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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260523T100250
CREATED:20251124T203847Z
LAST-MODIFIED:20260513T171534Z
UID:10000146-1779307200-1779310800@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2026
DESCRIPTION:Join the TSC Alliance on\, Wednesday\, May 20\, 2026\, at 8 pm ET for an open forum Adult Topic Call. This call offers adults living with TSC a welcoming\, supportive space to connect\, share experiences\, and engage in open discussion with peers. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-may-2026/
CATEGORIES:Adult Topic Calls
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/11/May-2026-ATC-2.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260523T100250
CREATED:20260115T215750Z
LAST-MODIFIED:20260508T202400Z
UID:10000160-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Brookfield\, CT
DESCRIPTION:Join us in Brookfield\, CT on Saturday\, May 16\, 2026\, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-brookfield-ct-2/
LOCATION:Cadigan Park\, 465 Candlewood Lake Road\, Brookfield\, CT\, 06804\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Brookfield-CT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.483148;-73.4331221
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Cadigan Park 465 Candlewood Lake Road Brookfield CT 06804 United States;X-APPLE-RADIUS=500;X-TITLE=465 Candlewood Lake Road:geo:-73.4331221,41.483148
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260523T100250
CREATED:20260115T214628Z
LAST-MODIFIED:20260508T202415Z
UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260523T100250
CREATED:20260115T214033Z
LAST-MODIFIED:20260508T202247Z
UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260523T100250
CREATED:20260115T201528Z
LAST-MODIFIED:20260508T202506Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Perry-OH-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T083000
DTEND;TZID=America/New_York:20260516T120000
DTSTAMP:20260523T100250
CREATED:20260330T154437Z
LAST-MODIFIED:20260507T171214Z
UID:10000179-1778920200-1778932800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Tampa\, FL
DESCRIPTION:Join us in Tampa\, FL on Saturday\, May 16\, 2026\, at the Shanna and Bryan Glazer JCC for Step Forward to Cure TSC®! \nThis beautiful venue provides the perfect backdrop for a day dedicated to hope\, strength\, and community. Whether you are a long-time supporter or joining us for the first time\, we can’t wait to welcome you for a morning of fun and meaningful connection. \nHow can you get involved?\nSuccess starts with you! By registering early\, you help us build momentum for our biggest year yet. \nREGISTER HERE\n  \nCheck out the agenda!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-tampa-fl-2/
LOCATION:Shanna and Bryan Glazer JCC\, 522 N Howard Ave\, Tampa\, FL\, 33606\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/Tampa-FL-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260503T090000
DTEND;TZID=America/North_Dakota/New_Salem:20260503T110000
DTSTAMP:20260523T100250
CREATED:20260129T222519Z
LAST-MODIFIED:20260205T215308Z
UID:10000166-1777798800-1777806000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - DFW\, TX
DESCRIPTION:Join us in Dallas-Fort Worth\, TX on Sunday\, May 3\, 2026\, at Doubletree Ranch Park for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:00 am – Registration begins\n10:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-dfw-tx/
LOCATION:Doubletree Ranch Park\, 310 Highland Village Rd\, Highland Village\, TX\, 75077\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/DFW-1-scaled.jpeg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T093000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260523T100250
CREATED:20260115T220833Z
LAST-MODIFIED:20260115T220833Z
UID:10000162-1777714200-1777723200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Charlotte\, NC
DESCRIPTION:Join us in Charlotte\, NC on Saturday\, May 2\, 2026\, at Park Road Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Carolinas —united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-charlotte-nc/
LOCATION:Park Road Park\, 6220 Park Rd\, Charlotte\, NC\, 28210\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Charlotte-NC-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260523T100250
CREATED:20260319T174918Z
LAST-MODIFIED:20260506T194221Z
UID:10000171-1777492800-1777496400@www.tscalliance.org
SUMMARY:TSC 101 for Newly Diagnosed Individuals or Families
DESCRIPTION:Watch the recording here: 
URL:https://www.tscalliance.org/event/tsc-101-for-newly-diagnosed-individuals-or-families/
CATEGORIES:Webinar,2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/TSC-101-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260426T110000
DTEND;TZID=America/Chicago:20260426T140000
DTSTAMP:20260523T100250
CREATED:20260130T191208Z
LAST-MODIFIED:20260330T192824Z
UID:10000167-1777201200-1777212000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Chicago\, IL
DESCRIPTION:Join us in Chicago\, IL on Sunday\, April 26\, 2026\, at Lake Shore Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Chicago\, IL area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-chicago-il-2/
LOCATION:Lake Shore Park\, 808 North Lake Shore Drive\, Chicago\, IL\, 60611\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Chicago-1-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.8973151;-87.6199492
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Lake Shore Park 808 North Lake Shore Drive Chicago IL 60611 United States;X-APPLE-RADIUS=500;X-TITLE=808 North Lake Shore Drive:geo:-87.6199492,41.8973151
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T100000
DTEND;TZID=America/Los_Angeles:20260426T120000
DTSTAMP:20260523T100250
CREATED:20260205T214857Z
LAST-MODIFIED:20260330T184024Z
UID:10000168-1777197600-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Pasadena\, CA
DESCRIPTION:Join us in Pasadena\, CA on Sunday\, April 26\, 2026\, at the Rose Bowl Stadium – Court of Champions for Step Forward to Cure TSC®! \nThe Step Forward to Cure TSC® Walk is more than an event—it’s a chance to connect with people who truly understand the challenges and triumphs of living with TSC. Together\, we raise awareness\, build community\, and take meaningful steps toward a brighter future for everyone affected by TSC —locally and nationwide. Whether you’re walking for a loved one\, supporting a friend\, or standing up for the TSC community\, your participation makes a real and lasting impact. This walk is a celebration of strength\, resilience\, and hope\, honoring those affected while bringing people together around a shared purpose. Join us at the at the Rose Bowl in Pasadena\, CA for the Step Forward to Cure TSC Walk and help ensure that no one faces TSC alone. Together\, we move closer to a world without TSC. \nThis event will take place rain or shine! For more details or to volunteer\, please contact: Rob Grandia at grandia@verizon.net. \n10:00 am – Registration begins\n \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pasadena-ca/
LOCATION:Rose Bowl Stadium – Court of Champions\, 1001 Rose Bowl Dr\, Pasadena\, CA\, 91103\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/02/UPDATED-Pasadena-2-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260426T093000
DTEND;TZID=America/New_York:20260426T120000
DTSTAMP:20260523T100250
CREATED:20260114T214432Z
LAST-MODIFIED:20260331T194026Z
UID:10000155-1777195800-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Rockville\, MD
DESCRIPTION:Join us in Rockville\, MD on Sunday\, April 26\, 2026 at Charles E. Smith Jewish Day School for Step Forward to Cure TSC®! This event will bring together Maryland\, Metro DC\, and surrounding communities for an incredible day of connection and impact. \n 9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-rockville-md-2/
LOCATION:Charles E. Smith Jewish Day School\, Hunters Lane\, Rockville\, MD\, 20852\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/UPDATED-Rockville-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.0494131;-77.1001988
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Charles E. Smith Jewish Day School Hunters Lane Rockville MD 20852 United States;X-APPLE-RADIUS=500;X-TITLE=Hunters Lane:geo:-77.1001988,39.0494131
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T073000
DTEND;TZID=America/Los_Angeles:20260426T100000
DTSTAMP:20260523T100250
CREATED:20260115T220152Z
LAST-MODIFIED:20260331T191102Z
UID:10000161-1777188600-1777197600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Renton\, WA
DESCRIPTION:Join us in Renton\, WA on Saturday\, April 26\, 2026\, at Renton Community Center for Step Forward to Cure TSC®! This walk brings together the TSC community from the Pacific Northwest—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n7:30 am – Registration begins\n8:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-renton-wa-2/
LOCATION:Renton Community Center\, Maple Valley Highway\, Renton\, WA\, 98057\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/UPDATED-Renton-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:47.4817324;-122.1974966
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Renton Community Center Maple Valley Highway Renton WA 98057 United States;X-APPLE-RADIUS=500;X-TITLE=Maple Valley Highway:geo:-122.1974966,47.4817324
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260419T160000
DTEND;TZID=America/Los_Angeles:20260419T190000
DTSTAMP:20260523T100250
CREATED:20260122T010154Z
LAST-MODIFIED:20260122T010154Z
UID:10000165-1776614400-1776625200@www.tscalliance.org
SUMMARY:Comedy for a Cure®
DESCRIPTION:The 25th Annual Comedy for A Cure® will be held Sunday\, April 19\, 2026 at the iconic Irvine Improv at Irvine Spectrum Center. \nThis year’s headliner\, the legendary Rita Rudner\, will be joined by Mo Collins\, Wendy Liebman\, Craig Shoemaker\, and Priya Mehta. \nDon’t miss out on this incredible event supporting the TSC community! Learn more at www.comedyforacure.org. \nPURCHASE YOUR TICKETS HERE
URL:https://www.tscalliance.org/event/comedy-for-a-cure/
LOCATION:Irvine Imrov\, 527 Spectrum Center Dr\, Irvine\, CA\, 92618\, United States
CATEGORIES:Comedy for a Cure
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/C4C26_1080x1080-3.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T103000
DTEND;TZID=America/New_York:20260418T133000
DTSTAMP:20260523T100250
CREATED:20260116T011756Z
LAST-MODIFIED:20260330T174832Z
UID:10000163-1776508200-1776519000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Nashville\, TN
DESCRIPTION:Join us in Nashville\, TN on Saturday\, April 18\, 2026\, at Edwin Warner Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Tennessee area—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:30 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-nashville-tn-2/
LOCATION:Edwin Warner Park\, Vaughn Road\, Nashville\, TN\, 37221\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Nashville-2-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:36.0500101;-86.9041463
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Edwin Warner Park Vaughn Road Nashville TN 37221 United States;X-APPLE-RADIUS=500;X-TITLE=Vaughn Road:geo:-86.9041463,36.0500101
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T200000
DTEND;TZID=America/New_York:20260415T210000
DTSTAMP:20260523T100250
CREATED:20251124T203722Z
LAST-MODIFIED:20251124T203722Z
UID:10000145-1776283200-1776286800@www.tscalliance.org
SUMMARY:Adult Topic Call - April 2026
DESCRIPTION:The April topic call will take place on Wednesday\, April 15\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-april-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260523T100250
CREATED:20251202T194245Z
LAST-MODIFIED:20251202T194245Z
UID:10000151-1776110400-1776114000@www.tscalliance.org
SUMMARY:Ask an Advocate - April 2026
DESCRIPTION:Join us on Monday\, April 13\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the April 13\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-april-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260411T110000
DTEND;TZID=America/North_Dakota/New_Salem:20260411T130000
DTSTAMP:20260523T100250
CREATED:20260116T012835Z
LAST-MODIFIED:20260330T193312Z
UID:10000164-1775905200-1775912400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Houston\, TX
DESCRIPTION:Join us in Sugar Land\, TX on Saturday\, April 11\, 2026\, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston\, TX area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-houston-tx/
LOCATION:Brazos River Park\, 18427 Southwest Freeway\, Sugar Land\, TX\, 77479\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:29.5711823;-95.6611539
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Brazos River Park 18427 Southwest Freeway Sugar Land TX 77479 United States;X-APPLE-RADIUS=500;X-TITLE=18427 Southwest Freeway:geo:-95.6611539,29.5711823
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260318T200000
DTEND;TZID=America/New_York:20260318T210000
DTSTAMP:20260523T100250
CREATED:20251124T203453Z
LAST-MODIFIED:20251124T203537Z
UID:10000144-1773864000-1773867600@www.tscalliance.org
SUMMARY:Adult Topic Call - March 2026
DESCRIPTION:The March topic call will take place on Wednesday\, March 18\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-march-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260209T200000
DTEND;TZID=America/New_York:20260209T210000
DTSTAMP:20260523T100250
CREATED:20251202T193948Z
LAST-MODIFIED:20260116T164511Z
UID:10000150-1770667200-1770670800@www.tscalliance.org
SUMMARY:Ask an Advocate - February 2026
DESCRIPTION:Join us for an Ask an Advocate session!\n\n\n\nJoin Wendy Anderson\, TSC Alliance Education Peer Mentor\, on Monday\, February 9\, 2026\, at 8 pm ET as she leads a focused and empowering conversation on how families impacted by TSC and other disabilities can engage in meaningful policy advocacy at the local\, state\, and federal levels. Wendy will share her experience as a parent-advocate and offer clear\, practical ways to involve the whole family in influencing legislation\, shaping public policy\, and elevating the voices of those most affected.\n\n\nRegister for the February 9\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-february-2026/
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/12/February-2026.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251218T190000
DTEND;TZID=America/New_York:20251218T200000
DTSTAMP:20260523T100250
CREATED:20251121T160958Z
LAST-MODIFIED:20251121T161042Z
UID:10000143-1766084400-1766088000@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - The Psychological impact on Caregivers
DESCRIPTION:Join Michele D. Della Costa\, MS\, LMFT-QS\, on Thursday\, December 18\, 2025 at 7:00 pm ET as she leads a valuable discussion on the psychological impact on caregivers of semi-independent and dependent adults with TSC. This conversation will offer practical advice on navigating the mental burden of managing care for a loved one with TSC\, including how to prevent burnout and create space for self-care. \nREGISTER HERE \nThe Transition Webinar Series is co-hosted by Mass General Brigham and the Herscot Center for TSC\, and presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC.
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-the-psychological-impact-on-caregivers-2/
CATEGORIES:Transition Workshop,Transition Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2025/10/2025TransitionWebinarSeriesLogo-FinalRev02-25-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251108T080000
DTEND;TZID=America/New_York:20251108T170000
DTSTAMP:20260523T100250
CREATED:20250303T212228Z
LAST-MODIFIED:20251022T202306Z
UID:10000115-1762588800-1762621200@www.tscalliance.org
SUMMARY:TSC Regional Conference - Los Angeles\, CA
DESCRIPTION:This one-day TSC Regional Conference will take place on Saturday\, November 8\, 2025 at the UCLA Meyer and Renee Luskin Conference Center at the UCLA Los Angeles Campus in Los Angeles\, CA\, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for\nTSC Managing behaviors in TAND and caregiver mental health\nGenetics and family planning\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nCheck out the agenda here. \nREGISTER HERE \nPRESENTING SPONSORS\n \n \n \nSeries SPONSORS\n\n \n \nSupporting SPONSORS\n \n\nOne Conference SPONSOR
URL:https://www.tscalliance.org/event/tsc-regional-conference-los-angeles-ca/
LOCATION:UCLA Meyer and Renee Luskin Conference Center\, 425 Westwood Plaza\, Los Angeles\, CA\, 90095\, United States
CATEGORIES:TSC Regional Conference Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/regional-conference-for-website.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:34.0693709;-118.4457082
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=UCLA Meyer and Renee Luskin Conference Center 425 Westwood Plaza Los Angeles CA 90095 United States;X-APPLE-RADIUS=500;X-TITLE=425 Westwood Plaza:geo:-118.4457082,34.0693709
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251101T110000
DTEND;TZID=America/Chicago:20251101T140000
DTSTAMP:20260523T100250
CREATED:20251015T200511Z
LAST-MODIFIED:20251021T200707Z
UID:10000141-1761994800-1762005600@www.tscalliance.org
SUMMARY:34th Annual Cookin' Up a Cure
DESCRIPTION:Thirty-four years ago\, Pamela’s son Joey had his first seizure at just six months old. It was then that their family heard the life-changing words: “Your child has Tuberous Sclerosis Complex.” Together\, they fought Joey’s battle with courage and love. Sadly\, just over a year after his diagnosis\, Joey’s little heart could no longer carry on. But his family promised him that they would continue his fight and ensure that his life’s purpose lived on.\n\n\n\n\nThe pampered chef party will begin at noon with a live auction\, raffles\, food and more at the Knights of Columbus on 732 Badger Avenue in South Milwaukee\, Wisconsin. Please contact Pam Sztukowski at pamsztukowski@gmail.com or 414.881.5276 with any questions.\n\n\n\n\nIn 2025\, they will honor that promise for the 34th time\, holding their annual auction in Joey’s memory. They carry on\, not just for Joey\, but for all the children\, parents\, grandparents\, and families who have faced the challenges of a TSC diagnosis.\n\n\n\n\nWe hope you can join us in Joey’s memory.\n\n\n\n\nCan’t attend? Please consider:\n\nDonating an item for the silent auction\nPlacing a Pampered Chef Order where 25% of all sales will be donated to the TSC Alliance: https://hubs.li/Q03Nz6_L0\nMake a donation via VENMO or Check (payable to the TSC Alliance)
URL:https://www.tscalliance.org/event/34th-annual-cookin-up-a-cure/
LOCATION:Knights of Columbus\, 723 Badger Avenue\, South Milwaukee\, WI\, 53172\, United States
CATEGORIES:Community Gatherings
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:42.9274902;-87.8577439
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Knights of Columbus 723 Badger Avenue South Milwaukee WI 53172 United States;X-APPLE-RADIUS=500;X-TITLE=723 Badger Avenue:geo:-87.8577439,42.9274902
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251013T200000
DTEND;TZID=America/New_York:20251013T210000
DTSTAMP:20260523T100250
CREATED:20250812T171814Z
LAST-MODIFIED:20250812T171814Z
UID:10000136-1760385600-1760389200@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on Monday\, October 13\, 2025 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the October 13\, 2025 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-4/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250906T080000
DTEND;TZID=America/New_York:20250906T170000
DTSTAMP:20260523T100250
CREATED:20250303T204931Z
LAST-MODIFIED:20250819T150137Z
UID:10000114-1757145600-1757178000@www.tscalliance.org
SUMMARY:TSC Regional Conference - Iowa City\, IA
DESCRIPTION:This one-day TSC Regional Conference will take place on Saturday\, September 6\, 2025 at the Iowa Memorial Union at the University of Iowa in Iowa City\, IA\, and is aimed at individuals with tuberous sclerosis complex (TSC) and their caregivers will feature leading local researchers and clinicians specializing in TSC. The series is presented by Jazz Pharmaceuticals\, Nobelpharma and Upsher-Smith Laboratories\, LLC. \nTopics will include sessions across the lifespan of TSC\, including: \n\nResearch updates\, including upcoming clinical studies and trials for TSC\nManaging behaviors in TAND and caregiver mental health\nReproductive and perinatal health issues\nSeizure types and treatments for children and adults\nKidney and skin involvement and treatment options\n\nCan’t join us in person? We’ve got you covered. \nWe’re excited to offer virtual access to select sessions from the upcoming TSC Regional Conference in Iowa City — the only conference in this year’s regional series with a hybrid option. \nWhile we encourage all attendees to join us in person\, we understand that isn’t always possible. This virtual option ensures more of our community can stay connected and informed. \nIf you’re unable to attend in person\, please click the “(IA) Virtual Access Registration – TSC Regional Conference” link to sign up and be notified when Zoom links and session details become available. \nREGISTER HERE \nPRESENTING SPONSORS\n \n \n \nSeries SPONSORS\n\n \n \nSupporting SPONSORS\n \n\nOne Conference SPONSOR
URL:https://www.tscalliance.org/event/tsc-regional-conference-iowa-city-ia/
LOCATION:Iowa Memorial Union at the University of Iowa\, 125 N. Madison Street\, Iowa City\, IA\, 52242\, United States
CATEGORIES:TSC Regional Conference Series
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.6623113;-91.5393434
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Iowa Memorial Union at the University of Iowa 125 N. Madison Street Iowa City IA 52242 United States;X-APPLE-RADIUS=500;X-TITLE=125 N. Madison Street:geo:-91.5393434,41.6623113
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250821T190000
DTEND;TZID=America/New_York:20250821T200000
DTSTAMP:20260523T100250
CREATED:20250819T144907Z
LAST-MODIFIED:20250819T144907Z
UID:10000138-1755802800-1755806400@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - Navigating Social Security Benefits for Individuals with Disabilities
DESCRIPTION:Join us fro the next webinar in the 2025 Transition Webinar Series on Thursday August 21 at 7 pm ET. \nOur next webinar in our 2025 Transition Webinar Series will be Navigating Social Security Benefits for Individuals with Disabilities. Join us for an informative and practical session designed to support families in understanding and accessing Social Security benefits for individuals with disabilities. During this webinar\, information around understanding eligibility for Supplemental Security Income (SSI)\, what changes at age 18\, navigating the application and appeal process and how income and assets can affect eligibility and benefits. Whether your child is approaching adulthood or you’re beginning to explore available supports\, this session will provide clear guidance\, resources\, and next steps to help you plan for the future with confidence. \nRegister here!
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-navigating-social-security-benefits-for-individuals-with-disabilities/
CATEGORIES:Transition Webinar
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/08/August-2.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250811T200000
DTEND;TZID=America/New_York:20250811T210000
DTSTAMP:20260523T100250
CREATED:20250219T154003Z
LAST-MODIFIED:20250613T182947Z
UID:10000111-1754942400-1754946000@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on August 11 at 8 pm ET for our Ask an Advocate call featuring the second half of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will explore how sensory processing impacts educational outcomes and discuss interventions tailored to different sensory processing types. Learn practical strategies to support student participation and success. Don’t miss this informative session! \nRegister here
URL:https://www.tscalliance.org/event/ask-an-advocate-2/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250617T190000
DTEND;TZID=America/New_York:20250617T200000
DTSTAMP:20260523T100250
CREATED:20250520T190702Z
LAST-MODIFIED:20250520T190906Z
UID:10000134-1750186800-1750190400@www.tscalliance.org
SUMMARY:2025 Transition Webinar Series - Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities
DESCRIPTION:Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! \nThis webinar will take place on Tuesday\, June 17\, 2025 at 7 pm ET. This webinar will feature Kelly Piacenti\, MA\, ChSNC\, a Chartered Special Needs Consultant® from MassMutual SpecialCare and Jerry L. Hulick\, CLU\, ChFC\, ChSNC\, CLTC from The Washington Group Special Care Planning Team to discuss Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities. \nWhat is an ABLE Account? \nAn ABLE (Achieving a Better Life Experience) account is a tax-advantaged savings account and an important tool for qualified individuals with disabilities\, offering additional independence and financial security. \nThis workshop provides essential information on ABLE accounts which grow tax-free and can be invested while still preserving valuable needs-based government benefits for the account owner. \nKelly and Jerry will cover how individuals who are working can make additional contributions from wages to their ABLE account. You will also learn how funds in an ABLE account can cover an expanding wide range of qualified expenses and ways it can work with special needs trusts as part of a comprehensive planning strategy. The ease\, access and low cost of ABLE accounts make them a great choice for millions of individuals with disabilities. \nLearn more about this webinar and register below! \nREGISTER HERE \n 
URL:https://www.tscalliance.org/event/2025-transition-webinar-series-maximizing-independence-and-financial-security-a-comprehensive-guide-to-able-accounts-for-individuals-with-disabilities/
CATEGORIES:Transition Webinar
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/05/6725.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250609T200000
DTEND;TZID=America/New_York:20250609T210000
DTSTAMP:20260523T100250
CREATED:20250219T153834Z
LAST-MODIFIED:20250519T183118Z
UID:10000110-1749499200-1749502800@www.tscalliance.org
SUMMARY:Ask an Advocate
DESCRIPTION:Join us on June 9 at 8 pm ET for Ask an Advocate\, featuring the first of a two-part series with TSC Alliance Education Peer Mentor Alexandra Dahlgren. She will discuss sensory processing and the four main sensory processing patterns\, helping students\, families and advocates better understand how sensory differences impact learning and daily life. Don’t miss this opportunity to gain valuable insights and practical strategies! The second part of Alexandra’s presentation will be at our next Ask an Advocate session on August 11. \nRegister here
URL:https://www.tscalliance.org/event/ask-an-advocate/
CATEGORIES:Ask an Advocate Series
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2025/02/June-2025.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250607T100000
DTEND;TZID=UTC:20250607T130000
DTSTAMP:20260523T100250
CREATED:20250212T221816Z
LAST-MODIFIED:20250212T221816Z
UID:10000107-1749290400-1749301200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Pleasant View\, UT
DESCRIPTION:We’re thrilled to announce that Step Forward to Cure TSC® is coming to the Pleasant View\, UT area on Saturday\, June 7\, 2025! This exciting event\, hosted by the TSC Alliance\, is a chance for the Utah area TSC community to come together\, raise awareness and support the fight against tuberous sclerosis complex (TSC). Step forward to champion the TSC Alliance’s efforts to fund groundbreaking research\, offer critically needed support programs and increase awareness of TSC.⁠ You can create a team\, join an existing team\, register as an individual or donate in honor of someone you care about. \nEvent Details: \n\nSaturday\, June 7\, 2025\n\n\nWheeler Farm Outdoor Education Center and 5K Track: 6351 South 900 East\, Murray\, UT 84121\n\nThis free\, family-friendly event is an opportunity to walk\, run\, or ride while connecting with other TSC families\, clinicians\, and advocates as we work toward creating a better future for everyone affected by TSC. \nCan’t make it in person? Join virtually from our “Step Forward Join Anywhere” page! \nRegister today!
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pleasant-view-ut/
LOCATION:Wheeler Farm Outdoor Education Ctr and 5K Track\, 6351 South 900\, East Murray\,\, UT\, 84121
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:40.7606608;-111.8939487
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Wheeler Farm Outdoor Education Ctr and 5K Track 6351 South 900 East Murray UT 84121;X-APPLE-RADIUS=500;X-TITLE=6351 South 900:geo:-111.8939487,40.7606608
END:VEVENT
END:VCALENDAR