TSC Alliance of Washington, DC/Virginia
Click here for a description of our Community Alliance program.
The TSC Alliance of Washington, DC/Virginia is a group of TSC individuals, families, healthcare providers, board members, and volunteers. This group is led by volunteer leadership dedicated to furthering the mission of the TSC Alliance in their local state(s) or region by dedicating themselves to finding a cure for TSC and improving the lives of all of those affected.
Name: Kathi Dills
City, State: Great Falls, VA
Other volunteer positions held in addition to Chair: None
Short Bio and connection to TSC: I am the mother of a severely-affected 38-year-old son with TSC. He was diagnosed at six months old. My husband and I have been involved on and off over the past 36 years when we heard about the National Tuberous Sclerosis Association, now TSC Alliance, but after I retired as a teacher in 2008, we have became more involved in the Marches on the Hill, the National Walks and the other DC events. My husband now also serves on the TSC Alliance Board of Directors.
Name: Adrianne Cohen
Step Forward to Cure TSC Walk Chair
Name: Lauren Shores Shillinger
Address: 5905 Union Ridge Drive, Adamstown, Maryland 21710
Connection to TSC: Parent
Adult Regional Coordinator
Adult Regional Coordinators act as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.
Adult Regional Coordinator, Region 8
States served: DE, VA, MD, NC, SC, WV, D.C.
Name: Kathy Henkel
City, State: Waynesboro, VA
Other volunteer positions held in addition to Adult Regional Coordinator: None
Connection to TSC: Adult with TSC and Parent of an Adult with TSC
Dependent Adult Transition Resource Coordinator
Dependent Adult Transition Resource Coordinators are knowledgeable in state resources, events, support meetings, conferences, and any new research on TSC that pertains to dependent adults and transitioning young adults with TSC and their caregiver. The Dependent Adult Transition Resource Coordinator will work collaboratively with their Community Alliance(s) in supporting and connecting dependent adults, transitioning young adults, and their caregivers to state resources.
This position is currently open. If you are interested in the Dependent Adult Transition Resource Coordinator position, please click here for a position description and/or to apply.
Find a Local TSC Clinic
To find the TSC Clinic nearest to you, visit the TSC Clinic page.
Visit www.StepForwardtoCureTSC.org to find a walk nearest to you.
Don’t Miss Any Updates!
Click here to join the mailing list for the TSC Alliance of DC Metro and be notified of all upcoming events.
You can also visit us on Facebook to receive the latest Community Alliance updates!
If you would like connect with other TSC individuals or family members in your state via phone or email, visit our TSC Connect page to find a list of individuals in your state that you can contact any time.