Individuals & Families


Community Alliance

TSC Alliance of Florida →

Adult Regional Coordinator

Kate Crossett (Adult), Philadelphia, PA, (717) 475-3241, Kate.barbato@gmail.com

Education Parent Mentor

Amy Hightower (Parent and Community Alliance Co-Chair), Tampa, FL, 813-313-7210, amynicolehightower@gmail.com

TSC Clinics

The UF Health Tuberous Sclerosis Center
Director: Hans Shuhaiber, MD
Co-Director: S. Parrish Winesett, MD
Co-Director: Sotiris G. Mitropanopoulos, MD
Coordinator:  Kenya McHome, MSN
Age Range Seen: Children and Adults
Clinic Frequency: Monthly
For information and to schedule an appointment, call (352) 294-5000.

TSC Clinic at Nicklaus Children’s Hospital Miami
Director: Paula Schleifer, MD
Coordinator:  Maria del Pilar Gennaro, MSN, ARNP, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old
Clinic Frequency: Monthly on third Tuesday.
Out-of-State Medicaid Policy: Does not accept for outpatient visits. A letter of agreement is required prior to inpatient admissions.
To schedule an appointment, call (786) 624-3552.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Advent Health Medical Group Epilepsy at Orlando
Director: Ki Hyeong Lee, MD
Co-Director: Joo Hee Seo, MD, MSc
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Mondays and Tuesdays
For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127.

Orlando Health Arnold Palmer Hospital for Children
Director: Vikram Prakash, MD
Co-Director: Ana Aguilar-Bonilla, MD
Coordinator: Jennifer Graham, RN
Age Range Seen: Children up to age 21 years old.
Clinic Frequency: Monthly
For clinic information and to schedule an appointment please contact our team at 321-842-6671 or r-aphtsclinic@orlandohealth.com.

St. Petersburg
Neurocutaneous Disorders Clinic at Johns Hopkins All Children’s Hospital
Director: Stacie Stapleton, MD
Co-Director: Melissa Crenshaw, MD
Coordinator: Sonja Steinbrueck, RN
Age Range Seen: New patients up to age 21 years.
Clinic Frequency: Monthly, second and fourth Mondays.
For Clinic Information and to schedule an appointment call (727) 767-3675.

H. Lee Moffitt Cancer Center
Director: Sepideh Mokhtari, MD
Coordinator:  None
Age Range Seen: Adults only.
Clinic Frequency: Monthly, every third Tuesday (subject to change).
For Clinic Information call (813) 745-3980 and to schedule an appointment call (813) 745-4251.