Where do I go?
It is common for medical providers to be unfamiliar with TSC, including neurologists, and pediatricians. It is crucial to have a local neurologist and pediatrician involved in your child’s healthcare team. Finding a good fit is essential as these care team members will be your child’s expert and, along with you, be your biggest advocate as you start your TSC journey. As a parent you want nothing less than the best and connecting with a local or out of state TSC clinic to help guide clinical treatment options is appropriate. If you do not have access to a local TSC clinic, you can also make an appointment with a pediatric neurologist experienced in epilepsy. Many of our TSC experts can offer provider-to-provider recommendations and our Support Navigators can assist with this process.
Insurance coverage can also be a factor in the ensuring your child does not have delayed intervention and care. It is important to consider if out of state healthcare is right for your family. Here is a helpful guide(Is crossing state lines best for me?) to help decide the best options for your unique situation. You can locate a TSC clinic here.