The TSC Alliance has partnered with Clinical Trial Connect to develop a user-friendly Clinical Trial Finder Tool to help individuals and families affected by TSC participate in relevant clinical trials. You can find the tool on our website here. Are you conducting a study involving patients with TSC that isn’t listed in the online tool? Contact Zoë Fuchs, TSC Alliance Science Project Coordinator, at firstname.lastname@example.org.
Childen’s National Health System will be hosting the 29th Annual Pediatric Neurology Update in Rockville, MD on April 11, 2019. Neurosurgical advances in TSC and the transition to adulthood for TSC patients are major foci of this CME opportunity. Speakers include Howard Weiner, MD (Texas Children’s Hospital); Martina E. Bebin, MD, MPA (UAB Tuberous Sclerosis Clinic); and Peter Crino, MD, PhD (University of Maryland).
The National Center for Advancing Translational Sciences announced two new funding opportunities focused on clinical trial readiness in rare diseases:
2017 was a very productive year for advancing the science of tuberous sclerosis complex (TSC)! A very small sampling of our scientific community’s major accomplishments are highlighted below. The TSC Alliance thanks all our grantees, collaborators, reviewers, conference attendees, International Scientific Advisory Board members, and Professional Advisory Board members for making these achievements possible.
The TSC Alliance Board of Directors recently recognized 17 new TSC clinics, including the first TSC clinic in Mexico. Clinics recognized by the TSC Alliance must adhere to the TSC Alliance and TSC Clinic Scope of Relationship Policy and our TSC Clinic Guidelines.
Darcy A. Krueger, MD, PhD will present a CME/CPE/CNE-certified webinar entitled “Overcoming Treatment Challenges for Tuberous Sclerosis Complex (TSC): SEGA and the Future of Seizure Management” on January 25, 2018 at 5 pm Eastern. To register and learn more, please visit the AXIS Medical Education website. Dr. Krueger is the Director of the Tuberous Sclerosis Clinic and Associate Professor of Clinical Pediatrics and Neurology at Cincinnati Children’s Hospital Medical Center. He also serves on the TSC Alliance Professional Advisory Board. With Hope Northrup, MD, he convened the 2012 International Tuberous Sclerosis Complex Consensus Conference, which resulted in guidelines for both…