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TSC Alliance of Nevada

Click here for a description of our Community Alliance program.

The TSC Alliance of Nevada is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TSC Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership

Co-Chair

Kathleen KingstonName: Kathleen Kingston
City, State: Las Vegas, NV
Phone: (702) 528-4615
Email: lvkathyk@gmail.com
Other volunteer positions held in addition to Chair: Step Forward to Cure TSC Walk Chair and Dependent Adult Transition Resource Coordinator
Short Bio and connection to TSC: Kathleen Kingston is a native Nevadan who graduated from the University of Nevada, Las Vegas (UNLV) with a Bachelor’s Degree in Civil Engineering.  Kathleen is the mother of a wonderful teenage son, Jack, who has TSC, autism and intellectual disability.

Kathleen is a member of the Patient and Family Advisory Council of a local hospital to help establish a culture of Patient and Family Centered Care to support the hospital’s vision of being a community health leader.   After graduating from the 2015 Nevada Partners in Policymaking Class (other states have a similar class), Kathleen was appointed as a member of the Nevada Governor’s Council on Developmental Disabilities, whose mission is to engage in advocacy, system’s change and capacity building activities for people with developmental disabilities and their families in order to promote equal opportunity, self-determination, and community inclusion.

Co-Chair

Name: Tara Zimmerman
City, State: Reno, NV
Phone: (775) 530-1210
Email: taraczimmerman@gmail.com
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: Parent

Vice Chair

This position is currently open. If you are interested in the Vice Chair position, please click here for a position description and/or to apply.

Step Forward to Cure TSC Walk Chair

Kathleen Kingston – See information above.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 2

States served: NV, UT, CO, CA, AZ, NM

Rob and Shannon GrandiaName: Rob and Shannon Grandia
City, State: Riverside, CA
Phone:Rob Cell: 714-514-3111
Shannon Cell: 714-335-2375
Home: 951-697-8851
Email: grandia@verizon.net
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Rob – Adult with TSC, Parent of children with TSC
Shannon – Spouse of Adult with TSC, Parent of children with TSC

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

Dependent Adult Transition Resource Coordinator, Nevada

Kathleen Kingston – See information above.

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TSC Alliance of Nevada and be notified of all upcoming events. (*NEED TO MAKE SURE THAT WE HAVE A WAY TO ADD THESE PEOPLE TO CA QUERIES.)

You can also visit us on Facebook to receive the latest Community Alliance updates! (link to: )

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.