Page
Government advocacy
Your voice makes a difference! $121 million appropriated for the TSCRP since 2002 $5.725 million to support clinical care and research at TSC centers in four states 120 volunteer advocates
Page
Volunteer
Champion our cause: Join the TSC Alliance volunteer movement! The tuberous sclerosis complex (TSC) community is the TSC Alliance’s strongest ally. We rely on our dedicated volunteers to help drive
Page
Spotlight on TSC Alliance
2024 marks the 50th anniversary of the TSC Alliance®! Throughout the year, we’ll celebrate five decades of progress as well as look forward with much promise for the future. Join
Page
Lungs
Lung involvement is more common in women with TSC than men. The average age of onset is during the childbearing years, although lung involvement can occasionally occur in teenagers with
News Item
0 to 6 months old with TSC needed for research study
Why are we doing this study? Epilepsy is very common in infants diagnosed with tuberous sclerosis complex (TSC) and often very difficult to treat. This study tests if sirolimus, a
TSC Alert
MILED Trial Currently Enrolling Women with LAM
Please circulate the following to your patients with lymphangioleiomyomatosis (LAM): The MILED Trial is a new research study designed to answer the question of whether we should be starting sirolimus
TSC Alert
Repurposing Partnering Opportunity with Healx
Healx, a Cambridge, UK biotech, is focused on repurposing known molecules for rare diseases. As part of their Rare Treatment Accelerator (RTA) programme, Healx is looking to partner with academic institutions who
TSC Alert
Repurposing Partnering Opportunity with Healx
Healx, a Cambridge, UK biotech, is focused on repurposing known molecules for rare diseases. As part of their Rare Treatment Accelerator (RTA) programme, Healx is looking to partner with academic institutions who
TSC Alert
Repurposing Partnering Opportunity with Healx
Healx, a Cambridge, UK biotech, is focused on repurposing known molecules for rare diseases. As part of their Rare Treatment Accelerator (RTA) programme, Healx is looking to partner with academic institutions who
TSC Alert
COVID-19 Considerations for TSC Medical Professionals
UPDATE: The Department of Health & Human Services (HHS), in coordination with NIH and Operation Warp Speed, has launched a central web portal called Combat COVID (combatcovid.hhs.gov/).