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DTSTART;TZID=America/New_York:20260502T093000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260115T220833Z
CREATED:20260115T220833Z
LAST-MODIFIED:20260115T220833Z
UID:10000162-1777714200-1777723200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Charlotte\, NC
DESCRIPTION:Join us in Charlotte\, NC on Saturday\, May 2\, 2026\, at Park Road Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Carolinas —united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-charlotte-nc/
LOCATION:Park Road Park\, 6220 Park Rd\, Charlotte\, NC\, 28210\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Charlotte-NC-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260503T090000
DTEND;TZID=America/North_Dakota/New_Salem:20260503T110000
DTSTAMP:20260205T215308Z
CREATED:20260129T222519Z
LAST-MODIFIED:20260205T215308Z
UID:10000166-1777798800-1777806000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - DFW\, TX
DESCRIPTION:Join us in Dallas-Fort Worth\, TX on Sunday\, May 3\, 2026\, at Doubletree Ranch Park for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:00 am – Registration begins\n10:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-dfw-tx/
LOCATION:Doubletree Ranch Park\, 310 Highland Village Rd\, Highland Village\, TX\, 75077\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T130000
DTEND;TZID=America/New_York:20260511T140000
DTSTAMP:20260512T201350Z
CREATED:20260319T175624Z
LAST-MODIFIED:20260512T201350Z
UID:10000172-1778504400-1778508000@www.tscalliance.org
SUMMARY:Consensus Guidelines: What You Need to Know
DESCRIPTION:The second pre-conference webinar\, Consensus Guidelines: What You Need to Know\, took place on Monday\, May 11\, 2026\, at 1:00 pm ET \, and featured moderator Chris Kingswood\, MD and presenters Darcy Krueger MD\, PhD; and Hope Northrup\, MD. This webinar will provided an overview of the latest Consensus Guidelines for the diagnosis\, surveillance\, and management of TSC. Developed by international experts and updated regularly\, these guidelines offer critical\, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.   \nWatch the recording here:
URL:https://www.tscalliance.org/event/consensus-guidelines-what-you-need-to-know/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/ConsensusGdlns-1080x1080-1.jpg
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T083000
DTEND;TZID=America/New_York:20260516T120000
DTSTAMP:20260507T171214Z
CREATED:20260330T154437Z
LAST-MODIFIED:20260507T171214Z
UID:10000179-1778920200-1778932800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Tampa\, FL
DESCRIPTION:Join us in Tampa\, FL on Saturday\, May 16\, 2026\, at the Shanna and Bryan Glazer JCC for Step Forward to Cure TSC®! \nThis beautiful venue provides the perfect backdrop for a day dedicated to hope\, strength\, and community. Whether you are a long-time supporter or joining us for the first time\, we can’t wait to welcome you for a morning of fun and meaningful connection. \nHow can you get involved?\nSuccess starts with you! By registering early\, you help us build momentum for our biggest year yet. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-tampa-fl-2/
LOCATION:Shanna and Bryan Glazer JCC\, 522 N Howard Ave\, Tampa\, FL\, 33606\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/Tampa-FL-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260508T202506Z
CREATED:20260115T201528Z
LAST-MODIFIED:20260508T202506Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Perry-OH-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260508T202247Z
CREATED:20260115T214033Z
LAST-MODIFIED:20260508T202247Z
UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260508T202415Z
CREATED:20260115T214628Z
LAST-MODIFIED:20260508T202415Z
UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/West-Chester-PA-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260508T202400Z
CREATED:20260115T215750Z
LAST-MODIFIED:20260508T202400Z
UID:10000160-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Brookfield\, CT
DESCRIPTION:Join us in Brookfield\, CT on Saturday\, May 16\, 2026\, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-brookfield-ct-2/
LOCATION:Cadigan Park\, 465 Candlewood Lake Road\, Brookfield\, CT\, 06804\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Brookfield-CT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.483148;-73.4331221
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Cadigan Park 465 Candlewood Lake Road Brookfield CT 06804 United States;X-APPLE-RADIUS=500;X-TITLE=465 Candlewood Lake Road:geo:-73.4331221,41.483148
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260513T171534Z
CREATED:20251124T203847Z
LAST-MODIFIED:20260513T171534Z
UID:10000146-1779307200-1779310800@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2026
DESCRIPTION:Join the TSC Alliance on\, Wednesday\, May 20\, 2026\, at 8 pm ET for an open forum Adult Topic Call. This call offers adults living with TSC a welcoming\, supportive space to connect\, share experiences\, and engage in open discussion with peers. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-may-2026/
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/11/May-2026-ATC-2.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T190000
DTEND;TZID=America/New_York:20260527T200000
DTSTAMP:20260512T172444Z
CREATED:20260512T172444Z
LAST-MODIFIED:20260512T172444Z
UID:10000180-1779908400-1779912000@www.tscalliance.org
SUMMARY:Carolinas Community Connection Call
DESCRIPTION:The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect\, get to know one another\, share our stories\, and exchange support and resources in a welcoming space. \nJoin the Carolinas Community Region on Wednesday\, May 27 at 7 PM ET for a post‑walk get‑together (reconnect with those we met!). \nClick here to add the call to your calendar. The link to join the Zoom meeting will be included in the calendar invite.
URL:https://www.tscalliance.org/event/carolinas-community-connection-call/
CATEGORIES:Community Gatherings
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/05/Carolinas-Community-Calls-1-scaled.jpeg
END:VEVENT
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