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X-WR-CALDESC:Events for TSC Alliance
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DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260424T195617
CREATED:20260319T174918Z
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UID:10000171-1777492800-1777496400@www.tscalliance.org
SUMMARY:TSC 101 for Newly Diagnosed Individuals or Families
DESCRIPTION:The first pre-conference webinar\, TSC 101 for Newly Diagnosed Individuals or Families\, will take place on Wednesday\, April 29\, 2026\, at 8:00 pm ET\, and feature moderator Jennifer McCrave\, RN\, BSN\, CNRN and presenters Raj Rajaraman\, MD\, MS and Elizabeth Thiele\, MD\, PhD. This webinar will provide an overview of TSC and the importance of building a strong network of care.\n \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/tsc-101-for-newly-diagnosed-individuals-or-families/
CATEGORIES:Webinar,2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/TSC-101-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T130000
DTEND;TZID=America/New_York:20260511T140000
DTSTAMP:20260424T195617
CREATED:20260319T175624Z
LAST-MODIFIED:20260319T181122Z
UID:10000172-1778504400-1778508000@www.tscalliance.org
SUMMARY:Consensus Guidelines: What You Need to Know
DESCRIPTION:The second pre-conference webinar\, Consensus Guidelines: What You Need to Know\, will take place on Monday\, May 11\, 2026\, at 1:00 pm ET \, and feature moderator Chris Kingswood\, MD and presenters Darcy Krueger MD\, PhD; and Hope Northrup\, MD. This webinar will provide an overview of the latest Consensus Guidelines for the diagnosis\, surveillance\, and management of TSC. Developed by international experts and updated regularly\, these guidelines offer critical\, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/consensus-guidelines-what-you-need-to-know/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/ConsensusGdlns-1080x1080-1.jpg
LOCATION:
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T120000
DTEND;TZID=America/New_York:20260603T130000
DTSTAMP:20260424T195617
CREATED:20260319T180434Z
LAST-MODIFIED:20260319T181130Z
UID:10000173-1780488000-1780491600@www.tscalliance.org
SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/SeizureTypes-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260424T195617
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/Genetics-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T200000
DTEND;TZID=America/New_York:20260630T210000
DTSTAMP:20260424T195617
CREATED:20260319T181039Z
LAST-MODIFIED:20260319T181535Z
UID:10000175-1782849600-1782853200@www.tscalliance.org
SUMMARY:mTOR Inhibitors: Past\, Present and Future
DESCRIPTION:The fifth and final pre-conference webinar\, mTOR Inhibitors: Past\, Present and Future\, will take place on Tuesday\, June 30\, 2026\, at 8:00 pm ET\, and feature moderator Elizabeth Skufca and presenters David Ritter\, MD\, PhD and Michael Wong\, MD\, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC\, from their discovery to current clinical use in managing SEGAs\, kidney tumors\, epilepsy\, skin\, and more. Learn about side effects\, long-term outcomes\, and what the future holds—including new research and emerging therapies.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/mtor-inhibitors-past-present-and-future/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/mTOR-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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