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SUMMARY:Tuberous Sclerosis Complex (TSC): Prenatal and Child Development Study Webinar
DESCRIPTION:hJoin the TSC Alliance\, in collaboration with Duke University’s TSC Center of Excellence\, for a webinar on Tuesday\, December 1\, 2026\, at 7 pm ET\, to learn more about their Tuberous Sclerosis Complex (TSC): Prenatal and Child Development Study. \nThe study focuses on pregnancy experiences among individuals who have been pregnant with a child diagnosed with TSC\, to help researchers understand the safety and potential impact of prenatal exposure to sirolimus and everolimus. The study will compare women with and without exposure to one of these medications\, so being on one of either is not a requirement. The long-term development outcomes between children who were and were not exposed to these medications will be compared. \nThis webinar features Drs. Jennifer Cohen and Alice Bryn Salter from Duke University and will include information about: \n\nStudy goals\nEnrollment criteria\nTimeline\nQuestion & Answer\n\nREGISTER HERE\n  \nMeet the speakers:\nJennifer L. Cohen\, MD is an Associate Professor of Pediatrics in the Division of Medical Genetics at Duke University. She has joint appointments in the Department of Obstetrics & Gynecology and the Department of Molecular Genetics and Microbiology. She attended Yale College and then received her MD from the Icahn School of Medicine at Mount Sinai in NYC. She completed a combined residency program at the Children’s Hospital of Philadelphia in Pediatrics and Medical Genetics\, before joining the faculty at Duke in 2019. Her research interests and expertise are in perinatal genetic medicine with a current focus on earlier diagnosis and perinatal intervention for rare genetic diseases. She is actively involved in gene therapy trials for lysosomal storage diseases and has been integral to the success of the ongoing clinical trial for prenatal treatment of lysosomal storage diseases; she serves as the Duke subcontract Principal Investigator on this trial. Dr. Cohen’s current work aims to leverage public health genomics for the early and equitable delivery of gene-directed therapies to patients with treatable genetic conditions. Dr. Cohen continues to develop prenatal clinical trials and novel methods to diagnose and treat genetic diseases before birth. \n\nAlice Bryn Salter\, MD is a developmental and behavioral pediatrician who provides consultations for children with autism\, complex ADHD\, and academic difficulties\, frequently evaluating these challenges within the framework of known or suspected neurogenetic conditions. She codirects the Duke TSC Center of Excellence\, focusing on TAND evaluations and developmental and behavioral supports. Drawing on her experiences as a pediatrician\, educator\, and mother\, she partners with families to identify coexisting conditions and implement practical strategies or medical management to help children thrive.
URL:https://www.tscalliance.org/event/tuberous-sclerosis-complex-tsc-prenatal-and-child-development-study-webinar/
CATEGORIES:Webinar
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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