TSCi

Tuberous Sclerosis Complex International (TSCi) is a world-wide consortium of existing tuberous sclerosis complex associations and organizations, serving as an avenue to empower those affected by tuberous sclerosis complex (TSC), including individuals, families, caregivers, educators, and health care providers.

If you are looking for resources on TSC outside the US, please visit https://www.tscinternational.org/find-a-tsc-organization/  and contact your country organization for local information and resources. They will be best equipped to know what is available in your area.

If there is not a TSC organization in your country, please contact Katie Smith at ksmith@tscalliance.org to see how we can help.

The International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations are available here and would be helpful to share with your healthcare provider.

Northrup H et al. Updated International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations, Pediatric Neurology (August 2021).

Stuart C et al. Beyond the Guidelines: How We Can Improve Healthcare for People with Tuberous Sclerosis Complex Around the World, Pediatric Neurology (August 2021).