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SUMMARY:2025 Transition Webinar Series - The Psychological impact on Caregivers
DESCRIPTION:Join Michele D. Della Costa\, MS\, LMFT-QS\, on Thursday\, December 18\, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC\, including how to prevent burnout and create space for self-care. \nREGISTER HERE \nThe Transition Webinar Series is co-hosted by Mass General Brigham and the Herscot Center for TSC\, and presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC.
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-the-psychological-impact-on-caregivers-2/
CATEGORIES:Transition Workshop,Transition Webinar
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260209T200000
DTEND;TZID=America/New_York:20260209T210000
DTSTAMP:20260428T091836
CREATED:20251202T193948Z
LAST-MODIFIED:20260116T164511Z
UID:10000150-1770667200-1770670800@www.tscalliance.org
SUMMARY:Ask an Advocate - February 2026
DESCRIPTION:Join us for an Ask an Advocate session!\n\n\n\nJoin Wendy Anderson\, TSC Alliance Education Peer Mentor\, on Monday\, February 9\, 2026\, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local\, state\, and federal levels. Wendy will share her experience as a parent-advocate and offer clear\, practical ways to involve the whole family in influencing legislation\, shaping public policy\, and elevating the voices of those most affected.\n\n\nRegister for the February 9\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-february-2026/
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/12/February-2026.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260318T200000
DTEND;TZID=America/New_York:20260318T210000
DTSTAMP:20260428T091836
CREATED:20251124T203453Z
LAST-MODIFIED:20251124T203537Z
UID:10000144-1773864000-1773867600@www.tscalliance.org
SUMMARY:Adult Topic Call - March 2026
DESCRIPTION:The March topic call will take place on Wednesday\, March 18\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-march-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260327T080000
DTEND;TZID=America/New_York:20260327T170000
DTSTAMP:20260428T091836
CREATED:20260327T171543Z
LAST-MODIFIED:20260327T171543Z
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SUMMARY:TCS New York City Marathon
DESCRIPTION:Run with the Team TSC in the TCS New York City Marathon on Sunday\, November 1\, 2026. \nCOmplete the Interest form here
URL:https://www.tscalliance.org/event/tcs-new-york-city-marathon/
CATEGORIES:Team TSC
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BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260411T110000
DTEND;TZID=America/North_Dakota/New_Salem:20260411T130000
DTSTAMP:20260428T091836
CREATED:20260116T012835Z
LAST-MODIFIED:20260330T193312Z
UID:10000164-1775905200-1775912400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Houston\, TX
DESCRIPTION:Join us in Sugar Land\, TX on Saturday\, April 11\, 2026\, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston\, TX area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-houston-tx/
LOCATION:Brazos River Park\, 18427 Southwest Freeway\, Sugar Land\, TX\, 77479\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260428T091836
CREATED:20251202T194245Z
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UID:10000151-1776110400-1776114000@www.tscalliance.org
SUMMARY:Ask an Advocate - April 2026
DESCRIPTION:Join us on Monday\, April 13\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the April 13\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-april-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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