Ashley Pounders, MSN, FNP-C

Director, Medical Affairs

Ashley has worked with the TSC Alliance on various projects since 2016 and has joined full time as the Director, Medical Affairs in 2020. In this role, Ashley provides information and assistance to constituents needing help accessing clinical care and FDA-approved treatments for tuberous sclerosis complex (TSC). She is also leading the development of a new online “TSC Navigator” tool to help individuals and families maneuver the intricate TSC healthcare system and proactively manage their care, and driving the implementation of a “TSC Learning Healthcare System” over the next few years. Ashley brings with her 13 years of experience within the nursing profession. She obtained her MS in Nursing in 2018 from Purdue University and her BS in Nursing in 2007 from Baptist College of Health Sciences in Memphis, Tennessee.  Ashley served as the lead coordinator for the TSC Center of Excellence at the LeBonheur Children’s Hospital in Memphis from 2016 through 2019.  In 2018, Ashley played a major role in assisting with the inaugural TSC Nursing Conference in Dallas, Texas. Ashley also was part of many clinical trials and retrospective research projects.  She received a Daisy Award during her time at LeBonheur for facilitating process and compassionate changes to better assist the TSC patient population.  In her spare time, Ashley enjoys spending time with husband and three boys, gardening and training for the next Ironman.