Adult Regional Coordinator
Jake Irby (Adult), Austin, TX, 512-586-8895, Irby.firstname.lastname@example.org
Dependent Adult Transition Resource Coordinators
Laura Buckner (North/West), 512-232-0741, Laura.email@example.com
Lucy Martinez (South/East), 832-423-6989, Lucy.firstname.lastname@example.org (Speaks Spanish)
Leslie Russell (Dallas/Ft. Worth), Home: 972-471-5522, Cell: 972-658-8872, email@example.com
Kathryn Groves (Leander/Austin), 810-588-6034, firstname.lastname@example.org
Joy Graydon (Mesquite), 904-303-0869, JGraydon10@hotmail.com
Education Parent Mentor
Leslie Russell (Parent) Coppell, TX, 972-658-8872, email@example.com
Dell Children’s Hospital
Director: E. Steve Roach, MD
Coordinator: Zoë Allen, BSN, RN
Clinic Ambassador: Sheryl Kubala, firstname.lastname@example.org
Age Range Seen: Children and Adults*
*Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician.
Clinic Frequency: Monthly, every second Thursday.
For information or to schedule an appointment call (512) 628-1855.
Texas Scottish Rite Hospital for Children
Director: Steven Sparagana, MD
Coordinator: Linda Lezotte, RN
Clinic Ambassador: Tricia Bodner
Age Range Seen: Children only and must be a Texas resident with diagnosis of TSC and sponsorship by a Mason.
Clinic Frequency: First, second, third, fifth Tuesdays and fourth Thursday every month. Beginning December 19, 2019, the fourth Thursday clinic permanently changes to the third Thursday.
Out-of-State Medicaid Policy: Does not accept any.
For more information or to schedule an appointment call (214) 559-7830 or email TSCclinic@tsrh.org.
Cook Children’s Clinic for Tuberous Sclerosis Complex
Director: M. Scott Perry, MD
Coordinator: Amy Davis, BSN, RN
Age Range: Children
Clinic Frequency: First Tuesday of each month.
For more information or to schedule an appointment call Amy Davis at (682) 885-7259.
McGovern Medical School, University of Texas Health Science Center at Houston
Clinic Location: University of Texas Professional Bldg., 6410 Fannin Street, Suite 500, Houston, Texas 77030
Director: Hope Northrup, MD
Co-Director: Mary Kay Koenig, MD
Coordinator: Claire Sartwell, RN, BSN
Age Range: Children and Adults
Clinic Frequency: First and fourth Monday and third Tuesday every month.
For more information about the TSC Clinic contact Claire Sartwell, RN, BSN at (713) 500-7149. To schedule an appointment call (713) 500-6367.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Comprehensive Tuberous Sclerosis Clinic at Texas Children’s Hospital
Affiliated with Texas Children’s Hospital, Baylor College of Medicine
Director: Rohini Coorg, MD
Co-Director: Surya Prasadarao Rednam, MD, MS
Coordinator: Kari M. Vanderslice, BSN, RN
Clinic Ambassador: Shalonda Alexander, Shalonda.email@example.com, (512) 417-7329.
Age Range: Children
Clinic Frequency: Monthly, every third Wednesday.
For information or to schedule an appointment call Kari Vanderslice at (832) 822-5046.