Massachusetts
Community Alliance
Adult Regional Coordinator
Iris Mustich (Adult), Durham, NC, 203-300-2232, Irismustich@gmail.com
TSC Clinics
Boston
The Herscot Center for Tuberous Sclerosis Complex at Massachusetts General Hospital
Director: Elizabeth Thiele, MD, PhD
Coordinator: Jan Paolini, RN, MSN, PNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly on Fridays and every other Tuesday, as well as on an as needed basis.
To schedule an appointment please call (617) 726-6540.
Boston
Multi-Disciplinary Tuberous Sclerosis Program
Boston Children’s Hospital
Director: Mustafa Sahin, MD, PhD
Coordinator: Jennifer McCrave, RN, BSN, CNRN
Age Range Seen: Children and Young Adults up to age 25 years old.
Clinic Frequency: Every other week.
Out-of-State Medicaid Policy: Accepts Maine, New Hampshire, Rhode Island and Vermont.
To schedule an appointment please call one of our Patient Experience Representatives at (617) 355-2711. For clinic-related questions, please email Zoë Frazier, MS, CGC at zoe.frazier@childrens.harvard.edu.