2022 World TSC Conference

Join Us for the Experience of a Lifetime!

The TSC Alliance is proud to announce the 2022 World Tuberous Sclerosis Complex (TSC) Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), will be held July 28-31, 2022 at the Hilton Anatole in Dallas, TX, the same incredible location as our last successful conference in 2018. The conference will bring together 1,000 participants from around the globe, including families and individuals with TSC, caregivers, healthcare professionals, researchers, a wide array of exhibitors, and others.

Please Note: All those who are attending the World TSC Conference will be required to follow existing CDC guidelines in effect at the time of the conference.  And, for the protection of our community members who are immunocompromised, in fragile health or battling LAM, all who are over the age of two years old are strongly encouraged to wear a mask over their nose and mouth when indoors if they are medically and physically able to do so. Pursuant to the TSC Alliance’s statement regarding COVID-19, we strongly encourage vaccination prior to attending the conference.



Conference Benefits

As a conference attendee, you’ll receive:

  • The latest and most comprehensive TSC diagnosis, treatment and research information from the world’s leading TSC clinicians and scientists
  • Assistance through the myriad of educational, transitional, financial and emotional challenges of TSC
  • The opportunity to meet hundreds of other families and individuals with TSC and make life-long connections
  • A better understanding of the role the TS Alliance and TSCi play in research, support and government advocacy both in the United States and around the world
  • Access to a wide range of service providers
  • Multiple networking opportunities and “down time” with others who share the common bond of TSC
  • Q&A sessions with the experts
  • Activities for the entire family
  • Professionally staffed day camps for children with special needs, siblings and dependent adults

Conference Format

The 2022 World TSC Conference offers general sessions with keynote speakers each day, panel presentations, workshops, large group lectures, specific topic presentations and discussion groups.

General Sessions

  • Global Collaboration (TANDem) and Updated Consensus Guidelines
  • TSC Community-Driven Research Network (TSC Alliance Research Model)
  • Driving the Future of TSC: Clinical Trails and Clinical Care

Five Different Learning Paths

  • Large Group Lectures
  • Panel Presentations
  • Specialty Topic Lectures
  • Workshops
  • Discussion Groups

This multi-pronged approach allows the TSC community to select engagement opportunities, whether they are parents of a newly diagnosed infant or an adult with TSC. The sessions cover topics such as medical challenges, behavioral management, life skills, community support and educational resources as well as financial considerations. View the Draft Agenda.

Can’t make it to the conference? The TSC Alliance will be offering a hybrid registration for livestreamed content. Registration includes all livestreamed sessions: three general sessions and three of the five different learning paths: panel presentations large group lectures and specific topic presentations.

The conference will also offer additional programs, services and activities for in-person attendees such as:

  • TSC 101 for newly diagnosed individuals or families
  • Day camps for children and dependent adults
  • Multiple formal and informal networking opportunities
  • Specialized group sessions
  • A teen lounge
  • Exhibit hall with service providers, resources and a variety of vendors
  • Q & A with expert physicians in “Meet the Experts”

New to the 2022 conference, the TSC Alliance is sponsoring a research room. TSC community members can explore ways to participate in clinical research including the TSC Alliance Biosample Repository and Natural History Database. With participant consent, staff from Phlebotek, a mobile phlebotomy company, will be on hand to collect blood samples from individuals with a TSC diagnosis. For more information, please contact Gabrielle Rushing, Associate Director, Research, at grushing@tscalliance.org.

Conference Registration

Please note: All-inclusive conference registration fees are per adult and cover educational sessions; breakfast, lunch and dinner; break snacks; and exhibit hall access.  Day Camp fee also includes dinner. We encourage you to register before the Early Bird deadline of Wednesday, June 1, 2022. If you have any questions, please call the TSC Alliance toll-free at 1-800-225-6872.

Full Conference Two Days One Day Hybrid
Registration Before June 1, 2022 $275 $225 $125 $50
Registration After June 1, 2022 $375 $300 $165 $50


Thanks to the generous support from the Foglia Family Foundation and the TSC Alliance Endowment Fund to the Bcureful Travel Fund, the TSC Alliance will provide a limited number of scholarships in memory of Ken Johnson to individuals or families who might otherwise not be able to attend the 2022 World TSC Conference.

Scholarship applications are available hereAll applications are due by March 1, 2022. Scholarships will be awarded March 15, 2022. Scholarship funds can be used to cover the cost of registration, hotel, day camp, and one-on-one aides. Travel expenses are not eligible and must be covered by the recipient. International applications are welcome.

Conference Day Camp

The TSC Alliance has again contracted with Corporate Kids Events (CKE) to provide a day camp for ALL ages: infants through dependent adults. CKE is fully staffed to provide care for individuals with special needs as well as siblings. Camp can be utilized for $100 per camper, which averages to $40 per day per camper for a full day and $20 for the half day on Sunday and includes all meals.

Learn More

Our Host Hotel

Hilton Anatole Dallas,
2201 N. Stemmons Freeway
Dallas, Texas 75207

This prestigious, landmark hotel located in the Market Center and Design District is just 5 minutes from Uptown and Downtown Dallas, Texas, highlighted by the arts and entertainment districts of West End and Deep Ellum as well as Victory Park and American Airlines Center arena for live music, concerts and ballgames. Boasting the largest hotel art collection in the US, with more than 1,000 exotic pieces from around the world, along with a full-service health club/spa and a choice of eight restaurants and bars, the Hilton Anatole is a destination in itself.

The TSC Alliance has obtained the following special room rates for the 2022 World TSC Conference:

Single/Double Occupancy Triple/Quad Occupancy
$183/night plus tax $193/night plus tax

Please note: All rooms are non-smoking. 

Book Your Room Today

To make your hotel reservation at the Hilton Anatole click here or call 1-800-774-1500 and use group code “TSC” to get our special rate!

Please note: First night deposit is required upon booking. The hotel has a limited number of ADA accessible rooms. Each ADA room has been secured in the TSC Alliance room block. If you would like to book an ADA accessible room, please do so as soon as possible online or over the phone. Request a rollaway bed or crib for your room by notating it in the “Additional Request” section when booking your reservation.

Additional Hotel Information and Fees

TSC registered guests of the Hilton Anatole will enjoy amenities listed below for a daily discounted mandatory resort charge of $12 plus tax.

This daily resort charge includes:

  • Self-Parking for one car
  • Guest room WIFI-up to 3 devices
  • Access to Verandah Health Club (ages 16+only)
  • 15% discount on V-Spa services
  • Kids under 12 eat dinner free in Counter Offer with an adult entrée purchase
  • Dessert with dinner at Counter Offer
  • 2 Starbucks Drip Coffees per day
  • Local/toll free 1-800 phone calls
  • Access to Jade Waters

Early Checkout Fee: Early Departure fee is one night’s room and tax.

Cancellation Policy: First night deposit is required upon booking. Cancellations made within 5 days of arrival will forfeit one night’s room and tax. 

Incidentals: Hotel policy is to charge $75/night for incidentals at the time of check-in to be released upon check-out. If you wish to avoid this charge, you may pre-pay the cost of the full stay at check-in. You must notify the hotel when you check-in that you would like to prepay.  If you choose to pre-pay, the hotel will shut off your ability to charge back to your room since there is not a hold for incidentals.

RV Parking: There is free RV parking in “Lot 5” across the street from the hotel. It is off the Anatole property, unsecured, and has no hook ups. Spots cannot be guaranteed.

Child Policy: Children 12 years or younger will stay free of charge in their parent’s room.

Pet Policy: Service animals only.


If you have any questions about the 2022 World TSC Conference, please contact Shelly Meitzler at 1-800-225-6872 or smeitzler@tscalliance.org.