Missouri

Community Alliances

TSC Alliance of Greater Kansas City →

TSC Alliance of St. Louis and Southern Illinois →

Education Parent Mentor

Rene Friedel, 618-654-6844, rfriedel@charter.net

Adult Regional Coordinators

Co-Adult Regional Coordinator: Emilie Hyde, emilie.peters97@gmail.com, (918) 960-1025
Co-Adult Regional Coordinator: Foster Hyde, fosterhyde07@gmail.com, (616) 826-2200

TSC Clinics

Kansas City
Tuberous Sclerosis Clinic at Children’s Mercy Hospital
Director: Mohammed Ilyas, MD
Co-Director: Laurel Willig, MD
Coordinator: Beth Shepard, BSN, RN
Age Range Seen: New patients under 18 years.
Clinic Frequency: Monthly, every second Thursday (subject to change)
For Clinic Information or to schedule an appointment call 816-234-3490.

St. Louis
Cardinal Glennon Children’s Hospital, Saint Louis University School of Medicine
Director: Himanshu Kaulas, MD
Coordinator: Stacey Hesse, RN
Age Range Seen: New patients up to age 20 years.
Clinic Frequency: Monthly, every second Thursday.
For Clinic Information and to schedule an appointment call (314) 268-2737.

St. Louis
Washington University Tuberous Sclerosis Clinic
Co-Director: Michael Wong, MD, PhD
Co-Director: Fabio Nascimento, MD
Age Range Seen: Children (0-17) and adults (18+)
Pediatric Coordinator: Ashley Fasciola, RN, BSN
Pediatric Clinic Frequency: Weekly every Wednesday morning.
For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley.
Adult Coordinator: Patty Schaefer, RN
Adult Clinic Frequency:  2-3 times a month on Mondays
For adult care information and to schedule an appointment call 314-362-7845 and Press 2
Out-of-State Medicaid Policy: Accepts Illinois only.