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DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260508T202247Z
CREATED:20260115T214033Z
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UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260508T202506Z
CREATED:20260115T201528Z
LAST-MODIFIED:20260508T202506Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260508T202400Z
CREATED:20260115T215750Z
LAST-MODIFIED:20260508T202400Z
UID:10000160-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Brookfield\, CT
DESCRIPTION:Join us in Brookfield\, CT on Saturday\, May 16\, 2026\, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-brookfield-ct-2/
LOCATION:Cadigan Park\, 465 Candlewood Lake Road\, Brookfield\, CT\, 06804\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.483148;-73.4331221
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Cadigan Park 465 Candlewood Lake Road Brookfield CT 06804 United States;X-APPLE-RADIUS=500;X-TITLE=465 Candlewood Lake Road:geo:-73.4331221,41.483148
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260508T202415Z
CREATED:20260115T214628Z
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UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260513T171534Z
CREATED:20251124T203847Z
LAST-MODIFIED:20260513T171534Z
UID:10000146-1779307200-1779310800@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2026
DESCRIPTION:Join the TSC Alliance on\, Wednesday\, May 20\, 2026\, at 8 pm ET for an open forum Adult Topic Call. This call offers adults living with TSC a welcoming\, supportive space to connect\, share experiences\, and engage in open discussion with peers. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-may-2026/
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/11/May-2026-ATC-2.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T190000
DTEND;TZID=America/New_York:20260527T200000
DTSTAMP:20260512T172444Z
CREATED:20260512T172444Z
LAST-MODIFIED:20260512T172444Z
UID:10000180-1779908400-1779912000@www.tscalliance.org
SUMMARY:Carolinas Community Connection Call
DESCRIPTION:The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect\, get to know one another\, share our stories\, and exchange support and resources in a welcoming space. \nJoin the Carolinas Community Region on Wednesday\, May 27 at 7 PM ET for a post‑walk get‑together (reconnect with those we met!). \nClick here to add the call to your calendar. The link to join the Zoom meeting will be included in the calendar invite.
URL:https://www.tscalliance.org/event/carolinas-community-connection-call/
CATEGORIES:Community Gatherings
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/05/Carolinas-Community-Calls-1-scaled.jpeg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T120000
DTEND;TZID=America/New_York:20260603T130000
DTSTAMP:20260319T181130Z
CREATED:20260319T180434Z
LAST-MODIFIED:20260319T181130Z
UID:10000173-1780488000-1780491600@www.tscalliance.org
SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/SeizureTypes-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T100000
DTEND;TZID=America/New_York:20260606T130000
DTSTAMP:20260115T215300Z
CREATED:20260115T215300Z
LAST-MODIFIED:20260115T215300Z
UID:10000159-1780740000-1780750800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Murray\, UT
DESCRIPTION:Join us in Murray\, UT on Saturday\, June 6\, 2026\, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-murray-ut/
LOCATION:Wheeler Farm Outdoor Education Center\, 6475 900 E\, Murray\, UT\, 84121\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Murray-UT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260615T200000
DTEND;TZID=America/New_York:20260615T210000
DTSTAMP:20260513T171224Z
CREATED:20251202T194541Z
LAST-MODIFIED:20260513T171224Z
UID:10000152-1781553600-1781557200@www.tscalliance.org
SUMMARY:Ask an Advocate - June 2026
DESCRIPTION:Join us on Monday\, June 15\, 2026 at 8 pm ET for a practical and empowering Ask an Advocate session to learn how to create a One‑Page Description\, a simple\, person‑centered tool that helps people living with TSC be better understood and supported in medical\, school\, and community settings. \nThis session will be led by Laura G. Buckner\, M.Ed.\, LPC\, who will walk participants through how one‑page descriptions capture what is important to a person\, what makes life meaningful\, and what is important for them\, including health\, safety\, and community belonging. You will learn how balancing these two perspectives can make a big difference in everyday support. Whether for a doctor’s visit\, classroom\, school bus\, workplace\, or other community setting\, these descriptions can be adapted for any environment to promote understanding and better outcomes. \nRegister for the June 15\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-june-2026/
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/12/June-2026-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260319T181138Z
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/Genetics-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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