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DTSTART;TZID=America/New_York:20260603T120000
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UID:10000173-1780488000-1780491600@www.tscalliance.org
SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/SeizureTypes-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T100000
DTEND;TZID=America/New_York:20260606T130000
DTSTAMP:20260613T094453
CREATED:20260115T215300Z
LAST-MODIFIED:20260115T215300Z
UID:10000159-1780740000-1780750800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Murray\, UT
DESCRIPTION:Join us in Murray\, UT on Saturday\, June 6\, 2026\, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-murray-ut/
LOCATION:Wheeler Farm Outdoor Education Center\, 6475 900 E\, Murray\, UT\, 84121\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Murray-UT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260615T200000
DTEND;TZID=America/New_York:20260615T210000
DTSTAMP:20260613T094453
CREATED:20251202T194541Z
LAST-MODIFIED:20260513T171224Z
UID:10000152-1781553600-1781557200@www.tscalliance.org
SUMMARY:Ask an Advocate - June 2026
DESCRIPTION:Join us on Monday\, June 15\, 2026 at 8 pm ET for a practical and empowering Ask an Advocate session to learn how to create a One‑Page Description\, a simple\, person‑centered tool that helps people living with TSC be better understood and supported in medical\, school\, and community settings. \nThis session will be led by Laura G. Buckner\, M.Ed.\, LPC\, who will walk participants through how one‑page descriptions capture what is important to a person\, what makes life meaningful\, and what is important for them\, including health\, safety\, and community belonging. You will learn how balancing these two perspectives can make a big difference in everyday support. Whether for a doctor’s visit\, classroom\, school bus\, workplace\, or other community setting\, these descriptions can be adapted for any environment to promote understanding and better outcomes. \nRegister for the June 15\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-june-2026/
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/12/June-2026-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260613T094453
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/Genetics-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T200000
DTEND;TZID=America/New_York:20260630T210000
DTSTAMP:20260613T094453
CREATED:20260319T181039Z
LAST-MODIFIED:20260319T181535Z
UID:10000175-1782849600-1782853200@www.tscalliance.org
SUMMARY:mTOR Inhibitors: Past\, Present and Future
DESCRIPTION:The fifth and final pre-conference webinar\, mTOR Inhibitors: Past\, Present and Future\, will take place on Tuesday\, June 30\, 2026\, at 8:00 pm ET\, and feature moderator Elizabeth Skufca and presenters David Ritter\, MD\, PhD and Michael Wong\, MD\, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC\, from their discovery to current clinical use in managing SEGAs\, kidney tumors\, epilepsy\, skin\, and more. Learn about side effects\, long-term outcomes\, and what the future holds—including new research and emerging therapies.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/mtor-inhibitors-past-present-and-future/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/mTOR-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
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