Upcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Read More
Upcoming Community Events
Chicago Post-Holiday Party Sunday, January 12, 2020, 5 to 7:30 pm Alexian Brothers Medical Center Elk Grove Village, IL 60007 Please RSVP by January 6, 2020 with your food contribution and number of guests to Geri Greenberg at tscgreaterchicago@icloud.com or (847) 272-7747. Chicago Tuberous Sclerosis Complex Grandparents Pizza Night Thursday, January 23, 2020 Location TBD after RSVP Please RSVP by January 13, 2020 to Geri Greenberg at tscgreaterchicago@icloud.com or (847) 272-7747. Read More
Join Us for a Free Webinar on TSC-Associated Neuropsychiatric Disorders (TAND)
TAND Webinar: Effective Behavioral Treatments Presented by Dr. Nathan Call Read More
Upcoming Community Events
TSC Family Fun Day at Pullen Park Sunday, October 20, 2019 Pullen Park; Carousel Shelter 520 Ashe Ave Raleigh, NC 27606 Questions and RSVP: Karen Johnston at karen.m.whittington@gmail.com or (919) 451-1842 Southern California (Teen & Adult) Evening of Bowling Sunday, November 17, 2019 Pins & Pockets Entertainment 32250 Mission Trail Lake Elsinore, CA 92530 Please RSVP by November 12 to Tara Palage at tara.palage@yahoo.com or (619) 977-4114 Read More
Join Us for a Free Webinar on SUDEP
Sudden Unexpected Death in Epilepsy (SUDEP) Presented by Douglas Smith, MD Minnesota Epilepsy Group Monday, October 21 8 pm ET, 7 pm CT, 6 pm MT, 5 pm PT Access Code: 597-481-277 Read More
Join Us at the Regional TSC & LAM Conference in Los Angeles!
The fifth and final Regional TSC and LAM Conference, co-hosted with The LAM Foundation, is Saturday, November 2 starting at 8:30 AM at the UCLA Meyer & Renee Luskin Conference Center in Los Angeles, CA! This free one-day conference will feature local leading researchers and clinicians specializing in TSC and lymphangioleiomyomatosis (LAM). Register Now Read More
Upcoming Step Forward to Cure TSC Walks
Sometimes simple things can make a huge difference. Like simple steps, taken by caring people on a mission to improve the lives of those living with tuberous sclerosis complex (TSC). Step Forward to Cure TSC® is the TSC Alliance’s largest national fundraising program, featuring a series of walks organized by local volunteers and families who are affected by TSC. Successfully launched in more than 30 communities across the United States, this grassroots effort not only generates vital funds for TSC research and support programs but also raises awareness about this disorder. Read More
Upcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Thursday, October 24, 2019 “Open Forum” presented by Adult Regional Coordinators 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, November 14, 2019 “Sleep Issues and TSC” presented by Tanjala T. Gipson, MD; Director, TAND Clinic at LeBonheur Children’s Hospital 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) To participate simply use the toll-free call-in number: 1-866-613-5223 then enter access code: 4334003#. If you have questions or would like... Read More
Upcoming Adult Topic Calls
Are you an independent or semi-independent adult with TSC? If so, please join us for one of our upcoming free, one-hour informational calls: Thursday, September 26, 2019 “LAM and TSC” presented by Karen D. Agricola, APRN, FNP-BC, Cincinnati Children’s Tuberous Sclerosis Clinic 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, October 24, 2019 “Open Forum” presented by Adult Regional Coordinators 8:00 P.M. (Eastern), 7:00 P.M. (Central), 6:00 P.M. (Mountain), 5:00 P.M. (Pacific) Thursday, November 14, 2019 “Sleep Issues and TSC” presented by Tanjala T. Gipson, MD; Director, TAND Clinic at LeBonheur Children’s Hospital 8:00 P.M.... Read More
Upcoming Community Events
Northern California Picnic Saturday, August 25, 2019, 11 AM – 2 PM Contact: Lilian Ansari, (510) 388-6889 Family style picnic with main dish provided. Please sign up to bring a side/dessert. Youmans 14th Annual Family & Friends Tuberous Sclerosis Fundraising BBQ (Lakewood, CO) Saturday, September 7, 2019, 2 – 8 PM Join Bill and Nancy Youmans for a meal, friendship, fun and most importantly to join them in this fight against tuberous sclerosis complex (TSC). In addition to great food, door prizes and other fundraising activities will benefit the TSC Alliance. Learn More 13th Annual Heather Joy TS/LAM Golf Outing (Bristol, WI) Saturday,... Read More