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DTSTART;TZID=America/New_York:20250424T200000
DTEND;TZID=America/New_York:20250424T210000
DTSTAMP:20260417T063932
CREATED:20250403T132107Z
LAST-MODIFIED:20250403T132306Z
UID:10000128-1745524800-1745528400@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - Helping Secure the Financial Future of Individuals (of all ages) with Disabilities
DESCRIPTION:Join us for the second workshop in the 2025 Transition workshop series on Thursday\, April 24\, 2025 at 8 pm ET where we will discuss critical considerations for individuals of all ages who have a disability. We’ll review the importance of creating a life care plan\, how it can help\, and who should be involved. Learn crucial information and tools to help prepare for your loved one’s financial future\, including government benefits\, special needs trusts\, ABLE accounts\, and other legal and financial structures and considerations. \nPreparing for the financial future of a loved one with a disability can ease the burden of the unexpected\, and help ensure their continued care and quality of life well into the future. \nThis webinar will be recorded. \nREGISTER HERE
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-helping-secure-the-financial-future-of-individuals-of-all-ages-with-disabilities/
LOCATION:https://www.tscalliance.org/event/2025-transition-webinar-series-helping-secure-the-financial-future-of-individuals-of-all-ages-with-disabilities/
CATEGORIES:Transition Workshop,Transition Webinar
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250427T073000
DTEND;TZID=America/New_York:20250427T130000
DTSTAMP:20260417T063932
CREATED:20250311T164017Z
LAST-MODIFIED:20250311T164017Z
UID:10000117-1745739000-1745758800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Renton\, WA
DESCRIPTION:Join us for Step Forward to Cure TSC® in Renton\, WA on Sunday\, April 27\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Washington area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSunday\, April 27\, 2025. Registration opens at 7:30 am PT.\n\n\nRenton Community Center: 1715 Maple Valley HWY\, Renton\, WA 98507\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-renton-wa/
LOCATION:Renton Community Center\, Maple Valley Highway\, Renton\, WA\, 98057\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Renton-WA.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:47.4817324;-122.1974966
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Renton Community Center Maple Valley Highway Renton WA 98057 United States;X-APPLE-RADIUS=500;X-TITLE=Maple Valley Highway:geo:-122.1974966,47.4817324
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250427T100000
DTEND;TZID=America/Chicago:20250427T130000
DTSTAMP:20260417T063932
CREATED:20250113T204259Z
LAST-MODIFIED:20250205T145643Z
UID:10000100-1745748000-1745758800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Chicago\, IL
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to Chicago\, IL on Sunday\, April 27\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Illinois TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSunday\, April 27\, 2025\n\n\nLake Shore Park: 808 N. Lake Shore Dr\, Chicago\, IL 60611\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-chicago-il/
LOCATION:Lake Shore Park\, 808 North Lake Shore Drive\, Chicago\, IL\, 60611\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/01/Chicago-IL-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.8973151;-87.6199492
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Lake Shore Park 808 North Lake Shore Drive Chicago IL 60611 United States;X-APPLE-RADIUS=500;X-TITLE=808 North Lake Shore Drive:geo:-87.6199492,41.8973151
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T080000
DTEND;TZID=America/New_York:20250503T170000
DTSTAMP:20260417T063932
CREATED:20250318T133609Z
LAST-MODIFIED:20250430T193548Z
UID:10000118-1746259200-1746291600@www.tscalliance.org
SUMMARY:TSC Regional Conference in Boston\, MA
DESCRIPTION:Join the TSC Alliance for the first conference in the 2025 TSC Regional Conference Series! This conference will take place in Boston\, MA on Saturday\, May 3\, 2025\, at the Bentley University Conference Center. Conference registration will be open from 8:00 to 9:30 am ET and the conference will conclude at 5:30 pm ET. \nThis one-day conference aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. It will also include networking opportunities to meet other families and individuals from the area. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for TSC\nManaging behaviors in TSC-Associated Neuropsychiatric Disorders (TAND) and caregiver mental health\nGenetics and family planning\nReproductive and perinatal health issues\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nView the conference agenda here. \nRegistration for the conference is $10 and includes a boxed lunch. Onsite childcare is not provided. If there is a financial hardship\, please email Shelly Meitzler at smeitzler@tscalliance.org. \nFor more information and registration details\, please visit tscalliance.org/2025conferences.
URL:https://www.tscalliance.org/event/tsc-regional-conference-in-boston-ma/
LOCATION:Bentley University Conference Center\, 175 Forest St\, Waltham\, MA\, 02452\, United States
CATEGORIES:Regional Conference,TSC Regional Conference Series
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GEO:42.3866581;-71.2242966
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Bentley University Conference Center 175 Forest St Waltham MA 02452 United States;X-APPLE-RADIUS=500;X-TITLE=175 Forest St:geo:-71.2242966,42.3866581
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T100000
DTEND;TZID=America/New_York:20250503T150000
DTSTAMP:20260417T063932
CREATED:20250116T164715Z
LAST-MODIFIED:20250116T164947Z
UID:10000101-1746266400-1746284400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Lebanon\, IN
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to Lebanon\, IN on Saturday\, May 3\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Indiana area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 3\, 2025\n\n\nLebanon Memorial Park: 130 E Ulen Drive\, Lebanon\, IN 46052\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-lebanon-in/
LOCATION:Lebanon Memorial Park\, 130 E Ulen Drive\, Lebanon\, IN\, 46052\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/01/Lebanon-IN-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:40.0572705;-86.4687573
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Lebanon Memorial Park 130 E Ulen Drive Lebanon IN 46052 United States;X-APPLE-RADIUS=500;X-TITLE=130 E Ulen Drive:geo:-86.4687573,40.0572705
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T100000
DTEND;TZID=America/New_York:20250503T170000
DTSTAMP:20260417T063932
CREATED:20250116T165315Z
LAST-MODIFIED:20250116T165315Z
UID:10000103-1746266400-1746291600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Clemmons\, NC
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to Clemmons\, NC on Saturday\, May 3\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Carolinas area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 3\, 2025\n\n\nTanglewood Park – Shelter #2: 4061 Clemmons Rd\, Clemmons\, NC 27012\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-clemmons-nc/
LOCATION:Tanglewood Park\, 4061 Clemmons Rd\, Clemmons\, NC\, 27012\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/01/Clemmons-NC.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:36.0188923;-80.4029116
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Tanglewood Park 4061 Clemmons Rd Clemmons NC 27012 United States;X-APPLE-RADIUS=500;X-TITLE=4061 Clemmons Rd:geo:-80.4029116,36.0188923
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250503T100000
DTEND;TZID=America/New_York:20250503T170000
DTSTAMP:20260417T063932
CREATED:20250116T165033Z
LAST-MODIFIED:20250116T165033Z
UID:10000102-1746266400-1746291600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Nashville\, TN
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to Nashville\, TN on Saturday\, May 3\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Tennessee area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 3\, 2025\n\n\nEdwin Warner Park – Shelter #5: 50 Vaughn Road\, Nashville\, TN 37221\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-nashville-tn/
LOCATION:Edwin Warner Park\, Vaughn Road\, Nashville\, TN\, 37221\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/01/Nashville-TN.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:36.0500101;-86.9041463
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Edwin Warner Park Vaughn Road Nashville TN 37221 United States;X-APPLE-RADIUS=500;X-TITLE=Vaughn Road:geo:-86.9041463,36.0500101
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250510T100000
DTEND;TZID=America/New_York:20250510T153000
DTSTAMP:20260417T063932
CREATED:20250324T155114Z
LAST-MODIFIED:20250324T155137Z
UID:10000123-1746871200-1746891000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us for Step Forward to Cure TSC® in Perry\, OH on Saturday\, May 10\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Ohio area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 10\, 2025 @10 am ET\n\n\nPerry High School: 1 Success Blvd\, Perry\, OH 44081\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Perry-OH-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
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