TSC Alliance of Kentucky/West Virginia

EST. 2015
Serves the states of Kentucky and West Virginia.

Click here for a description of our Community Alliance program.

The TSC Alliance of Kentucky/West Virginia is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TSC Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership


Name: Melissa Pennington
City, State: Ashland, KY
Phone: 740-961-1179
Email: melissabartley1@gmail.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: Parent

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Co-Chairs

Name: Pam Howard
Email:  pamelahoward@kentuckyonehealth.org

Name: Krista Merriman
Email: kemerriman615@gmail.com

Name: Emily Berryman
Email: emily_berryman@yahoo.com

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 6

States served: KY, TN, MS, AL, GA, FL

Name: Kate Crossett
City, State: Philadelphia, PA
Phone: (717) 475-3241
Email: Kate.barbato@gmail.com
Connection to TSC: Adult with TSC

Adult Regional Coordinator, Region 8

States served: DE, VA, MD, NC, SC, WV, D.C.

Kathy HenkelName: Kathy Henkel
City, State: Waynesboro, VA
Phone: 540-949-0582
Email: uneakmom@gmail.com
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Parent and Adult

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

Dependent Adult Transition Resource Coordinator, Kentucky

Tammy Kouns – See information above.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TSC Alliance of Kentucky/West Virginia and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.