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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260412T232433
CREATED:20260115T201528Z
LAST-MODIFIED:20260115T201528Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Perry-OH-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260412T232433
CREATED:20260115T214033Z
LAST-MODIFIED:20260115T214033Z
UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260412T232433
CREATED:20260115T214628Z
LAST-MODIFIED:20260211T151852Z
UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/West-Chester-PA-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260412T232433
CREATED:20260115T215750Z
LAST-MODIFIED:20260116T013129Z
UID:10000160-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Brookfield\, CT
DESCRIPTION:Join us in Brookfield\, CT on Saturday\, May 16\, 2026\, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-brookfield-ct-2/
LOCATION:Cadigan Park\, 465 Candlewood Lake Road\, Brookfield\, CT\, 06804\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Brookfield-CT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.483148;-73.4331221
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Cadigan Park 465 Candlewood Lake Road Brookfield CT 06804 United States;X-APPLE-RADIUS=500;X-TITLE=465 Candlewood Lake Road:geo:-73.4331221,41.483148
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260412T232433
CREATED:20251124T203847Z
LAST-MODIFIED:20251124T203847Z
UID:10000146-1779307200-1779310800@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2026
DESCRIPTION:The May topic call will take place on Wednesday\, May 20\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-may-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T120000
DTEND;TZID=America/New_York:20260603T130000
DTSTAMP:20260412T232433
CREATED:20260319T180434Z
LAST-MODIFIED:20260319T181130Z
UID:10000173-1780488000-1780491600@www.tscalliance.org
SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/SeizureTypes-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T100000
DTEND;TZID=America/New_York:20260606T130000
DTSTAMP:20260412T232433
CREATED:20260115T215300Z
LAST-MODIFIED:20260115T215300Z
UID:10000159-1780740000-1780750800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Murray\, UT
DESCRIPTION:Join us in Murray\, UT on Saturday\, June 6\, 2026\, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-murray-ut/
LOCATION:Wheeler Farm Outdoor Education Center\, 6475 900 E\, Murray\, UT\, 84121\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Murray-UT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260615T200000
DTEND;TZID=America/New_York:20260615T210000
DTSTAMP:20260412T232433
CREATED:20251202T194541Z
LAST-MODIFIED:20251202T194541Z
UID:10000152-1781553600-1781557200@www.tscalliance.org
SUMMARY:Ask an Advocate - June 2026
DESCRIPTION:Join us on Monday\, June 15\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the June 15\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-june-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260412T232433
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/Genetics-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T200000
DTEND;TZID=America/New_York:20260630T210000
DTSTAMP:20260412T232433
CREATED:20260319T181039Z
LAST-MODIFIED:20260319T181535Z
UID:10000175-1782849600-1782853200@www.tscalliance.org
SUMMARY:mTOR Inhibitors: Past\, Present and Future
DESCRIPTION:The fifth and final pre-conference webinar\, mTOR Inhibitors: Past\, Present and Future\, will take place on Tuesday\, June 30\, 2026\, at 8:00 pm ET\, and feature moderator Elizabeth Skufca and presenters David Ritter\, MD\, PhD and Michael Wong\, MD\, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC\, from their discovery to current clinical use in managing SEGAs\, kidney tumors\, epilepsy\, skin\, and more. Learn about side effects\, long-term outcomes\, and what the future holds—including new research and emerging therapies.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/mtor-inhibitors-past-present-and-future/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/mTOR-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260730
DTEND;VALUE=DATE:20260802
DTSTAMP:20260412T232433
CREATED:20241030T182013Z
LAST-MODIFIED:20260318T193135Z
UID:10000086-1785369600-1785628799@www.tscalliance.org
SUMMARY:2026 TSC World Conference
DESCRIPTION:Register today for the 2026 TSC World Conference from July 30 to August 1\, 2026\, at the Gaylord Rockies Resort & Convention Center in Aurora\, CO! Conference programming will begin at 1 pm MT on Thursday\, July 30 and will conclude with a dinner and celebration in the evening on Saturday\, August 1. \n \nThis conference\, held every 4-5 years\, promises to be one of the largest tuberous sclerosis complex (TSC) gatherings around the globe\, covering all aspects of TSC across the lifespan\, including: \n\nThe latest and most comprehensive TSC diagnosis\, treatment and research information from the world’s leading TSC clinicians and scientists\nAssistance through the myriad of educational\, transitional\, financial and emotional challenges of TSC\n\nIn addition\, as a conference attendee you will receive: \n\nThe opportunity to meet hundreds of other families and individuals with TSC and make life-long connections\nA better understanding of the role the TSC Alliance and Tuberous Sclerosis Complex International (TSCi) play in research\, support and government advocacy both in the United States and around the world\nQ&A sessions with expert clinicians and researchers\nProfessionally staffed day camps for children with special needs\, siblings and dependent adults\n\nScholarships will be available for individuals and families who would otherwise be unable to attend the 2026 TSC World Conference. Costs eligible for scholarship coverage include conference registration\, Day Camp\, and/or hotel. Travel to and from the conference is not eligible and must be covered by the attendee(s). \nThe scholarship application window has closed. Applicants will be notified no later than the end of March 2026. \nQuestions about scholarships? Please contact worldconference@tscalliance.org \nJoin us for the 2026 TSC World Conference Webinar Series!\nJoin the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference\, taking place July 30-August 1\, 2026. Participation is not limited to conference attendees. You are welcome to join the webinar series even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support. \nLearn more about the webinar series
URL:https://www.tscalliance.org/event/2026-tsc-world-conference/
LOCATION:Gaylord Rockies Resort & Convention Center\, North Gaylord Rockies Boulevard 6700\, Aurora\, CO\, 80019\, United States
CATEGORIES:2026 TSC World Conference
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2024/10/2026TSCWorldConfLogo-solid-fullstacked.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.8175697;-104.7509312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Gaylord Rockies Resort & Convention Center North Gaylord Rockies Boulevard 6700 Aurora CO 80019 United States;X-APPLE-RADIUS=500;X-TITLE=North Gaylord Rockies Boulevard 6700:geo:-104.7509312,39.8175697
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260412T232433
CREATED:20251202T194734Z
LAST-MODIFIED:20251202T194734Z
UID:10000153-1786392000-1786395600@www.tscalliance.org
SUMMARY:Ask an Advocate - August 2026
DESCRIPTION:Join us on Monday\, August 10\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the August 10\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-august-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T200000
DTEND;TZID=America/New_York:20260916T210000
DTSTAMP:20260412T232433
CREATED:20251124T204336Z
LAST-MODIFIED:20251124T204336Z
UID:10000147-1789588800-1789592400@www.tscalliance.org
SUMMARY:Adult Topic Call - September 2026
DESCRIPTION:The September topic call will take place on Wednesday\, September 16\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-september-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T200000
DTEND;TZID=America/New_York:20261012T210000
DTSTAMP:20260412T232433
CREATED:20251202T194928Z
LAST-MODIFIED:20251202T194928Z
UID:10000154-1791835200-1791838800@www.tscalliance.org
SUMMARY:Ask an Advocate - October 2026
DESCRIPTION:Join us on Monday\, October 12\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the October 12\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-october-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T200000
DTEND;TZID=America/New_York:20261021T210000
DTSTAMP:20260412T232433
CREATED:20251124T204502Z
LAST-MODIFIED:20251124T204502Z
UID:10000148-1792612800-1792616400@www.tscalliance.org
SUMMARY:Adult Topic Call - October 2026
DESCRIPTION:The October topic call will take place on Wednesday\, October 21\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-october-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261118T200000
DTEND;TZID=America/New_York:20261118T210000
DTSTAMP:20260412T232433
CREATED:20251124T204635Z
LAST-MODIFIED:20251124T204635Z
UID:10000149-1795032000-1795035600@www.tscalliance.org
SUMMARY:Adult Topic Call - November 2026
DESCRIPTION:The November topic call will take place on Wednesday\, November 18\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-november-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
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