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DTSTART;TZID=America/Chicago:20251101T110000
DTEND;TZID=America/Chicago:20251101T140000
DTSTAMP:20260415T005401
CREATED:20251015T200511Z
LAST-MODIFIED:20251021T200707Z
UID:10000141-1761994800-1762005600@www.tscalliance.org
SUMMARY:34th Annual Cookin' Up a Cure
DESCRIPTION:Thirty-four years ago\, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: “Your child has Tuberous Sclerosis Complex.” Together\, they fought Joey’s battle with courage and love. Sadly\, just over a year after his diagnosis\, Joey’s little heart could no longer carry on. But his family promised him that they would continue his fight and ensure that his life’s purpose lived on.\n\n\n\n\nThe pampered chef party will begin at noon with a live auction\, raffles\, food and more at the Knights of Columbus on 732 Badger Avenue in South Milwaukee\, Wisconsin. Please contact Pam Sztukowski at pamsztukowski@gmail.com or 414.881.5276 with any questions.\n\n\n\n\nIn 2025\, they will honor that promise for the 34th time\, holding their annual auction in Joey’s memory. They carry on\, not just for Joey\, but for all the children\, parents\, grandparents\, and families who have faced the challenges of a TSC diagnosis.\n\n\n\n\nWe hope you can join us in Joey’s memory.\n\n\n\n\nCan’t attend? Please consider:\n\nDonating an item for the silent auction\nPlacing a Pampered Chef Order where 25% of all sales will be donated to the TSC Alliance: https://hubs.li/Q03Nz6_L0\nMake a donation via VENMO or Check (payable to the TSC Alliance)
URL:https://www.tscalliance.org/event/34th-annual-cookin-up-a-cure/
LOCATION:Knights of Columbus\, 723 Badger Avenue\, South Milwaukee\, WI\, 53172\, United States
CATEGORIES:Community Gatherings
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:42.9274902;-87.8577439
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Knights of Columbus 723 Badger Avenue South Milwaukee WI 53172 United States;X-APPLE-RADIUS=500;X-TITLE=723 Badger Avenue:geo:-87.8577439,42.9274902
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251102
DTEND;VALUE=DATE:20251103
DTSTAMP:20260415T005401
CREATED:20250908T180450Z
LAST-MODIFIED:20250908T181208Z
UID:10000140-1762041600-1762127999@www.tscalliance.org
SUMMARY:2025 TCS New York City Marathon
DESCRIPTION:The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday\, November 2\, 2025. \nThese passionate individuals will take to the streets of NYC\, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis complex (TSC) can live their fullest lives. Join us in cheering them on as they prepare for this amazing journey. \nSupport Team TSC and learn more about their training here.
URL:https://www.tscalliance.org/event/2025-tcs-new-york-city-marathon/
LOCATION:New York City\, Drum Road\, Staten Island\, New York\, 10305\, United States
CATEGORIES:Team TSC
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X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=New York City Drum Road Staten Island New York 10305 United States;X-APPLE-RADIUS=500;X-TITLE=Drum Road:geo:-74.0618196,40.6031943
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T080000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260415T005401
CREATED:20250303T212228Z
LAST-MODIFIED:20251022T202306Z
UID:10000115-1762588800-1762621200@www.tscalliance.org
SUMMARY:TSC Regional Conference - Los Angeles\, CA
DESCRIPTION:This one-day TSC Regional Conference will take place on Saturday\, November 8\, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles\, CA\, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for\nTSC Managing behaviors in TAND and caregiver mental health\nGenetics and family planning\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nCheck out the agenda here. \nREGISTER HERE \nPRESENTING SPONSORS\n \n \n \nSeries SPONSORS\n\n \n \nSupporting SPONSORS\n \n\nOne Conference SPONSOR
URL:https://www.tscalliance.org/event/tsc-regional-conference-los-angeles-ca/
LOCATION:UCLA Meyer and Renee Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:TSC Regional Conference Series
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:34.0693709;-118.4457082
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza Los Angeles CA 90095 United States;X-APPLE-RADIUS=500;X-TITLE=425 Westwood Plaza:geo:-118.4457082,34.0693709
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251110
DTEND;VALUE=DATE:20251112
DTSTAMP:20260415T005401
CREATED:20250422T153422Z
LAST-MODIFIED:20250605T174155Z
UID:10000129-1762732800-1762905599@www.tscalliance.org
SUMMARY:Epilepsy Awareness Day @ Disneyland® Resort
DESCRIPTION:Join us for the 13th Annual Epilepsy Awareness & Education Expo. \n📍 Disneyland Hotel\, Anaheim\, CA \n📅 November 10–11\, 2025 \nThis FREE two-day event brings together the largest gathering of epilepsy professionals\, advocates and families in the country. \nCome explore: \n\n100+ exhibitors including top epilepsy centers & providers\nCutting-edge anti-seizure meds and technologies\nNational support groups & service dog demos\n80+ expert-led presentations on diagnosis\, treatment\, surgery & more\nCME available for healthcare providers\nA Research Roundtable & tons of resources for all ages\n\nRegistration is NOW OPEN 👉 Learn more at epilepsyawarenessday.org \nRegister here
URL:https://www.tscalliance.org/event/epilepsy-awareness-day-disneyland-resort/
LOCATION:Disneyland Hotel Convention Center\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
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GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel Convention Center 1150 Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T180000
DTEND;TZID=America/New_York:20251113T190000
DTSTAMP:20260415T005401
CREATED:20241218T190540Z
LAST-MODIFIED:20241218T190540Z
UID:10000091-1763056800-1763060400@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-transitioning-into-adult-care-for-tsc-patients-promoting-reproductive-health-and-well-being-in-adolescents-with-tsc/
LOCATION:IL
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event-1.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T200000
DTEND;TZID=America/New_York:20251119T210000
DTSTAMP:20260415T005401
CREATED:20241219T170719Z
LAST-MODIFIED:20251030T193749Z
UID:10000097-1763582400-1763586000@www.tscalliance.org
SUMMARY:Adult Topic Call
DESCRIPTION:Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar\, PhD\, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on the current state of TSC research\, including key initiatives like Anya’s Accelerator and Quality Improvement Initiatives\, along with other exciting developments. This is a great opportunity to stay informed on current research efforts at the TSC Alliance\, ask questions\, learn how you can get involved\, and engage with other adults in the TSC community. \nThese calls are hosted on the third Wednesday of September\, October\, November\, March\, April and May. You can join using your computer or dial in on the phone. You MUST register in advance to participate in a call. \nRegister for the November 19\, 2025 Topic Call here.
URL:https://www.tscalliance.org/event/adult-topic-call-7/
LOCATION:
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/November-2025-ATC-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T200000
DTEND;TZID=America/New_York:20251208T210000
DTSTAMP:20260415T005401
CREATED:20250812T172002Z
LAST-MODIFIED:20251202T195646Z
UID:10000137-1765224000-1765227600@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on Monday\, December 8\, 2025 at 8 pm ET for an Ask an Advocate session. Topic: Open Forum. \nRegister for the December 8\, 2025 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-5/
LOCATION:IL
CATEGORIES:Ask an Advocate Series
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260415T005401
CREATED:20251121T160958Z
LAST-MODIFIED:20251121T161042Z
UID:10000143-1766084400-1766088000@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - The Psychological impact on Caregivers
DESCRIPTION:Join Michele D. Della Costa\, MS\, LMFT-QS\, on Thursday\, December 18\, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC\, including how to prevent burnout and create space for self-care. \nREGISTER HERE \nThe Transition Webinar Series is co-hosted by Mass General Brigham and the Herscot Center for TSC\, and presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC.
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-the-psychological-impact-on-caregivers-2/
LOCATION:IL
CATEGORIES:Transition Workshop,Transition Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/10/2025TransitionWebinarSeriesLogo-FinalRev02-25-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260209T200000
DTEND;TZID=America/New_York:20260209T210000
DTSTAMP:20260415T005401
CREATED:20251202T193948Z
LAST-MODIFIED:20260116T164511Z
UID:10000150-1770667200-1770670800@www.tscalliance.org
SUMMARY:Ask an Advocate - February 2026
DESCRIPTION:Join us for an Ask an Advocate session!\n\n\n\nJoin Wendy Anderson\, TSC Alliance Education Peer Mentor\, on Monday\, February 9\, 2026\, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local\, state\, and federal levels. Wendy will share her experience as a parent-advocate and offer clear\, practical ways to involve the whole family in influencing legislation\, shaping public policy\, and elevating the voices of those most affected.\n\n\nRegister for the February 9\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-february-2026/
LOCATION:IL
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/12/February-2026.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260318T200000
DTEND;TZID=America/New_York:20260318T210000
DTSTAMP:20260415T005401
CREATED:20251124T203453Z
LAST-MODIFIED:20251124T203537Z
UID:10000144-1773864000-1773867600@www.tscalliance.org
SUMMARY:Adult Topic Call - March 2026
DESCRIPTION:The March topic call will take place on Wednesday\, March 18\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-march-2026/
LOCATION:IL
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260327T080000
DTEND;TZID=America/New_York:20260327T170000
DTSTAMP:20260415T005401
CREATED:20260327T171543Z
LAST-MODIFIED:20260327T171543Z
UID:10000178-1774598400-1774630800@www.tscalliance.org
SUMMARY:TCS New York City Marathon
DESCRIPTION:Run with the Team TSC in the TCS New York City Marathon on Sunday\, November 1\, 2026. \nCOmplete the Interest form here
URL:https://www.tscalliance.org/event/tcs-new-york-city-marathon/
LOCATION:IL
CATEGORIES:Team TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/TCSNYM26_Charity_RGB_FC-e1773069207336.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260415T005401
CREATED:20260323T195127Z
LAST-MODIFIED:20260323T195127Z
UID:10000176-1775001600-1777593599@www.tscalliance.org
SUMMARY:Coffee for a Cause
DESCRIPTION:What if your morning coffee could make an impact? Until April 30\, 33% of every Coffee for a Cause Premium Roast (12oz) purchased through our fundraising page will be donated to TSC Alliance! Pick your roast–Dark\, Medium\, Light\, or Decaf: each bag is roasted on demand and shipped fresh to your door. \nSupport a great cause while enjoying premium coffee. Purchase your coffee here.
URL:https://www.tscalliance.org/event/coffee-for-a-cause/
LOCATION:IL
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/1000011534.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260411T110000
DTEND;TZID=America/North_Dakota/New_Salem:20260411T130000
DTSTAMP:20260415T005401
CREATED:20260116T012835Z
LAST-MODIFIED:20260330T193312Z
UID:10000164-1775905200-1775912400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Houston\, TX
DESCRIPTION:Join us in Sugar Land\, TX on Saturday\, April 11\, 2026\, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston\, TX area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-houston-tx/
LOCATION:Brazos River Park\, 18427 Southwest Freeway\, Sugar Land\, TX\, 77479\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:29.5711823;-95.6611539
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Brazos River Park 18427 Southwest Freeway Sugar Land TX 77479 United States;X-APPLE-RADIUS=500;X-TITLE=18427 Southwest Freeway:geo:-95.6611539,29.5711823
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260415T005401
CREATED:20251202T194245Z
LAST-MODIFIED:20251202T194245Z
UID:10000151-1776110400-1776114000@www.tscalliance.org
SUMMARY:Ask an Advocate - April 2026
DESCRIPTION:Join us on Monday\, April 13\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the April 13\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-april-2026/
LOCATION:IL
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T200000
DTEND;TZID=America/New_York:20260415T210000
DTSTAMP:20260415T005401
CREATED:20251124T203722Z
LAST-MODIFIED:20251124T203722Z
UID:10000145-1776283200-1776286800@www.tscalliance.org
SUMMARY:Adult Topic Call - April 2026
DESCRIPTION:The April topic call will take place on Wednesday\, April 15\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-april-2026/
LOCATION:IL
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260417
DTEND;VALUE=DATE:20260418
DTSTAMP:20260415T005401
CREATED:20260225T165505Z
LAST-MODIFIED:20260225T165505Z
UID:10000170-1776384000-1776470399@www.tscalliance.org
SUMMARY:Panda Express Virtual Fundraiser
DESCRIPTION:Craving some delicious Panda Express? Here’s a perfect excuse to indulge! Order online for pickup or takeout at any Panda Express location nationwide on Friday\, April 17\, and 33% of your purchase will be donated to the TSC Alliance. \n\nSimply use code 9013288 in the Fundraiser Code box at checkout to make a difference with every bite.\n\nLearn more: https://www.community-fundraiser.com/…/4c905…/en/landing
URL:https://www.tscalliance.org/event/panda-express-virtual-fundraiser/
LOCATION:IL
CATEGORIES:Community Gatherings
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/02/Screenshot-2026-02-25-at-11.42.10-AM-e1772038433290.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T103000
DTEND;TZID=America/New_York:20260418T133000
DTSTAMP:20260415T005401
CREATED:20260116T011756Z
LAST-MODIFIED:20260330T174832Z
UID:10000163-1776508200-1776519000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Nashville\, TN
DESCRIPTION:Join us in Nashville\, TN on Saturday\, April 18\, 2026\, at Edwin Warner Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Tennessee area—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:30 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-nashville-tn-2/
LOCATION:Edwin Warner Park\, Vaughn Road\, Nashville\, TN\, 37221\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Nashville-2-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:36.0500101;-86.9041463
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Edwin Warner Park Vaughn Road Nashville TN 37221 United States;X-APPLE-RADIUS=500;X-TITLE=Vaughn Road:geo:-86.9041463,36.0500101
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260419T160000
DTEND;TZID=America/Los_Angeles:20260419T190000
DTSTAMP:20260415T005401
CREATED:20260122T010154Z
LAST-MODIFIED:20260122T010154Z
UID:10000165-1776614400-1776625200@www.tscalliance.org
SUMMARY:Comedy for a Cure®
DESCRIPTION:The 25th Annual Comedy for A Cure® will be held Sunday\, April 19\, 2026 at the iconic Irvine Improv at Irvine Spectrum Center. \nThis year’s headliner\, the legendary Rita Rudner\, will be joined by Mo Collins\, Wendy Liebman\, Craig Shoemaker\, and Priya Mehta. \nDon’t miss out on this incredible event supporting the TSC community! Learn more at www.comedyforacure.org. \nPURCHASE YOUR TICKETS HERE
URL:https://www.tscalliance.org/event/comedy-for-a-cure/
LOCATION:Irvine Imrov\, 527 Spectrum Center Dr\, Irvine\, CA\, 92618\, United States
CATEGORIES:Comedy for a Cure
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/C4C26_1080x1080-3.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T073000
DTEND;TZID=America/Los_Angeles:20260426T100000
DTSTAMP:20260415T005401
CREATED:20260115T220152Z
LAST-MODIFIED:20260331T191102Z
UID:10000161-1777188600-1777197600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Renton\, WA
DESCRIPTION:Join us in Renton\, WA on Saturday\, April 26\, 2026\, at Renton Community Center for Step Forward to Cure TSC®! This walk brings together the TSC community from the Pacific Northwest—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n7:30 am – Registration begins\n8:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-renton-wa-2/
LOCATION:Renton Community Center\, Maple Valley Highway\, Renton\, WA\, 98057\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/UPDATED-Renton-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:47.4817324;-122.1974966
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Renton Community Center Maple Valley Highway Renton WA 98057 United States;X-APPLE-RADIUS=500;X-TITLE=Maple Valley Highway:geo:-122.1974966,47.4817324
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260426T093000
DTEND;TZID=America/New_York:20260426T120000
DTSTAMP:20260415T005401
CREATED:20260114T214432Z
LAST-MODIFIED:20260331T194026Z
UID:10000155-1777195800-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Rockville\, MD
DESCRIPTION:Join us in Rockville\, MD on Sunday\, April 26\, 2026 at Charles E. Smith Jewish Day School for Step Forward to Cure TSC®! This event will bring together Maryland\, Metro DC\, and surrounding communities for an incredible day of connection and impact. \n 9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-rockville-md-2/
LOCATION:Charles E. Smith Jewish Day School\, Hunters Lane\, Rockville\, MD\, 20852\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/UPDATED-Rockville-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.0494131;-77.1001988
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Charles E. Smith Jewish Day School Hunters Lane Rockville MD 20852 United States;X-APPLE-RADIUS=500;X-TITLE=Hunters Lane:geo:-77.1001988,39.0494131
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T100000
DTEND;TZID=America/Los_Angeles:20260426T120000
DTSTAMP:20260415T005401
CREATED:20260205T214857Z
LAST-MODIFIED:20260330T184024Z
UID:10000168-1777197600-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Pasadena\, CA
DESCRIPTION:Join us in Pasadena\, CA on Sunday\, April 26\, 2026\, at the Rose Bowl Stadium – Court of Champions for Step Forward to Cure TSC®! \nThe Step Forward to Cure TSC® Walk is more than an event—it’s a chance to connect with people who truly understand the challenges and triumphs of living with TSC. Together\, we raise awareness\, build community\, and take meaningful steps toward a brighter future for everyone affected by TSC —locally and nationwide. Whether you’re walking for a loved one\, supporting a friend\, or standing up for the TSC community\, your participation makes a real and lasting impact. This walk is a celebration of strength\, resilience\, and hope\, honoring those affected while bringing people together around a shared purpose. Join us at the at the Rose Bowl in Pasadena\, CA for the Step Forward to Cure TSC Walk and help ensure that no one faces TSC alone. Together\, we move closer to a world without TSC. \nThis event will take place rain or shine! For more details or to volunteer\, please contact: Rob Grandia at grandia@verizon.net. \n10:00 am – Registration begins\n \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pasadena-ca/
LOCATION:Rose Bowl Stadium – Court of Champions\, 1001 Rose Bowl Dr\, Pasadena\, CA\, 91103\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/02/UPDATED-Pasadena-2-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260426T110000
DTEND;TZID=America/Chicago:20260426T140000
DTSTAMP:20260415T005401
CREATED:20260130T191208Z
LAST-MODIFIED:20260330T192824Z
UID:10000167-1777201200-1777212000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Chicago\, IL
DESCRIPTION:Join us in Chicago\, IL on Sunday\, April 26\, 2026\, at Lake Shore Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Chicago\, IL area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-chicago-il-2/
LOCATION:Lake Shore Park\, 808 North Lake Shore Drive\, Chicago\, IL\, 60611\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Chicago-1-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.8973151;-87.6199492
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Lake Shore Park 808 North Lake Shore Drive Chicago IL 60611 United States;X-APPLE-RADIUS=500;X-TITLE=808 North Lake Shore Drive:geo:-87.6199492,41.8973151
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260415T005401
CREATED:20260319T174918Z
LAST-MODIFIED:20260319T175230Z
UID:10000171-1777492800-1777496400@www.tscalliance.org
SUMMARY:TSC 101 for Newly Diagnosed Individuals or Families
DESCRIPTION:The first pre-conference webinar\, TSC 101 for Newly Diagnosed Individuals or Families\, will take place on Wednesday\, April 29\, 2026\, at 8:00 pm ET\, and feature moderator Jennifer McCrave\, RN\, BSN\, CNRN and presenters Raj Rajaraman\, MD\, MS and Elizabeth Thiele\, MD\, PhD. This webinar will provide an overview of TSC and the importance of building a strong network of care.\n \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/tsc-101-for-newly-diagnosed-individuals-or-families/
LOCATION:
CATEGORIES:Webinar,2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/TSC-101-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T093000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260415T005401
CREATED:20260115T220833Z
LAST-MODIFIED:20260115T220833Z
UID:10000162-1777714200-1777723200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Charlotte\, NC
DESCRIPTION:Join us in Charlotte\, NC on Saturday\, May 2\, 2026\, at Park Road Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Carolinas —united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-charlotte-nc/
LOCATION:Park Road Park\, 6220 Park Rd\, Charlotte\, NC\, 28210\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Charlotte-NC-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260503T090000
DTEND;TZID=America/North_Dakota/New_Salem:20260503T110000
DTSTAMP:20260415T005401
CREATED:20260129T222519Z
LAST-MODIFIED:20260205T215308Z
UID:10000166-1777798800-1777806000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - DFW\, TX
DESCRIPTION:Join us in Dallas-Fort Worth\, TX on Sunday\, May 3\, 2026\, at Doubletree Ranch Park for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:00 am – Registration begins\n10:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-dfw-tx/
LOCATION:Doubletree Ranch Park\, 310 Highland Village Rd\, Highland Village\, TX\, 75077\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/DFW-1-scaled.jpeg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T130000
DTEND;TZID=America/New_York:20260511T140000
DTSTAMP:20260415T005401
CREATED:20260319T175624Z
LAST-MODIFIED:20260319T181122Z
UID:10000172-1778504400-1778508000@www.tscalliance.org
SUMMARY:Consensus Guidelines: What You Need to Know
DESCRIPTION:The second pre-conference webinar\, Consensus Guidelines: What You Need to Know\, will take place on Monday\, May 11\, 2026\, at 1:00 pm ET \, and feature moderator Chris Kingswood\, MD and presenters Darcy Krueger MD\, PhD; and Hope Northrup\, MD. This webinar will provide an overview of the latest Consensus Guidelines for the diagnosis\, surveillance\, and management of TSC. Developed by international experts and updated regularly\, these guidelines offer critical\, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/consensus-guidelines-what-you-need-to-know/
LOCATION:
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/ConsensusGdlns-1080x1080-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T083000
DTEND;TZID=America/New_York:20260516T120000
DTSTAMP:20260415T005401
CREATED:20260330T154437Z
LAST-MODIFIED:20260330T154437Z
UID:10000179-1778920200-1778932800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Tampa\, FL
DESCRIPTION:Join us in Tampa\, FL on Saturday\, May 16\, 2026\, at the Shanna and Bryan Glazer JCC for Step Forward to Cure TSC®! \nThis beautiful venue provides the perfect backdrop for a day dedicated to hope\, strength\, and community. Whether you are a long-time supporter or joining us for the first time\, we can’t wait to welcome you for a morning of fun and meaningful connection. \nHow can you get involved?\nSuccess starts with you! By registering early\, you help us build momentum for our biggest year yet. \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-tampa-fl-2/
LOCATION:Shanna and Bryan Glazer JCC\, 522 N Howard Ave\, Tampa\, FL\, 33606\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/Tampa-FL-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260415T005401
CREATED:20260115T201528Z
LAST-MODIFIED:20260115T201528Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Perry-OH-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260415T005401
CREATED:20260115T214033Z
LAST-MODIFIED:20260115T214033Z
UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260415T005401
CREATED:20260115T214628Z
LAST-MODIFIED:20260211T151852Z
UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/West-Chester-PA-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
END:VCALENDAR