TSC Alliance of Ohio
Click here for a description of our Community Alliance program.
The TSC Alliance of Ohio is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TSC Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.
Name: Tammy Thorne
City, State: Lima, OH
Other volunteer positions held in addition to Chair: Dependent Adult Transition Resource Coordinator
Short Bio and connection to TSC: My daughter Abby was diagnosed with TSC when she was seven months old. She was diagnosed after we noticed the infantile spasms (not really knowing what those were at the time). Our local pediatrician ordered an EEG and a CT Scan, both of which came back abnormal. We were then referred to CCHMC where we learned a lot about TSC over a three day admission. At that time we discovered that Abby had brain, skin, kidney, and eye involvement. After Abby’s diagnosis I remained minimally involved.
The TSC Alliance has not only provided me with support, but it has also opened the door to a network of friends that get it when no one else does. I call these people my TSC Silver Lining. I see hope now. I see a brighter future for my daughter. When I look at how far we have come in just the 11 years that my daughter has been fighting, I am inspired. I am very thankful to be a part of such a wonderful organization and fight for such a worthy cause.
Step Forward to Cure TSC Walk Chair (Cincinnatti)
Name: Nathlie Mortine
City, State: Cincinnati, OH
Connection to TSC: Nathalie is originally from Oxford, OH and graduated from Capital University with a BA in International Studies. Currently, she resides in Springdale, OH as a single mom with 2.5 year old who was diagnosed with TSC at 2 weeks old. She is a Mortgage Banker with 1st National Bank, but for fun she likes to be social with friends, meet new people/network, invest in real estate and learn sign language so she can have another form of communication with her apraxic son.
Step Forward to Cure TSC Walk Chair (Cleveland)
Name: Lori Quirino
City, State: Strongsville, OH
Other volunteer positions held in addition to Walk Chair: None
Connection to TSC: My husband Nick and I live 20 minutes southwest of Cleveland with our four children. Our youngest daughter, Chloe, has TSC. She was diagnosed at two weeks old. We have been coordinating the walk for the Cleveland area since 2013. We are thankful for the connections we have made through the TSC Alliance and this annual walk and look forward to many more.
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
Dependent Adult Transition Resource Coordinator, Ohio
Name: Nancy Weir
City, State: Dayton, OH
Phone: (937) 259-0770
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult
Find a Local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t Miss Any Updates!
Click here to join the mailing list for the TSC Alliance of Ohio and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.