Education Parent Mentor
Rene Friedel, 618-654-6844, firstname.lastname@example.org
Adult Regional Coordinator
Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.email@example.com
Tuberous Sclerosis Clinic at Children’s Mercy Hospital
Director: Mohammed Ilyas, MD
Co-Director: Laurel Willig, MD
Coordinator: Jenny Digirlamo, BSN, RN, CPN
Age Range Seen: New patients up to age 21 years.
Clinic Frequency: Monthly, every fourth Thursday (subject to change).
For Clinic Information call (913) 696-8254 and to schedule an appointment call ( 913) 696-8950 (ext. 88032).
Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine
Director: Himanshu Kaulas, MD
Co-Director: L. Richard Feldenberg, MD
Coordinator: Julie Engel, RN
Age Range Seen: New patients up to age 20 years.
Clinic Frequency: Monthly, every second Thursday.
For Clinic Information and to schedule an appointment call (314) 268-2737.
Washington University Tuberous Sclerosis Clinic
Director: Michael Wong, MD, PhD
Coordinator: Ashley Fasciola, RN, BSN
Age Range Seen: Children and adults
Clinic Frequency: Weekly every Wednesday morning.
Out-of-State Medicaid Policy: Accepts Illinois only.
For information and to schedule an appointment call (314) 454-6120 and ask for Ashley.