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DTSTART;TZID=Atlantic/Azores:20250518T090000
DTEND;TZID=Atlantic/Azores:20250518T120000
DTSTAMP:20260421T162818
CREATED:20250324T154556Z
LAST-MODIFIED:20250516T113258Z
UID:10000122-1747558800-1747569600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Carrollton\, TX
DESCRIPTION:Join us for Step Forward to Cure TSC® in Carrollton\, TX on Sunday\, May 18\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Texas area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSunday\, May 18\, 2025 – Registration opens @ 9 am CT. The walk will begin at 10 am CT and conclude at 12 pm CT.\n\n\nMary Heads Carter Park: 2320 Heads Lane\, Carrollton\, TX 20852\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-carrollton-tx/
LOCATION:Mary Heads Carter Park\, Heads Lane\, Carrollton\, TX\, 75006\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Carrolton-TX-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:32.9755876;-96.8722005
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Mary Heads Carter Park Heads Lane Carrollton TX 75006 United States;X-APPLE-RADIUS=500;X-TITLE=Heads Lane:geo:-96.8722005,32.9755876
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250518T093000
DTEND;TZID=America/New_York:20250518T153000
DTSTAMP:20260421T162818
CREATED:20250324T155804Z
LAST-MODIFIED:20250324T155804Z
UID:10000124-1747560600-1747582200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Rockville\, MD
DESCRIPTION:Join us for Step Forward to Cure TSC® in Rockville\, MD on Sunday\, May 18\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Maryland area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSunday\, May 18\, 2025 @ 9:30 am ET\n\n\nCharles E. Smith Jewish Day School: 11710 Hunters Lane\, Rockville\, MD 20852\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-rockville-md/
LOCATION:Charles E. Smith Jewish Day School\, Hunters Lane\, Rockville\, MD\, 20852\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Rockville-MD.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.0494131;-77.1001988
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Charles E. Smith Jewish Day School Hunters Lane Rockville MD 20852 United States;X-APPLE-RADIUS=500;X-TITLE=Hunters Lane:geo:-77.1001988,39.0494131
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250521T200000
DTEND;TZID=America/New_York:20250521T210000
DTSTAMP:20260421T162818
CREATED:20241219T165941Z
LAST-MODIFIED:20250519T182722Z
UID:10000094-1747857600-1747861200@www.tscalliance.org
SUMMARY:Adult Topic Call
DESCRIPTION:Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. These calls are hosted on the third Wednesday of September\, October\, November\, March\, April and May. You can join using your computer or dial in on the phone. You MUST register in advance to participate in a call. \nRegister for the May 21\, 2025 Topic Call here.
URL:https://www.tscalliance.org/event/adult-topic-call-4/
LOCATION:
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/May-2025-ATC.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250524T083000
DTEND;TZID=America/New_York:20250524T140000
DTSTAMP:20260421T162818
CREATED:20250212T222221Z
LAST-MODIFIED:20250521T182948Z
UID:10000108-1748075400-1748095200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Tampa\, FL
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to Tampa\, FL on Saturday\, May 24\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Florida area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 24\, 2025\n\n\nMacFarlane Park: 1700 N. MacDill Ave\, Tampa\, FL 33607\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-tampa-fl/
LOCATION:MacFarlane Park\, 1700 N. MacDill Ave\, Tampa\, FL\, 33607\, United States
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/Tampa-FL.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:27.9585168;-82.4952517
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=MacFarlane Park 1700 N. MacDill Ave Tampa FL 33607 United States;X-APPLE-RADIUS=500;X-TITLE=1700 N. MacDill Ave:geo:-82.4952517,27.9585168
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250531T100000
DTEND;TZID=America/New_York:20250531T134500
DTSTAMP:20260421T162818
CREATED:20250324T153827Z
LAST-MODIFIED:20250521T183258Z
UID:10000121-1748685600-1748699100@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Denver\, CO
DESCRIPTION:Join us for Step Forward to Cure TSC® in Denver\, CO on Saturday\, May 31\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Colorado area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, May 31\, 2025 @10 am MT\n\n\nE.B. Rains Jr. Memorial Park: 11701 Community Center Dr\, Northglenn\, CO 80233\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-denver-co/
LOCATION:E.B. Rains Jr. Memorial Park\, Community Center Drive\, Northglenn\, CO\, 80233\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Denver-CO.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9095875;-104.9883856
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=E.B. Rains Jr. Memorial Park Community Center Drive Northglenn CO 80233 United States;X-APPLE-RADIUS=500;X-TITLE=Community Center Drive:geo:-104.9883856,39.9095875
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250607T090000
DTEND;TZID=America/New_York:20250607T150000
DTSTAMP:20260421T162818
CREATED:20250324T153320Z
LAST-MODIFIED:20250324T153320Z
UID:10000120-1749286800-1749308400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Harbor City\, CA
DESCRIPTION:Join us for Step Forward to Cure TSC® in Harbor City\, CA on Saturday\, June 7\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Southern California TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, June 7\, 2025 @ 9 am PT\n\n\nKen Malloy Harbor Regional Park: 25820 Vermont Ave\, Harbor City\, CA 90710\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-harbor-city-ca/
LOCATION:Ken Malloy Harbor Regional Park\, 25820 Vermont Ave\, Harbor City\, CA\, 90710\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/03/Harbor-City-CA.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:33.7834911;-118.2948451
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Ken Malloy Harbor Regional Park 25820 Vermont Ave Harbor City CA 90710 United States;X-APPLE-RADIUS=500;X-TITLE=25820 Vermont Ave:geo:-118.2948451,33.7834911
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250607T100000
DTEND;TZID=UTC:20250607T130000
DTSTAMP:20260421T162818
CREATED:20250212T221816Z
LAST-MODIFIED:20250212T221816Z
UID:10000107-1749290400-1749301200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Pleasant View\, UT
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to the Pleasant View\, UT area on Saturday\, June 7\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Utah area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, June 7\, 2025\n\n\nWheeler Farm Outdoor Education Center and 5K Track: 6351 South 900 East\, Murray\, UT 84121\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pleasant-view-ut/
LOCATION:Wheeler Farm Outdoor Education Ctr and 5K Track\, 6351 South 900\, East Murray\,\, UT\, 84121
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/Salt-Lake-City-UT.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:40.7606608;-111.8939487
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Wheeler Farm Outdoor Education Ctr and 5K Track 6351 South 900 East Murray UT 84121;X-APPLE-RADIUS=500;X-TITLE=6351 South 900:geo:-111.8939487,40.7606608
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T200000
DTEND;TZID=America/New_York:20250609T210000
DTSTAMP:20260421T162818
CREATED:20250219T153834Z
LAST-MODIFIED:20250519T183118Z
UID:10000110-1749499200-1749502800@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on June 9 at 8 pm ET for Ask an Advocate\, featuring the first of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will discuss sensory processing and the four main sensory processing patterns\, helping students\, families and advocates better understand how sensory differences impact learning and daily life. Don’t miss this opportunity to gain valuable insights and practical strategies! The second part of Alexandra’s presentation will be at our next Ask an Advocate session on August 11. \nRegister here
URL:https://www.tscalliance.org/event/ask-an-advocate/
LOCATION:IL
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/June-2025.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T180000
DTEND;TZID=America/New_York:20250612T190000
DTSTAMP:20260421T162818
CREATED:20241218T185534Z
LAST-MODIFIED:20241218T185534Z
UID:10000089-1749751200-1749754800@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – Strategies for ASD and behavior in tuberous sclerosis complex
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-strategies-for-asd-and-behavior-in-tuberous-sclerosis-complex/
LOCATION:IL
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event-1.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T190000
DTEND;TZID=America/New_York:20250617T200000
DTSTAMP:20260421T162818
CREATED:20250520T190702Z
LAST-MODIFIED:20250520T190906Z
UID:10000134-1750186800-1750190400@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities
DESCRIPTION:Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! \nThis webinar will take place on Tuesday\, June 17\, 2025 at 7 pm ET. This webinar will feature Kelly Piacenti\, MA\, ChSNC\, a Chartered Special Needs Consultant® from MassMutual SpecialCare and Jerry L. Hulick\, CLU\, ChFC\, ChSNC\, CLTC from The Washington Group Special Care Planning Team to discuss Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities. \nWhat is an ABLE Account? \nAn ABLE (Achieving a Better Life Experience) account is a tax-advantaged savings account and an important tool for qualified individuals with disabilities\, offering additional independence and financial security. \nThis workshop provides essential information on ABLE accounts which grow tax-free and can be invested while still preserving valuable needs-based government benefits for the account owner. \nKelly and Jerry will cover how individuals who are working can make additional contributions from wages to their ABLE account. You will also learn how funds in an ABLE account can cover an expanding wide range of qualified expenses and ways it can work with special needs trusts as part of a comprehensive planning strategy. The ease\, access and low cost of ABLE accounts make them a great choice for millions of individuals with disabilities. \nLearn more about this webinar and register below! \nREGISTER HERE \n 
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-maximizing-independence-and-financial-security-a-comprehensive-guide-to-able-accounts-for-individuals-with-disabilities/
LOCATION:IL
CATEGORIES:Transition Webinar
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/05/6725.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20250621T090000
DTEND;TZID=America/North_Dakota/Center:20250621T140000
DTSTAMP:20260421T162818
CREATED:20250506T144626Z
LAST-MODIFIED:20250509T142148Z
UID:10000130-1750496400-1750514400@www.tscalliance.org
SUMMARY:TSC Family Education Day 2025
DESCRIPTION:Join the Children’s Mercy Tuberous Sclerosis Complex (TSC) Clinic in Kansas City\, MO for a TSC Education Day on Saturday\, June 21\, 2025 at the Kansas City Zoo from 9 am to 2 pm CT. This event is designed to provide support\, education and resources to individuals and families affected by TSC\, as well as healthcare professionals and advocates. \nThis Family Education Day will feature: \n\nContinental breakfast and provided lunch\nInteractive breakout sessions on practical skills for TSC patients and families\n\nKeynote speakers: \n\nDr. Tanjala Trine Gipson\nJulie Cleary-Dillion\n\nRSVP to the event here. \nPlease contact Rajanna (RJ) Brooks\, LPN via email at rrbrooks@cmh.edu if you have any questions.
URL:https://www.tscalliance.org/event/tsc-family-education-day-2025/
LOCATION:Kansas City Zoo\, 6800 Zoo Dr\, Kansas City\, MO\, 64132\, United States
CATEGORIES:Community Gatherings
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/05/25-NEUR-3230_Tuberous-sclerosis-Complex-Family-Ed-Day-Save-the-Date_digital_JT.jpg
GEO:39.0068854;-94.5291942
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Kansas City Zoo 6800 Zoo Dr Kansas City MO 64132 United States;X-APPLE-RADIUS=500;X-TITLE=6800 Zoo Dr:geo:-94.5291942,39.0068854
END:VEVENT
END:VCALENDAR