Individuals & Families

Adult Regional Coordinators

The TSC Alliance Adult Task Force is pleased to announce the TSC Alliance Adult Regional Coordinator Program.

Each Adult Regional Coordinator acts as a resource for newly diagnosed adults to connect with other adults within their region.  They are knowledgeable about resources, events, support meetings, conferences, and any new research on TSC that pertains to adults with TSC. The Adult Regional Coordinators also provide support to the Community Alliances to promote adult involvement within the Community Alliances, and they are involved with government relations, encouraging adult involvement and recruitment in the TSC Alliance Government Action Team.

There are 8 regions in the United States as follows:

Region 1

Washington, Oregon, Idaho, Montana, Wyoming, Alaska

Adult Regional Coordinators: Rob and Shannon Grandia, grandia@verizon.net, (951) 697-8851

Region 2

California, Arizona, Nevada, New Mexico, Utah, Hawaii

Adult Regional Coordinators: Rob and Shannon Grandia, grandia@verizon.net, (951) 697-8851

Region 3

Colorado, Nebraska, South Dakota, North Dakota, Iowa, Minnesota, Wisconsin

Adult Regional Coordinator: Danielle Clark, Danielle.clark@hotmail.com, (210) 317-9804

Region 4

Texas, Oklahoma, Kansas, Missouri, Arkansas, Louisiana

Adult Regional Coordinator: Jake Irby, Irby.jake@gmail.com, (512) 586-8895

Region 5

Illinois, Michigan, Indiana, Ohio, Pennsylvania

Adult Regional Coordinator: Phil Tallman, Philip.tallman@gmail.com, (630) 532-0979

Region 6

Tennessee, Kentucky, Georgia, Alabama, Mississippi, Florida

Adult Regional Coordinator: Kate Crossett, Kate.barbato@gmail.com, (717) 475-3241

Region 7

Connecticut, Vermont, Maine, Rhode Island, New Hampshire, New York, New Jersey, Massachusetts

Adult Regional Coordinator: Iris Mustich, Irismustich@gmail.com, (203) 300-2232

Region 8

Delaware, Virginia, West Virginia, Maryland, North Carolina, South Carolina, Washington DC

Adult Regional Coordinator: Kathy Henkel, uneakmom@gmail.com, (540) 949-0582