The TSC Alliance® has developed several digital resources to share the most up-to-date information on tuberous sclerosis complex (TSC) and educate our constituents about the disease, standards of care and ongoing research efforts. See a summary of these resources below.
TSC Now – a podcast from the TSC Alliance featuring conversations with leading TSC researchers, clinicians, families and individuals affected by TSC and others. Topics include the latest breakthroughs in TSC research, common challenges faced by those affected, upcoming TSC Alliance initiatives, TSC treatment options and living with TSC. Listen and subscribe wherever you listen to podcasts.
TSC Waves – a quarterly e-newsletter for adults with TSC featuring articles written by adults with TSC, profiles on our Adult Regional Coordinators, a schedule of upcoming events and educational sessions relevant to adults, and resources to help adults cope with the myriad of manifestations and challenges they face living with TSC. Subscribe today.
TSC Academy – an online educational platform created for the tuberous sclerosis complex (TSC) community. The platform features lessons about the basic, preclinical and clinical science of TSC, how research helps us understand and treat the disease, how the TSC Alliance, Federal, state and local government, and other stakeholders work together to find a cure, and how you can play a role. Learn more and enroll today to see our latest courses.
Videos and Webinars – The TSC Alliance hosts regular educational webinars on a variety of TSC related topics of interest featuring known experts in the TSC community. These webinars include live question and answer opportunities with these experts. In 2021, the e-webinar series focuses on four topic areas:
- Life Stages of TSC (epilepsy, tumor growth, skin manifestations and education)
- Transition Workshops
- TSC-Associated Neuropsychiatric Disorders (TAND)
- Research Updates/Clinical Trials
In addition, the TSC Alliance will be hosting the 2022 World Tuberous Sclerosis Complex (TSC) Conference, co-hosted by Tuberous Sclerosis Complex International (TSCi), to be held July 28-31, 2022, at the Hilton Anatole in Dallas, TX. This transformative four-day event features world-renowned TSC expert clinicians and researchers, as well as individuals and families affected by TSC from around the word. For those who cannot attend, portions of the conference will be livestreamed on the TSC Alliance’s YouTube channel throughout the week. More information, including how to register, coming soon!