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DTSTART;TZID=America/New_York:20260511T130000
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SUMMARY:Consensus Guidelines: What You Need to Know
DESCRIPTION:The second pre-conference webinar\, Consensus Guidelines: What You Need to Know\, will take place on Monday\, May 11\, 2026\, at 1:00 pm ET \, and feature moderator Chris Kingswood\, MD and presenters Darcy Krueger MD\, PhD; and Hope Northrup\, MD. This webinar will provide an overview of the latest Consensus Guidelines for the diagnosis\, surveillance\, and management of TSC. Developed by international experts and updated regularly\, these guidelines offer critical\, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/consensus-guidelines-what-you-need-to-know/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
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DTSTART;TZID=America/New_York:20260603T120000
DTEND;TZID=America/New_York:20260603T130000
DTSTAMP:20260406T055506
CREATED:20260319T180434Z
LAST-MODIFIED:20260319T181130Z
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SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260406T055506
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
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DTSTART;TZID=America/New_York:20260630T200000
DTEND;TZID=America/New_York:20260630T210000
DTSTAMP:20260406T055506
CREATED:20260319T181039Z
LAST-MODIFIED:20260319T181535Z
UID:10000175-1782849600-1782853200@www.tscalliance.org
SUMMARY:mTOR Inhibitors: Past\, Present and Future
DESCRIPTION:The fifth and final pre-conference webinar\, mTOR Inhibitors: Past\, Present and Future\, will take place on Tuesday\, June 30\, 2026\, at 8:00 pm ET\, and feature moderator Elizabeth Skufca and presenters David Ritter\, MD\, PhD and Michael Wong\, MD\, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC\, from their discovery to current clinical use in managing SEGAs\, kidney tumors\, epilepsy\, skin\, and more. Learn about side effects\, long-term outcomes\, and what the future holds—including new research and emerging therapies.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/mtor-inhibitors-past-present-and-future/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
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DTSTART;VALUE=DATE:20260730
DTEND;VALUE=DATE:20260802
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SUMMARY:2026 TSC World Conference
DESCRIPTION:Register today for the 2026 TSC World Conference from July 30 to August 1\, 2026\, at the Gaylord Rockies Resort & Convention Center in Aurora\, CO! Conference programming will begin at 1 pm MT on Thursday\, July 30 and will conclude with a dinner and celebration in the evening on Saturday\, August 1. \n \nThis conference\, held every 4-5 years\, promises to be one of the largest tuberous sclerosis complex (TSC) gatherings around the globe\, covering all aspects of TSC across the lifespan\, including: \n\nThe latest and most comprehensive TSC diagnosis\, treatment and research information from the world’s leading TSC clinicians and scientists\nAssistance through the myriad of educational\, transitional\, financial and emotional challenges of TSC\n\nIn addition\, as a conference attendee you will receive: \n\nThe opportunity to meet hundreds of other families and individuals with TSC and make life-long connections\nA better understanding of the role the TSC Alliance and Tuberous Sclerosis Complex International (TSCi) play in research\, support and government advocacy both in the United States and around the world\nQ&A sessions with expert clinicians and researchers\nProfessionally staffed day camps for children with special needs\, siblings and dependent adults\n\nScholarships will be available for individuals and families who would otherwise be unable to attend the 2026 TSC World Conference. Costs eligible for scholarship coverage include conference registration\, Day Camp\, and/or hotel. Travel to and from the conference is not eligible and must be covered by the attendee(s). \nThe scholarship application window has closed. Applicants will be notified no later than the end of March 2026. \nQuestions about scholarships? Please contact worldconference@tscalliance.org \nJoin us for the 2026 TSC World Conference Webinar Series!\nJoin the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference\, taking place July 30-August 1\, 2026. Participation is not limited to conference attendees. You are welcome to join the webinar series even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support. \nLearn more about the webinar series
URL:https://www.tscalliance.org/event/2026-tsc-world-conference/
LOCATION:Gaylord Rockies Resort & Convention Center\, North Gaylord Rockies Boulevard 6700\, Aurora\, CO\, 80019\, United States
CATEGORIES:2026 TSC World Conference
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