Adult Regional Coordinator

The Adult Regional Coordinator acts as the connection for adults diagnosed with TSC to connect with other adults within their region. They will be knowledgeable about resources, events, support meetings, conferences and any new research on TSC that pertains to adults with TSC. They will also provide support in government relations and be responsible for recruiting and making connections with other adults diagnosed with TSC and encouraging their involvement in the TSC community. The adult regional coordinator will provide support to the Community Alliances in their region in developing a welcoming and inviting atmosphere for adults with TSC in order to promote adult involvement and support within the Community Alliance.


Varies. Local. United States Only.

Time Requirements:

Approximately 1 hour weekly.

Skill Set Required:

Adult with TSC, ability to use the internet and Facebook, ability to communicate via phone and email, willingness to share experiences as an adult with TSC, willingness and ability to travel to a Regional Conference if there is one in their region (travel sponsored by the TSC Alliance).


If you are interested in volunteering as an Adult Regional Coordinator, contact Carly Kaye at ckaye@tscalliance.org.