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SUMMARY:TSC Regional Conference - Iowa City\, IA
DESCRIPTION:This one-day TSC Regional Conference will take place on Saturday\, September 6\, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City\, IA\, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for TSC\nManaging behaviors in TAND and caregiver mental health\nReproductive and perinatal health issues\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nCan’t join us in person? We’ve got you covered. \nWe’re excited to offer virtual access to select sessions from the upcoming TSC Regional Conference in Iowa City — the only conference in this year’s regional series with a hybrid option. \nWhile we encourage all attendees to join us in person\, we understand that isn’t always possible. This virtual option ensures more of our community can stay connected and informed. \nIf you’re unable to attend in person\, please click the “(IA) Virtual Access Registration – TSC Regional Conference” link to sign up and be notified when Zoom links and session details become available. \nREGISTER HERE \nPRESENTING SPONSORS\n \n \n \nSeries SPONSORS\n\n \n \nSupporting SPONSORS\n \n\nOne Conference SPONSOR
URL:https://www.tscalliance.org/event/tsc-regional-conference-iowa-city-ia/
LOCATION:Iowa Memorial Union at the University of Iowa\, 125 N. Madison Street\, Iowa City\, IA\, 52242\, United States
CATEGORIES:TSC Regional Conference Series
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X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Iowa Memorial Union at the University of Iowa 125 N. Madison Street Iowa City IA 52242 United States;X-APPLE-RADIUS=500;X-TITLE=125 N. Madison Street:geo:-91.5393434,41.6623113
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DTSTART;TZID=America/New_York:20250911T180000
DTEND;TZID=America/New_York:20250911T190000
DTSTAMP:20241218T190330Z
CREATED:20241218T190217Z
LAST-MODIFIED:20241218T190330Z
UID:10000090-1757613600-1757617200@www.tscalliance.org
SUMMARY:TS Canada ST Educational Series – mTOR inhibitors and their use in TSC
DESCRIPTION:Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) will continue hosting an educational series in 2025 to empower patients and their families with knowledge and resources related to tuberous sclerosis complex (TSC). All of the symposia will be held on Zoom. A link will be sent to you after registration.
URL:https://www.tscalliance.org/event/tscanadastseries3/
LOCATION:MD
CATEGORIES:Webinar
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ORGANIZER;CN="TSC Canada ST":MAILTO:TSCanadaST@gmail.com
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250917T200000
DTEND;TZID=America/New_York:20250917T210000
DTSTAMP:20250819T152029Z
CREATED:20241219T170340Z
LAST-MODIFIED:20250819T152029Z
UID:10000095-1758139200-1758142800@www.tscalliance.org
SUMMARY:Adult Topic Call
DESCRIPTION:Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. The September Topic Call will feature Heather Radtke\, MS\, CGC from the TSC Alliance providing an overview of the Reproductive and Perinatal Health Initiative that focuses on the maternal and fetal effects of TSC before\, during and after pregnancy. \nThese calls are hosted on the third Wednesday of September\, October\, November\, March\, April and May. You can join using your computer or dial in on the phone. You MUST register in advance to participate in a call. \nRegister for the September 17\, 2025 Topic Call here.
URL:https://www.tscalliance.org/event/adult-topic-call-5/
LOCATION:
CATEGORIES:Adult Topic Calls
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