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X-ORIGINAL-URL:https://www.tscalliance.org
X-WR-CALDESC:Events for TSC Alliance
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T200000
DTEND;TZID=America/New_York:20261118T210000
DTSTAMP:20251124T204635Z
CREATED:20251124T204635Z
LAST-MODIFIED:20251124T204635Z
UID:10000149-1795032000-1795035600@www.tscalliance.org
SUMMARY:Adult Topic Call - November 2026
DESCRIPTION:The November topic call will take place on Wednesday\, November 18\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-november-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261201T190000
DTEND;TZID=America/New_York:20261201T200000
DTSTAMP:20261112T161754Z
CREATED:20261112T161242Z
LAST-MODIFIED:20261112T161754Z
UID:10000199-1796151600-1796155200@www.tscalliance.org
SUMMARY:Tuberous Sclerosis Complex (TSC): Prenatal and Child Development Study Webinar
DESCRIPTION:hJoin the TSC Alliance\, in collaboration with Duke University’s TSC Center of Excellence\, for a webinar on Tuesday\, December 1\, 2026\, at 7 pm ET\, to learn more about their Tuberous Sclerosis Complex (TSC): Prenatal and Child Development Study. \nThe study focuses on pregnancy experiences among individuals who have been pregnant with a child diagnosed with TSC\, to help researchers understand the safety and potential impact of prenatal exposure to sirolimus and everolimus. The study will compare women with and without exposure to one of these medications\, so being on one of either is not a requirement. The long-term development outcomes between children who were and were not exposed to these medications will be compared. \nThis webinar features Drs. Jennifer Cohen and Alice Bryn Salter from Duke University and will include information about: \n\nStudy goals\nEnrollment criteria\nTimeline\nQuestion & Answer\n\nREGISTER HERE\n  \nMeet the speakers:\nJennifer L. Cohen\, MD is an Associate Professor of Pediatrics in the Division of Medical Genetics at Duke University. She has joint appointments in the Department of Obstetrics & Gynecology and the Department of Molecular Genetics and Microbiology. She attended Yale College and then received her MD from the Icahn School of Medicine at Mount Sinai in NYC. She completed a combined residency program at the Children’s Hospital of Philadelphia in Pediatrics and Medical Genetics\, before joining the faculty at Duke in 2019. Her research interests and expertise are in perinatal genetic medicine with a current focus on earlier diagnosis and perinatal intervention for rare genetic diseases. She is actively involved in gene therapy trials for lysosomal storage diseases and has been integral to the success of the ongoing clinical trial for prenatal treatment of lysosomal storage diseases; she serves as the Duke subcontract Principal Investigator on this trial. Dr. Cohen’s current work aims to leverage public health genomics for the early and equitable delivery of gene-directed therapies to patients with treatable genetic conditions. Dr. Cohen continues to develop prenatal clinical trials and novel methods to diagnose and treat genetic diseases before birth. \n\nAlice Bryn Salter\, MD is a developmental and behavioral pediatrician who provides consultations for children with autism\, complex ADHD\, and academic difficulties\, frequently evaluating these challenges within the framework of known or suspected neurogenetic conditions. She codirects the Duke TSC Center of Excellence\, focusing on TAND evaluations and developmental and behavioral supports. Drawing on her experiences as a pediatrician\, educator\, and mother\, she partners with families to identify coexisting conditions and implement practical strategies or medical management to help children thrive.
URL:https://www.tscalliance.org/event/tuberous-sclerosis-complex-tsc-prenatal-and-child-development-study-webinar/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/11/TSC_-Prenatal-and-Child-Development-Study-Webinar-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270208T200000
DTEND;TZID=America/New_York:20270208T210000
DTSTAMP:20261005T184310Z
CREATED:20261005T184310Z
LAST-MODIFIED:20261005T184310Z
UID:10000186-1802116800-1802120400@www.tscalliance.org
SUMMARY:Ask an Advocate Session - February 2027
DESCRIPTION:Join us on Monday\, February 8\, 2027 at 8 pm ET for an Ask an Advocate session. \nRegister here.
URL:https://www.tscalliance.org/event/ask-an-advocate-session-february-2027/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270317T200000
DTEND;TZID=America/New_York:20270317T210000
DTSTAMP:20261005T193832Z
CREATED:20261005T193516Z
LAST-MODIFIED:20261005T193832Z
UID:10000191-1805313600-1805317200@www.tscalliance.org
SUMMARY:Adult Topic Call - March 2027
DESCRIPTION:The March topic call will take place on Wednesday\, March 17\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-march-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270321T080000
DTEND;TZID=America/New_York:20270321T170000
DTSTAMP:20261113T150429Z
CREATED:20261113T150429Z
LAST-MODIFIED:20261113T150429Z
UID:10000200-1805616000-1805648400@www.tscalliance.org
SUMMARY:2027 United Airlines NYC Half Marathon
DESCRIPTION:NYC\, Team TSC is coming back!\n  \n\nWe’re excited to announce that Team TSC has secured 10 bibs for the 2027 United Airlines NYC Half Marathon on Sunday\, March 21\, 2027. \nThis will be our third year participating in the NYC Half\, giving runners another opportunity to take on the streets of New York City while supporting programs\, resources\, and research that benefit the TSC community. \nReady to run 13.1 miles with Team TSC? Complete our interest form here.
URL:https://www.tscalliance.org/event/2027-united-airlines-nyc-half-marathon/
CATEGORIES:Team TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/11/images-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270412T200000
DTEND;TZID=America/New_York:20270412T210000
DTSTAMP:20261005T184636Z
CREATED:20261005T184636Z
LAST-MODIFIED:20261005T184636Z
UID:10000187-1807560000-1807563600@www.tscalliance.org
SUMMARY:Ask an Advocate Session - April 2027
DESCRIPTION:Join us on Monday\, April 12\, 2027 at 8 pm ET for an Ask an Advocate session. \nRegister here.
URL:https://www.tscalliance.org/event/ask-an-advocate-session-april-2027/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270421T200000
DTEND;TZID=America/New_York:20270421T210000
DTSTAMP:20261005T194414Z
CREATED:20261005T194402Z
LAST-MODIFIED:20261005T194414Z
UID:10000192-1808337600-1808341200@www.tscalliance.org
SUMMARY:Adult Topic Call - April 2027
DESCRIPTION:The April topic call will take place on Wednesday\, April 21\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-april-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270519T200000
DTEND;TZID=America/New_York:20270519T210000
DTSTAMP:20261005T194717Z
CREATED:20261005T194604Z
LAST-MODIFIED:20261005T194717Z
UID:10000193-1810756800-1810760400@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2027
DESCRIPTION:The May topic call will take place on Wednesday\, May 19\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-may-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270614T200000
DTEND;TZID=America/New_York:20270614T210000
DTSTAMP:20261005T185544Z
CREATED:20261005T185544Z
LAST-MODIFIED:20261005T185544Z
UID:10000188-1813003200-1813006800@www.tscalliance.org
SUMMARY:Ask an Advocate Session - June 2027
DESCRIPTION:Join us on Monday\, June 14\, 2027 at 8 pm ET for an Ask an Advocate session. \nRegister here.
URL:https://www.tscalliance.org/event/ask-an-advocate-session-june-2027/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270809T200000
DTEND;TZID=America/New_York:20270809T210000
DTSTAMP:20261005T185724Z
CREATED:20261005T185724Z
LAST-MODIFIED:20261005T185724Z
UID:10000189-1817841600-1817845200@www.tscalliance.org
SUMMARY:Ask an Advocate Session - August 2027
DESCRIPTION:Join us on Monday\, August 9\, 2027 at 8 pm ET for an Ask an Advocate session. \nRegister here.
URL:https://www.tscalliance.org/event/ask-an-advocate-session-august-2027/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20270915T200000
DTEND;TZID=America/New_York:20270915T210000
DTSTAMP:20261005T194831Z
CREATED:20261005T194831Z
LAST-MODIFIED:20261005T194831Z
UID:10000194-1821038400-1821042000@www.tscalliance.org
SUMMARY:Adult Topic Call - September 2027
DESCRIPTION:The September topic call will take place on Wednesday\, September 15\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-september-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270916
DTEND;VALUE=DATE:20270919
DTSTAMP:20260901T160821Z
CREATED:20260901T160821Z
LAST-MODIFIED:20260901T160821Z
UID:10000184-1821052800-1821311999@www.tscalliance.org
SUMMARY:2027 TSC International Research Conference
DESCRIPTION:Save the Date!\n2027 TSC International Research Conference \nSeptember 16- 18\, 2027 | Bethesda\, MD \nMore information coming soon!
URL:https://www.tscalliance.org/event/2027-tsc-international-research-conference/
LOCATION:Bethesda North Marriott\, 5701 Marinelli Rd\, Rockville\, MD\, 20852\, United States
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.0470655;-77.1153354
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Bethesda North Marriott 5701 Marinelli Rd Rockville MD 20852 United States;X-APPLE-RADIUS=500;X-TITLE=5701 Marinelli Rd:geo:-77.1153354,39.0470655
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271011T200000
DTEND;TZID=America/New_York:20271011T210000
DTSTAMP:20261005T185959Z
CREATED:20261005T185959Z
LAST-MODIFIED:20261005T185959Z
UID:10000190-1823284800-1823288400@www.tscalliance.org
SUMMARY:Ask an Advocate Session - October 2027
DESCRIPTION:Join us on Monday\, October 11\, 2027 at 8 pm ET for an Ask an Advocate session. \nRegister here.
URL:https://www.tscalliance.org/event/ask-an-advocate-session-october-2027/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271020T200000
DTEND;TZID=America/New_York:20271020T210000
DTSTAMP:20261005T195030Z
CREATED:20261005T195030Z
LAST-MODIFIED:20261005T195030Z
UID:10000195-1824062400-1824066000@www.tscalliance.org
SUMMARY:Adult Topic Call - October 2027
DESCRIPTION:The October topic call will take place on Wednesday\, October 20\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-october-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20271117T200000
DTEND;TZID=America/New_York:20271117T210000
DTSTAMP:20261005T195302Z
CREATED:20261005T195302Z
LAST-MODIFIED:20261005T195302Z
UID:10000196-1826481600-1826485200@www.tscalliance.org
SUMMARY:Adult Topic Call - November 2027
DESCRIPTION:The November topic call will take place on Wednesday\, November 17\, 2027 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nRegister here.
URL:https://www.tscalliance.org/event/adult-topic-call-november-2027/
CATEGORIES:Adult Topic Calls
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
END:VCALENDAR