Stories of Hope

Max Lucca Bertolotti

13 years old
Miami, Florida

Diagnosed with TSC at two weeks old, Max is currently in the 8th grade. He has TSC1 and was born with multiple tubers in his brain, a SEGA brain tumor, two tumors in his heart, and skin lesions. Like many on a TSC journey, he has since developed other manifestations. And while he is on the milder side of the spectrum, Max suffers from severe TSC-associated neuropsychiatric disorders (TAND) issues.

“TSC is a disorder that affects my behavior. I don’t like it or understand it, but I’m just going to go with it,” Max said.