Adult Regional Coordinator
Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582, firstname.lastname@example.org
Dependent Adult Transition Resource Coordinator
Kathi Dills (Parent and Chair, TSC Alliance of Washington, DC/Virginia), Great Falls, VA, 703-444-9512, email@example.com
Education Parent Mentors
The University of Virginia (UVA) Tuberous Sclerosis Clinic
Co-Director: Erika Axeen, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator: Myra Johnson, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.
Fairfax and Washington, DC
Tuberous Sclerosis Clinic at Children’s National
Director: William McClintock, MD
Co-Director: Susanne Yoon, MD
Coordinator: Nancy Elling, RN, BSN, CPN
Clinic Ambassador: Kathi Dills firstname.lastname@example.org
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611
Virginia Commonwealth University (VCU) Health System
Director: Lawrence Morton, MD (pediatrics)
Co-Director: Victor Gonzalez-Montoya, MD (adults)
Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults)
Age Range: Children and Adult.
Clinic Frequency: Monthly.
For Clinic Information and to schedule an appointment call (804) 828-2467 (Children) and (804) 828-9350 (adults).