If you would prefer a hard copy of any of these materials, please contact Rachel Wojnilower at (301) 562-9890 or rwojnilower@tscalliance.org.
TSC Alliance Board Orientation, recorded January 17, 2024
Committee Chair and Liaison training, recorded February 6, 2024
Section I: Governance — TSC Alliance
- FY 2025 Operating Board of Directors Contact List
- FY 2025 Organizational Goals
- FY 2025 Board Committee Assignments
- FY 2025 Board Meeting Schedule
- Board Responsibilities and Support, Code of Ethics and Guiding Principles
- Articles of Incorporation
- Approved and Amended By-Laws, March 3, 2022
- IRS Fiscal Year Change Letter
- IRS Tax Exempt Status Determination Letter
- IRS Address Change Notice
- Frequently Asked Questions About the TSC Alliance
Name Change Document
Strategic Planning
Policies
Proposed Review Schedule – DRAFT
- Access Control Policy (Approved December 30, 2023)
- Audit and Accountability Policy (Approved December 30, 2023)
- Audit Committee Charter (Approved February 25, 2010)
- Campaign Counting Policy (Approved October 8, 2021)
- Configuration Management Policy (Approved December 30, 2023)
- Conflict of Interest Policy and Form Approved October 4, 2019)
- Corporate Relations Policy (Approved January 7, 2019)
- Direct Benefit to Donor Policy (Approved February 25, 2010)
- Executive Compensation and Reimbursement Policies and Practices (Approved September 4, 2024)
- Effective Assessment Policy (Approved January 30, 2019)
- FDA Policy on Organizational Participation in Hearings and Meetings (Approved June 16, 2011)
- Financial Conflict of Interest Policy for PHS-Funded Research (Approved August 17, 2023)
- Gift Acceptance Policy (Approved March 5, 2020)
- Incident Response Plan (Approved November 14, 2022)
- Investment Policy for Operating Funds (Approved March 7, 2019)
- Media Protection Policy (Approved December 30, 2023)
- Open Science Policy (Approved March 3, 2022)
- Password Policy (Approved July 28, 2021)
- Physical Security Policy (Approved December 30, 2023)
- Privacy Policy (Approved January 30, 2019)
- Reserve/Crisis Management Policy (Approved November 12, 2021)
- Reviewer COI Statement (Approved February 29, 2024)
- Revised Document Retention and Destruction Policy (Approved November 21, 2014)
- Risk Assessment Policy (Approved December 30, 2023)
- Systems Documentation (Approved June 13, 2023)
- Whistle Blower Policy and Form (Approved October 13, 2017)
TSC Clinic Guidelines
- Scope of Relationship Policy (Approved September 17, 2024)
- Standards of Care Metrics for TSC Clinics (Approved December 14, 2020)
- TSC Clinic Structure and Expertise Requirements (Approved September 17, 2024)
- TSC Patient and Family Experience of Care Survey
Section II: Governance — TSC Alliance Endowment Fund
- FY 2025 Endowment Fund Board of Directors Contact List
- FY 2025 Endowment Fund Budget
- Endowment Fund Overview
- Acknowledgement of Name Change
- Articles of Incorporation for the Endowment Fund
- Amendment to Articles of Incorporation (March 9, 2021)
- Approved and Amended Endowment Bylaws (Amended May 9, 2019)
- Endowment Fund Determination Letter
- IRS Fiscal Year Change Letter
Policies
- California Gift Annuities Investment Policy (Approved March 23, 2010)
- Endowment Fund Investment Policy (Approved October 13, 2023)
- General Purpose Endowment Statement (Named Fund Policy)
Section III: Finance and Administration
- FY 2025 TSC Alliance Operating Budget
- FY 2025 TSC Alliance Operating Budget Narrative
- Accounting Policies and Procedures Manual
- Summary of Banking Relationships
- Management Liability Policy: 2024
- TSC Alliance Commercial Insurance Summary: 2024
- Cybersecurity Assessment, December 18, 2020
Section IV: Programs and Services
- FY 2025 Organization Chart
- Staff Directory
- Constituent Services
- 2025 TSC Alliance Community Leadership
- Global Relations
- Government Relations
- Science and Medical Programs
- Research Grants Program and Currently Funded Grants
- International Scientific Advisory Board
- Professional Advisory Board
- Directory of TSC Clinics
Section V: Resource Development
Section VI: Advisory Boards and Committees
Corporate Advisory Board
Professional Advisory Board
International Scientific Advisory Board
TSC Clinic Committee
TSC Natural History Database and Biosample Repository Steering Committee
TSC Preclinical Consortium Steering Committee
Appendix
- Employee Handbook
- Online Brand Guide
- 2023 Annual Report
- 2022 Annual Report
- 2021 Annual Report
- 2020 Annual Report
- 2019 Annual Report
- 2018 Annual Report
- 2017 Annual Report
- 2016 Annual Report
- 2015 Annual Report
- 2014 Annual Report
- 2013 Annual Report
- 2012 Annual Report
- 2011 Annual Report
- 2010.5 Annual Report
- 2010 Annual Report
- 2009 Annual Report