Kidney Imaging, Polycystic Kidney Disease and Evaluation for Transplant
Presented By:
Nationally Sponsored By:
Additionally Supported By:
