Individuals & Families

School Issues

The TSC Alliance recognizes parents and young adults often face many difficulties regarding educational and school-related issues. This section of our website was developed to help families and individuals successfully navigate through the educational system.

The TSC Alliance is proud to manage an incredible group of volunteers who provide local resources in most US states and staff who can provide guidance on education issues and training for local school districts on how learning is unique for people with tuberous sclerosis complex (TSC).  If you would like help navigating educational resources for someone with tsc, please begin by completing the below intake form. We are committed to responding to all requests within 48 hours on business days.


If you have questions, please call Shelly Meitzler, Director, Outreach and Support, at (800) 225-6872 or email her at smeitzler@tscalliance.org.

School Support

The Educator Mentor Program (EMP) was developed to support school systems in understanding the learning needs of children with TSC. The EMP includes administrators, therapists, physiologists, and teachers from pre-kindergarten to college level having experience with TSC. They provide one-on-one support to any professional in the school system needing education and support in understanding the educational complexities of TSC.  For more information contact Shelly Meitzler at smeitzler@tscalliance.org or (800) 225-6872.

Elementary through High School Resources

Other Elementary through High School Resources

List of Parent Training and Information Centers in the United States

College Resources

Other Post High School Transition Resources

Disclaimer:  The information in this area of the website does not constitute legal advice.  It is solely for informational and educational purposes.  It is not intended to be a legal recommendation, nor should it substitute for obtaining legal counsel from your own attorney.