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DTSTART;TZID=America/New_York:20250607T090000
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DTSTAMP:20260414T155245
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SUMMARY:Step Forward to Cure TSC® – Harbor City\, CA
DESCRIPTION:Join us for Step Forward to Cure TSC® in Harbor City\, CA on Saturday\, June 7\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Southern California TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, June 7\, 2025 @ 9 am PT\n\n\nKen Malloy Harbor Regional Park: 25820 Vermont Ave\, Harbor City\, CA 90710\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-harbor-city-ca/
LOCATION:Ken Malloy Harbor Regional Park\, 25820 Vermont Ave\, Harbor City\, CA\, 90710\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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BEGIN:VEVENT
DTSTART;TZID=UTC:20250607T100000
DTEND;TZID=UTC:20250607T130000
DTSTAMP:20260414T155245
CREATED:20250212T221816Z
LAST-MODIFIED:20250212T221816Z
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SUMMARY:Step Forward to Cure TSC® - Pleasant View\, UT
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to the Pleasant View\, UT area on Saturday\, June 7\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Utah area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, June 7\, 2025\n\n\nWheeler Farm Outdoor Education Center and 5K Track: 6351 South 900 East\, Murray\, UT 84121\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pleasant-view-ut/
LOCATION:Wheeler Farm Outdoor Education Ctr and 5K Track\, 6351 South 900\, East Murray\,\, UT\, 84121
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T200000
DTEND;TZID=America/New_York:20250609T210000
DTSTAMP:20260414T155245
CREATED:20250219T153834Z
LAST-MODIFIED:20250519T183118Z
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SUMMARY:Ask an Advocate
DESCRIPTION:Join us on June 9 at 8 pm ET for Ask an Advocate\, featuring the first of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will discuss sensory processing and the four main sensory processing patterns\, helping students\, families and advocates better understand how sensory differences impact learning and daily life. Don’t miss this opportunity to gain valuable insights and practical strategies! The second part of Alexandra’s presentation will be at our next Ask an Advocate session on August 11. \nRegister here
URL:https://www.tscalliance.org/event/ask-an-advocate/
LOCATION:FL
CATEGORIES:Ask an Advocate Series
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250612T180000
DTEND;TZID=America/New_York:20250612T190000
DTSTAMP:20260414T155245
CREATED:20241218T185534Z
LAST-MODIFIED:20241218T185534Z
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SUMMARY:TS Canada ST Educational Series – Strategies for ASD and behavior in tuberous sclerosis complex
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/ts-canada-st-educational-series-strategies-for-asd-and-behavior-in-tuberous-sclerosis-complex/
LOCATION:FL
CATEGORIES:Webinar
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ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T190000
DTEND;TZID=America/New_York:20250617T200000
DTSTAMP:20260414T155245
CREATED:20250520T190702Z
LAST-MODIFIED:20250520T190906Z
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SUMMARY:2025 Transition Webinar Series - Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities
DESCRIPTION:Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! \nThis webinar will take place on Tuesday\, June 17\, 2025 at 7 pm ET. This webinar will feature Kelly Piacenti\, MA\, ChSNC\, a Chartered Special Needs Consultant® from MassMutual SpecialCare and Jerry L. Hulick\, CLU\, ChFC\, ChSNC\, CLTC from The Washington Group Special Care Planning Team to discuss Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities. \nWhat is an ABLE Account? \nAn ABLE (Achieving a Better Life Experience) account is a tax-advantaged savings account and an important tool for qualified individuals with disabilities\, offering additional independence and financial security. \nThis workshop provides essential information on ABLE accounts which grow tax-free and can be invested while still preserving valuable needs-based government benefits for the account owner. \nKelly and Jerry will cover how individuals who are working can make additional contributions from wages to their ABLE account. You will also learn how funds in an ABLE account can cover an expanding wide range of qualified expenses and ways it can work with special needs trusts as part of a comprehensive planning strategy. The ease\, access and low cost of ABLE accounts make them a great choice for millions of individuals with disabilities. \nLearn more about this webinar and register below! \nREGISTER HERE \n 
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-maximizing-independence-and-financial-security-a-comprehensive-guide-to-able-accounts-for-individuals-with-disabilities/
LOCATION:FL
CATEGORIES:Transition Webinar
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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DTSTART;TZID=America/North_Dakota/Center:20250621T090000
DTEND;TZID=America/North_Dakota/Center:20250621T140000
DTSTAMP:20260414T155245
CREATED:20250506T144626Z
LAST-MODIFIED:20250509T142148Z
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SUMMARY:TSC Family Education Day 2025
DESCRIPTION:Join the Children’s Mercy Tuberous Sclerosis Complex (TSC) Clinic in Kansas City\, MO for a TSC Education Day on Saturday\, June 21\, 2025 at the Kansas City Zoo from 9 am to 2 pm CT. This event is designed to provide support\, education and resources to individuals and families affected by TSC\, as well as healthcare professionals and advocates. \nThis Family Education Day will feature: \n\nContinental breakfast and provided lunch\nInteractive breakout sessions on practical skills for TSC patients and families\n\nKeynote speakers: \n\nDr. Tanjala Trine Gipson\nJulie Cleary-Dillion\n\nRSVP to the event here. \nPlease contact Rajanna (RJ) Brooks\, LPN via email at rrbrooks@cmh.edu if you have any questions.
URL:https://www.tscalliance.org/event/tsc-family-education-day-2025/
LOCATION:Kansas City Zoo\, 6800 Zoo Dr\, Kansas City\, MO\, 64132\, United States
CATEGORIES:Community Gatherings
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250626
DTEND;VALUE=DATE:20250629
DTSTAMP:20260414T155245
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SUMMARY:2025 TSC International Research Conference
DESCRIPTION:Mark your calendars for the 2025 TSC International Research Conference\, hosted by the TSC Alliance\, scheduled for June 26-28\, 2025\, at the Bethesda North Marriott in Bethesda\, MD. The conference will focus on structured\, collaborative discussions on groundbreaking research topics. \nREGISTER HERE\n  \n Conference Co-Chairs:​  \n\nShafali Spurling Jeste\, MD\, Chief\, Division of Neurology\, Co-Director\, Neurological Institute\, Children’s Hospital\, Los Angeles​ \n\n\nCarmen Priolo​\, MD\, PhD\, Assistant Professor\, Brigham and Women’s Hospital\n \n\nOrganizing Committee Members:​  \n\nAnna Jansen\, MD\, PhD\, Professor of Child Neurology\, Antwerp University Hospital\n\n\nHoward Weiner\, MD\, Chief\, Neurosurgery\, Texas Children’s Hospital \n\n\nWilliam Stanford\, PhD\, Senior Scientist\, Regenerative Medicine\, Ottawa Hospital Research Institute  \n\n\nUchenna Unachukwu\, PhD\, Associate Research Scientist\, Columbia University \n\n\nKimberly Raab-Graham\, PhD\, Professor\, Translational Research\, Wake Forest University \n\n\nKate Richardson\, MS\, CGC\, Assistant Professor\, Division of Medical Genetics\, UTHealth Houston\, McGovern Medical School  \n\n\nRajsekar Rajaraman\, MD\, Director\, TSC Clinic\, Assistant Professor\, Pediatric Neurology\, UCLA Mattel Children’s Hospital\n\nIn addition\, the conference will provide a platform for early-career researchers to present\, share and network with senior investigators. \nCheck out the conference agenda here.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/2025-international-tsc-research-conference/
LOCATION:Bethesda North Marriott\, 5701 Marinelli Rd\, Rockville\, MD\, 20852\, United States
CATEGORIES:Research Conference
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250630T140000
DTEND;TZID=America/Los_Angeles:20250630T150000
DTSTAMP:20260414T155245
CREATED:20250606T170123Z
LAST-MODIFIED:20250606T170709Z
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SUMMARY:Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery
DESCRIPTION:Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste\, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery\, on Monday\, June 30\, 2025\, at 2 pm PT. \nThis webinar is co-hosted by the TSC Alliance\, LGS Foundation\, and CHADD’s National Resource Center on ADHD. \nMany kids with drug-resistant epilepsy (DRE) also have challenges with learning\, behavior\, or attention—but parents are often left with more questions than answers. These issues may be part of something called a neurodevelopmental disorder (NDD). \nBut what is an NDD? How do you know if your child has one? And how do you get help? \nIn this Power Hour\, pediatric neurologist Dr. Shafali Jeste will explain NDDs in clear\, simple language. \nShe’ll cover: \n\nWhat neurodevelopmental disorders are\nHow they’re diagnosed\nHow they can overlap with epilepsy\, autism\, ADHD\, and learning delays\nHow the correct diagnosis can help unlock proper supports and services for your child\n\nThis talk is perfect for parents who are dealing with: \n\nBehavior or attention issues\nLearning delays\nTrouble getting school services or knowing what to ask for\n\nDr. Jeste will discuss how these issues may be present before epilepsy surgery\, may change after surgery\, or show up later on. Every child’s path is different—and having the right information can make a big difference. \nWho should attend? \nParents and caregivers of children with drug-resistant epilepsy (including genetic epilepsies like TSC\, Dravet\, or LGS) and ADHD\, autism\, or other neurodevelopmental disorders. \nRegister here!
URL:https://www.tscalliance.org/event/power-hour-understanding-neurodevelopmental-disorders-after-epilepsy-surgery/
LOCATION:FL
CATEGORIES:Webinar
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