West Virginia

Community Alliance

TSC Alliance of Kentucky/West Virginia →

Adult Regional Coordinator

Kathy Henkel (Adult and Parent), Waynesboro, VA, 540-949-0582, uneakmom@gmail.com

Dependent Adult Transition Resource Coordinator & Education Parent Mentor

Tammy Kouns (Parent), Ashland, KY, 606-571-3882, tammyskouns@gmail.com

Nearby TSC Clinics

MARYLAND

Baltimore
Tuberous Sclerosis Clinic at Kennedy Krieger Institute
Director: Jacqueline Weissman, MD (effective 7.1.2016)
Administrative Coordinator: Emily A. Thomas
TSC Clinic Ambassador: Jocelyn Cenna, portvue@comcast.net
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-State Medicaid Policy: Accepts Delaware, District of Columbia, New Jersey
For more information or to schedule an appointment, contact Emily A. Thomas at 443-923-2746.  For medical questions, ask to speak to one of the neurology team nurses associated with the TSC clinic.

WASHINGTON DC

Tuberous Sclerosis Clinic at Children’s National
Director: William McClintock, MD
Coordinator:  Nancy Elling, RN, BSN, CPN
Clinic Ambassadors: Kathi Dills kteach599@msn.com (adolescents and adults) and Rachel Wojnilower woj.rachel@gmail.com (infants and young children)
Age Range Seen: Children and Adults.
Clinic Frequency: Weekly on Thursday at Children’s National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA.
For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (571) 405-5961. To schedule an appointment, call the Neurology appointment line at (202) 476-3611

OHIO

Cincinnati
The Tuberous Sclerosis Clinic
Founding Director: David N. Franz, MD
Director: Darcy Krueger, MD, PhD
Administrative Coordinator: Melody Gulleman
Coordinators: Cindy Tudor, CPNP and Karen Agricola, CFNP
Age Range Seen: Children and Adults
Clinic Frequency: Weekly
Out-of-state Medicaid: Accepts pending pre-authorization from the Medicaid provider.  There are financial assistance programs for those living in Indiana: Dearborn county; Kentucky: Boone, Campbell and Kenton counties; and Ohio: Butler, Clermont, Hamilton and Warren counties.  Ohio residents may qualify for the H-Cap program, which is for low income and based on federal poverty guidelines.  For further questions regarding these programs, contact Financial Services at (513) 636-0201.
To schedule an appointment or for information, contact Melody Gulleman at (513) 636-4222 or email TSclinic@cchmc.org. 
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Cleveland
TSC Care at CCF (The Cleveland Clinic)
Director: Ajay Gupta, MD, FAAP
Coordinator: Paula Klima, RN
Age Range: Children and young adults up to age 21 year old.
Clinic Frequency: Weekly on Wednesday. Scheduling is flexible to meet patients’ needs whenever possible.
For more information or to schedule an appointment, email tsc_care@ccf.org or call 216-445-0601.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.

Columbus
TSC Clinic at Nationwide Children’s Hospital
Director: Monica P. Islam, MD
Coordinator: Gada McMahen, RN, CPN
Age Range: Children
Clinic Frequency: Third Thursday of each month.
For more information about the clinic call (614) 722-4109 and to schedule an appointment call (614) 722-4610.

VIRGINIA

Charlottesville
The University of Virginia (UVA) Tuberous Sclerosis Clinic
Director: Howard Goodkin, MD, PhD
Co-Director: Erika Axeem, MD (Pediatrics)
Co-Director: Derek Bauer, MD (Adults)
Coordinator:  Brooke Henry, RN, BSN
Age Range: Children and Adults
Clinic Frequency: Monthly
To schedule an appointment, call (434) 924-2706 and ask to speak to Debbie Roberts.  For more information about the clinic call Brooke Henry, RN, BSN at (434) 924-8672.
Esta clínica cuenta con un doctor o un empleado que habla español con fluidez.