Julie Scroggins

Community Programs Manager, West

Julie joined the TSC Alliance in January 2018 as Regional Program Manager, West. She has been involved with the TSC Alliance since her oldest daughter was diagnosed with TSC in 2009. Since then, she has served on the Board of Directors, Government Action Team, Science and Medical Committee and the Audit Committee. In 2011 she founded Bcureful, then a grassroots nonprofit devoted to advancing research toward the cure for TSC as well as raising public awareness of the disorder and helping to bring expert medical care and support to people where they need it. Today the Bcureful Travel Fund exists at the T S Alliance, and is administered by the National Organization for Rare Disorders (NORD).  In addition to her responsibilities as Community Programs Manager, West, Julie enjoys overseeing the Adult Regional Coordinator Program, the Future Leader Program and her role as staff lead for the TSC Alliance Equity, Diversity and Inclusion (ED&I) Task Force.   Julie is happiest when she’s meeting and connecting people, making sure that everyone feels welcome and included.  Julie and her husband Dave have three children, Mary Ann (Jay), Chris and Mabel. She works remotely from her home in Burlington, WI.

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