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X-WR-CALDESC:Events for TSC Alliance
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DTSTART;TZID=America/New_York:20250612T180000
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UID:10000089-1749751200-1749754800@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – Strategies for ASD and behavior in tuberous sclerosis complex
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-strategies-for-asd-and-behavior-in-tuberous-sclerosis-complex/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event-1.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250630T140000
DTEND;TZID=America/Los_Angeles:20250630T150000
DTSTAMP:20260403T152226
CREATED:20250606T170123Z
LAST-MODIFIED:20250606T170709Z
UID:10000135-1751292000-1751295600@www.tscalliance.org
SUMMARY:Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery
DESCRIPTION:Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste\, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery\, on Monday\, June 30\, 2025\, at 2 pm PT. \nThis webinar is co-hosted by the TSC Alliance\, LGS Foundation\, and CHADD’s National Resource Center on ADHD. \nMany kids with drug-resistant epilepsy (DRE) also have challenges with learning\, behavior\, or attention—but parents are often left with more questions than answers. These issues may be part of something called a neurodevelopmental disorder (NDD). \nBut what is an NDD? How do you know if your child has one? And how do you get help? \nIn this Power Hour\, pediatric neurologist Dr. Shafali Jeste will explain NDDs in clear\, simple language. \nShe’ll cover: \n\nWhat neurodevelopmental disorders are\nHow they’re diagnosed\nHow they can overlap with epilepsy\, autism\, ADHD\, and learning delays\nHow the correct diagnosis can help unlock proper supports and services for your child\n\nThis talk is perfect for parents who are dealing with: \n\nBehavior or attention issues\nLearning delays\nTrouble getting school services or knowing what to ask for\n\nDr. Jeste will discuss how these issues may be present before epilepsy surgery\, may change after surgery\, or show up later on. Every child’s path is different—and having the right information can make a big difference. \nWho should attend? \nParents and caregivers of children with drug-resistant epilepsy (including genetic epilepsies like TSC\, Dravet\, or LGS) and ADHD\, autism\, or other neurodevelopmental disorders. \nRegister here!
URL:https://www.tscalliance.org/event/power-hour-understanding-neurodevelopmental-disorders-after-epilepsy-surgery/
CATEGORIES:Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250911T180000
DTEND;TZID=America/New_York:20250911T190000
DTSTAMP:20260403T152226
CREATED:20241218T190217Z
LAST-MODIFIED:20241218T190330Z
UID:10000090-1757613600-1757617200@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – mTOR inhibitors and their use in TSC
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/tscanadastseries3/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T180000
DTEND;TZID=America/New_York:20251113T190000
DTSTAMP:20260403T152226
CREATED:20241218T190540Z
LAST-MODIFIED:20241218T190540Z
UID:10000091-1763056800-1763060400@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-transitioning-into-adult-care-for-tsc-patients-promoting-reproductive-health-and-well-being-in-adolescents-with-tsc/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event-1.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260403T152226
CREATED:20260319T174918Z
LAST-MODIFIED:20260319T175230Z
UID:10000171-1777492800-1777496400@www.tscalliance.org
SUMMARY:TSC 101 for Newly Diagnosed Individuals or Families
DESCRIPTION:The first pre-conference webinar\, TSC 101 for Newly Diagnosed Individuals or Families\, will take place on Wednesday\, April 29\, 2026\, at 8:00 pm ET\, and feature moderator Jennifer McCrave\, RN\, BSN\, CNRN and presenters Raj Rajaraman\, MD\, MS and Elizabeth Thiele\, MD\, PhD. This webinar will provide an overview of TSC and the importance of building a strong network of care.\n \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/tsc-101-for-newly-diagnosed-individuals-or-families/
CATEGORIES:Webinar,2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/TSC-101-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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