Individuals & Families


Community Alliances

TSC Alliance of WASHINGTON, DC/Virginia →

Adult Regional Coordinator

Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

Dependent Adult Transition Resource Coordinator

Kathi Dills (Parent and Chair, TSC Alliance of Washington, DC/Virginia), Great Falls, VA, 703-444-9512, kteach599@msn.com

Education Parent Mentors

Jill Fischer (Parent), Palmyra, VA, 757-636-7478, jillwfischer@aol.com
Brooke Carpenter (Parent), Burke, VA, 703-678-7681, brooke_carpenter@hotmail.com

TSC Clinics

The University of Virginia (UVA) Tuberous Sclerosis Clinic
Co-Director: Erika Axeen, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator: Myra Johnson, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins.  For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Fairfax and Washington, DC
Tuberous Sclerosis Clinic at Children’s National
Director: William McClintock, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Clinic Ambassadors: Kathi Dills kteach599@msn.com (adolescents and adults) and Rachel Wojnilower woj.rachel@gmail.com (infants and young children)
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611

Virginia Commonwealth University (VCU) Health System
Director: Lawrence Morton, MD (pediatrics)
Co-Director: Victor Gonzalez-Montoya, MD (adults)
Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults)
Age Range: Children and Adult.
Clinic Frequency: Monthly.
For Clinic Information and to schedule an appointment call  (804) 828-2467 (Children) and (804) 828-9350 (adults).