Individuals & Families


Community Alliances

TSC Alliance of Northern California →

TSC Alliance of Southern California →

Adult Regional Coordinators

Rob & Shannon Grandia (Parents and Adult/Spouse), Riverside, CA, 951-697-8851, Grandia@verizon.net

Dependent Adult Transition Resource Coordinators

Shannon Grandia (Parent and Spouse), Riverside, CA, 951-697-8851, Grandia@verizon.net

Lilian Ansari (Parent), Oakland, CA, 510-388-6889, Lilian@ansari.us.com

Education Parent Mentors

Lilian Ansari (Parent), Oakland, CA, 510-388-6889, Lilian@ansari.us.com

Kaycee Kincade (Parent), Clovis, CA, 559-824-7430, kaycee716@yahoo.com

Faith Golden (Parent), Encino, CA, 818-516-6446, specialkids330@gmail.com

TSC Clinics

Loma Linda
The Tuberous Sclerosis Clinic at Loma Linda University Health Care
Located at 250 E. Caroline St., Suite J West, San Bernardino, CA 92408
Director: Stephen Ashwal, MD
Coordinator: Maha Issa-Koteira
Age Range Seen: Children and Adults
Clinic Frequency: Every first Thursday of the month.
For more information or to schedule an appointment call (909) 835-1810. This is the phone number for the pediatric neurology specialty clinic, which includes TSC.  Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal.  PLEASE NOTE: Dr. Ashwal is only doing virtual appointments until further notice.   If you have any problems email clinicconcerns@tscalliance.org or call (240) 638-4654.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Los Angeles
Children’s Hospital Los Angeles Tuberous Sclerosis Clinic
Director: Vijay Vishwanath MD PhD
Co-Director: Tena Rosser, MD
Coordinator: Sarah Davis, RN, BSN, CPN
Age Range Seen: New patients under age 18 years.
Clinic Frequency: Weekly
For Clinic Information and to schedule an appointment call Sarah at 323-361-2207.

Los Angeles
TSC Center of Excellence at UCLA
Director: Rajsekar (Raj) Rajaraman, MD
Administrative Coordinator: Anais Ruiz  ajruiz@mednet.ucla.edu
Clinic Ambassador: Tara Palage tara.palage@yahoo.com
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursdays.
Out-of-State Medicaid Policy: Requires one-time agreement with UCLA.
To schedule an appointment or for information on how to get a new patient referred to the TSC clinic please call (310) 206-4037 or email uclatsc@mednet.ucla.edu
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Download TSC Specialist List

UCSF Benioff Children’s Hospital Oakland Tuberous Sclerosis Clinic
Director: Ali Mostajelean, MD
Administrative Coordinator: Mariana Villagran
Clinic Ambassador: Jane Schoenfeld, jane.schoenfeld@gmail.com
Age Range Seen: Children
Clinic Frequency: Daily.
To schedule an appointment, contact Mariana Villagran at (510) 428-3885 ext. 4543. 
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Children’s Hospital of Orange County TSC Clinic
Director: Donald Phillips, MD, MPH
Co-Director: Clare Skora, MD
Coordinator: Allison O’Meara, NP
Age Range Seen: Children and young adults up to age 21 years.
Clinic Frequency: Monthly.
To schedule an appointment or for more information, contact Mary Crespo, RN at (714) 509-7601.

San Diego
TSC Multidisciplinary Clinic at Rady Children’s Hospital San Diego
Director: Anuja Jindal, MD, MPH
Coordinator: Marsha Harp. RN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly every third Thursday.
To schedule an appointment, call (858) 966-5819.

Northern California TSC Clinic at Lucile Packard Children’s Hospital
Stanford Hospital and Clinics
Director: Brenda E. Porter, MD, PhD
Co-Director: Scheherazade Le, MD
Coordinator: Perla Bautista Muench, RN, BSN
Clinic Ambassador: Bridget Britt, bridget.walsh216@gmail.com
Age Range Seen: Children will be seen by Dr. Porter at Lucile Packard Children’s Hospital. Adults will be seen by Dr. Scheherazade Le at Stanford Hospital & Clinic located at 300 Pasteur Drive, Third Floor, Room A301. Dr. Porter and Dr. Le who are specialists in neurology and epilepsy will refer patients to the appropriate specialists for evaluation and management of other issues related to TSC, as needed.
Clinic Frequency: Weekly.
For Appointments and Clinic Location: If you are a parent of a child 17 years or younger call (650) 723-0993.  If you are an adult with TSC or parent of a dependent adult with TSC, call (650) 498-7551 for New Patient Appointments to be seen by Dr. Scheherazade Le
Esta clínica cuenta con un doctor o un empleado que habla un poco de español (Dr. Le).