TSC Alliance of the Upper Midwest

EST. 2001
Serves the states of Minnesota, North Dakota, and South Dakota.

Click here for a description of our Community Alliance program.

The TSC Alliance of the Upper Midwest is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TSC Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of those affected.

Volunteer Leadership


Name: Alanna Spotts
City, State: Prior Lake, MN
Email: alannaspotts@gmail.com
Phone: (952) 457-4779
Connection to TSC: I’m a mommy to three beautiful children and a wife to a wonderful man and I love spending time with my family.  After my youngest was diagnosed with TSC in 2015, I knew I had to do something to help and now I am a “mommy on a mission”.

Regional Leadership

Adult Regional Coordinator

Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.

Adult Regional Coordinator, Region 3

States served: ND, SD, NE, MN, IA, WI, CO
Name: Danielle Clark
City, State: San Antonio, TX
Phone: (210) 317-9804
Email: Danielle.clark@hotmail.com

Dependent Adult Transition Resource Coordinator

Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver.  The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.

Dependent Adult Transition Resource Coordinator, Minnesota

Name: Alice Hulbert
City, State: Minneapolis, MN
Phone: (952) 942-5615
Email: alihul@aol.com
Other volunteer positions held in addition to Dependent Adult Transition Resource Coordinator: None
Connection to TSC: Parent of an Adult

Find a Local TSC Clinic

To find the TSC Clinic nearest to you, visit the TSC Clinic page.

Upcoming Events

Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.

Don’t Miss Any Updates!

Click here to join the mailing list for the TSC Alliance of the Upper Midwest and be notified of all upcoming events.

You can also visit us on Facebook to receive the latest Community Alliance updates!

If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.