BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//TSC Alliance - ECPv6.16.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:TSC Alliance
X-ORIGINAL-URL:https://www.tscalliance.org
X-WR-CALDESC:Events for TSC Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20240310T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20241103T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20260308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20261101T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251101T110000
DTEND;TZID=America/Chicago:20251101T140000
DTSTAMP:20260513T204104
CREATED:20251015T200511Z
LAST-MODIFIED:20251021T200707Z
UID:10000141-1761994800-1762005600@www.tscalliance.org
SUMMARY:34th Annual Cookin' Up a Cure
DESCRIPTION:Thirty-four years ago\, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: “Your child has Tuberous Sclerosis Complex.” Together\, they fought Joey’s battle with courage and love. Sadly\, just over a year after his diagnosis\, Joey’s little heart could no longer carry on. But his family promised him that they would continue his fight and ensure that his life’s purpose lived on.\n\n\n\n\nThe pampered chef party will begin at noon with a live auction\, raffles\, food and more at the Knights of Columbus on 732 Badger Avenue in South Milwaukee\, Wisconsin. Please contact Pam Sztukowski at pamsztukowski@gmail.com or 414.881.5276 with any questions.\n\n\n\n\nIn 2025\, they will honor that promise for the 34th time\, holding their annual auction in Joey’s memory. They carry on\, not just for Joey\, but for all the children\, parents\, grandparents\, and families who have faced the challenges of a TSC diagnosis.\n\n\n\n\nWe hope you can join us in Joey’s memory.\n\n\n\n\nCan’t attend? Please consider:\n\nDonating an item for the silent auction\nPlacing a Pampered Chef Order where 25% of all sales will be donated to the TSC Alliance: https://hubs.li/Q03Nz6_L0\nMake a donation via VENMO or Check (payable to the TSC Alliance)
URL:https://www.tscalliance.org/event/34th-annual-cookin-up-a-cure/
LOCATION:Knights of Columbus\, 723 Badger Avenue\, South Milwaukee\, WI\, 53172\, United States
CATEGORIES:Community Gatherings
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/10/Pampered-Chef-event-2025-1-1.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:42.9274902;-87.8577439
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Knights of Columbus 723 Badger Avenue South Milwaukee WI 53172 United States;X-APPLE-RADIUS=500;X-TITLE=723 Badger Avenue:geo:-87.8577439,42.9274902
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251102
DTEND;VALUE=DATE:20251103
DTSTAMP:20260513T204104
CREATED:20250908T180450Z
LAST-MODIFIED:20250908T181208Z
UID:10000140-1762041600-1762127999@www.tscalliance.org
SUMMARY:2025 TCS New York City Marathon
DESCRIPTION:The TSC Alliance is thrilled to have five Team TSC athletes participating in the 2025 TCS New York City Marathon on Sunday\, November 2\, 2025. \nThese passionate individuals will take to the streets of NYC\, raising awareness and funds to support the TSC Alliance’s mission to create a future where everyone affected by tuberous sclerosis complex (TSC) can live their fullest lives. Join us in cheering them on as they prepare for this amazing journey. \nSupport Team TSC and learn more about their training here.
URL:https://www.tscalliance.org/event/2025-tcs-new-york-city-marathon/
LOCATION:New York City\, Drum Road\, Staten Island\, New York\, 10305\, United States
CATEGORIES:Team TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/05/NYCM_EventDesignation_Charity_RGB_FC.png
GEO:40.6031943;-74.0618196
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=New York City Drum Road Staten Island New York 10305 United States;X-APPLE-RADIUS=500;X-TITLE=Drum Road:geo:-74.0618196,40.6031943
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T080000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260513T204104
CREATED:20250303T212228Z
LAST-MODIFIED:20251022T202306Z
UID:10000115-1762588800-1762621200@www.tscalliance.org
SUMMARY:TSC Regional Conference - Los Angeles\, CA
DESCRIPTION:This one-day TSC Regional Conference will take place on Saturday\, November 8\, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles\, CA\, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for\nTSC Managing behaviors in TAND and caregiver mental health\nGenetics and family planning\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nCheck out the agenda here. \nREGISTER HERE \nPRESENTING SPONSORS\n \n \n \nSeries SPONSORS\n\n \n \nSupporting SPONSORS\n \n\nOne Conference SPONSOR
URL:https://www.tscalliance.org/event/tsc-regional-conference-los-angeles-ca/
LOCATION:UCLA Meyer and Renee Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:TSC Regional Conference Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/regional-conference-for-website.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:34.0693709;-118.4457082
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza Los Angeles CA 90095 United States;X-APPLE-RADIUS=500;X-TITLE=425 Westwood Plaza:geo:-118.4457082,34.0693709
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251110
DTEND;VALUE=DATE:20251112
DTSTAMP:20260513T204104
CREATED:20250422T153422Z
LAST-MODIFIED:20250605T174155Z
UID:10000129-1762732800-1762905599@www.tscalliance.org
SUMMARY:Epilepsy Awareness Day @ Disneyland® Resort
DESCRIPTION:Join us for the 13th Annual Epilepsy Awareness & Education Expo. \n📍 Disneyland Hotel\, Anaheim\, CA \n📅 November 10–11\, 2025 \nThis FREE two-day event brings together the largest gathering of epilepsy professionals\, advocates and families in the country. \nCome explore: \n\n100+ exhibitors including top epilepsy centers & providers\nCutting-edge anti-seizure meds and technologies\nNational support groups & service dog demos\n80+ expert-led presentations on diagnosis\, treatment\, surgery & more\nCME available for healthcare providers\nA Research Roundtable & tons of resources for all ages\n\nRegistration is NOW OPEN 👉 Learn more at epilepsyawarenessday.org \nRegister here
URL:https://www.tscalliance.org/event/epilepsy-awareness-day-disneyland-resort/
LOCATION:Disneyland Hotel Convention Center\, 1150 Magic Way\, Anaheim\, CA\, 92802\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/04/EADD-202557_Page_4.jpg
GEO:33.809202;-117.9269399
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Disneyland Hotel Convention Center 1150 Magic Way Anaheim CA 92802 United States;X-APPLE-RADIUS=500;X-TITLE=1150 Magic Way:geo:-117.9269399,33.809202
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251113T180000
DTEND;TZID=America/New_York:20251113T190000
DTSTAMP:20260513T204104
CREATED:20241218T190540Z
LAST-MODIFIED:20241218T190540Z
UID:10000091-1763056800-1763060400@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – Transitioning into adult care for TSC patients/promoting reproductive health and well-being in adolescents with TSC
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-transitioning-into-adult-care-for-tsc-patients-promoting-reproductive-health-and-well-being-in-adolescents-with-tsc/
LOCATION:Pennsylvania
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/canada-event-1.jpeg
ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251119T200000
DTEND;TZID=America/New_York:20251119T210000
DTSTAMP:20260513T204104
CREATED:20241219T170719Z
LAST-MODIFIED:20251030T193749Z
UID:10000097-1763582400-1763586000@www.tscalliance.org
SUMMARY:Adult Topic Call
DESCRIPTION:Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The November Topic Call will feature Dean Aguiar\, PhD\, Vice President of Translational Research at the TSC Alliance. Dean will provide an update on the current state of TSC research\, including key initiatives like Anya’s Accelerator and Quality Improvement Initiatives\, along with other exciting developments. This is a great opportunity to stay informed on current research efforts at the TSC Alliance\, ask questions\, learn how you can get involved\, and engage with other adults in the TSC community. \nThese calls are hosted on the third Wednesday of September\, October\, November\, March\, April and May. You can join using your computer or dial in on the phone. You MUST register in advance to participate in a call. \nRegister for the November 19\, 2025 Topic Call here.
URL:https://www.tscalliance.org/event/adult-topic-call-7/
LOCATION:
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2024/12/November-2025-ATC-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251208T200000
DTEND;TZID=America/New_York:20251208T210000
DTSTAMP:20260513T204104
CREATED:20250812T172002Z
LAST-MODIFIED:20251202T195646Z
UID:10000137-1765224000-1765227600@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on Monday\, December 8\, 2025 at 8 pm ET for an Ask an Advocate session. Topic: Open Forum. \nRegister for the December 8\, 2025 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-5/
LOCATION:Pennsylvania
CATEGORIES:Ask an Advocate Series
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260513T204104
CREATED:20251121T160958Z
LAST-MODIFIED:20251121T161042Z
UID:10000143-1766084400-1766088000@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - The Psychological impact on Caregivers
DESCRIPTION:Join Michele D. Della Costa\, MS\, LMFT-QS\, on Thursday\, December 18\, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC\, including how to prevent burnout and create space for self-care. \nREGISTER HERE \nThe Transition Webinar Series is co-hosted by Mass General Brigham and the Herscot Center for TSC\, and presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC.
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-the-psychological-impact-on-caregivers-2/
LOCATION:Pennsylvania
CATEGORIES:Transition Workshop,Transition Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/10/2025TransitionWebinarSeriesLogo-FinalRev02-25-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260209T200000
DTEND;TZID=America/New_York:20260209T210000
DTSTAMP:20260513T204104
CREATED:20251202T193948Z
LAST-MODIFIED:20260116T164511Z
UID:10000150-1770667200-1770670800@www.tscalliance.org
SUMMARY:Ask an Advocate - February 2026
DESCRIPTION:Join us for an Ask an Advocate session!\n\n\n\nJoin Wendy Anderson\, TSC Alliance Education Peer Mentor\, on Monday\, February 9\, 2026\, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local\, state\, and federal levels. Wendy will share her experience as a parent-advocate and offer clear\, practical ways to involve the whole family in influencing legislation\, shaping public policy\, and elevating the voices of those most affected.\n\n\nRegister for the February 9\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-february-2026/
LOCATION:Pennsylvania
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/12/February-2026.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
END:VCALENDAR