Individuals & Families


Community Alliance

TSC Alliance of MARYLAND →

Adult Regional Coordinator

Kathy Henkel (Adult and Parent of an Adult), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

TSC Clinic

University of Maryland
Director: Peter B. Crino, MD, PhD
Coordinator: Joyce Matthews, MS, RN, CNRN
Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Age Range Seen: New patients 12 years and older.
Clinic Frequency: Weekly.
For Clinic Information call (410) 328-2172 and to schedule an appointment call (410) 328-6266.

Washington, DC and Fairfax, VA
Tuberous Sclerosis Clinic at Children’s National
Director: William McClintock, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Clinic Ambassadors: Kathi Dills kteach599@msn.com (adolescents and adults) and Rachel Wojnilower woj.rachel@gmail.com (infants and young children)
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611