TSC Matters

Ongoing Early Intervention and Autism Trials

See below for ongoing trials.

SPARK for Autism Research Study

Boston Children’s Hospital would like to invite individuals of all ages diagnosed with autism as well as their family members to join SPARK!  SPARK, sponsored by the Simons Foundation Autism Research Initiative, has the mission of speeding up research and advancing understanding of autism by building the nation’s largest autism study!    Registration and information can be found online at www.SPARKforAUTISM.org/BCH.   Individuals with autism will receive gift cards valued at up to a total of $50 for participation. By dramatically increasing the number of research participants, SPARK aims to help facilitate research that has not yet been possible.

Questions? Contact the SPARK team at Boston Children’s Hospital at: SPARK@childrens.harvard.edu or call (617) 355-8300.

JETS Study

Researchers are conducting a clinical trial of an early behavioral intervention in toddlers ages 12-36 months with TSC! The free intervention is provided both in-person and remotely through video conferencing. Participants will also receive comprehensive evaluations and reports. To learn more about the study, visit us at www.JETSstudy.org or email JETSstudy@gmail.com.

The Learning Brain Study at Boston Children’s Hospital

Researchers at Boston Children’s Hospital are currently enrolling kids ages 2-12 with a diagnosis of TSC to participate in The Learning Brain Study!

In collaboration with MIT, the goal of the study is to further understand how the brain changes as it learns. By gaining insight into how the brain changes with experience, they aim to improve identification methods for children with TSC and other neurodevelopmental disorders.

Participation includes three consecutive visits (20-30min each) to the Labs of Cognitive Neuroscience at Boston Children’s Hospital. Visits will consist of safe and non-intrusive methods of brain activity measurements.

Participants receive $50 as a thank you for your time. Boston Children’s Hospital also provides free parking, childcare, and can cover travel and accommodation costs.

Please email learningbrainstudy@childrens.harvard.edu or call (617) 893-3749 for more information.