TSC Matters is a bimonthly e-newsletter featuring news from the TS Alliance, TSC research updates, upcoming TS Alliance events and more! Subscribe to stay up-to-date on everything happening at the TS Alliance.

Thank You Future Leaders Class of 2020-2021

The six young adults in the Future Leaders Class of 2020-2021 greatly exceeded the requirements of the program and have been instrumental in moving it forward. Too often young adults with TSC feel alone with their disease, but they helped create a space for young adults with TSC to connect with each other and share resources.  Their class inspired the entire TSC community and continue to inspire all of us at the TSC Alliance.Read More

TSC Researcher Spotlight – Katarzyna “Kasia” Klonowska

Katarzyna “Kasia” Klonowska, PhD, is a 2020 recipient of the TSC Alliance® Postdoctoral Fellowship Award. Kasia is a post-doctoral fellow in the laboratory of David Kwiatkowski, MD, PhD at Brigham and Women’s Hospital. Postdoctoral Fellowship awards are intended to provide funding for an individual who has recently earned a PhD or MD degree and support any type of basic or translational research relevant to tuberous sclerosis complex (TSC) that provides an outstanding opportunity for the trainee’s professional growth.Read More

August Volunteer Opportunities

Champion Our Cause: Join the TSC Alliance Volunteer Movement “The smallest act of kindness is worth more than than the grandest intention.”  – Oscar Wilde The TSC Alliance thrives on the service of selfless individuals across the country who give of their time, talent, and resources to help us achieve our mission to find a cure for TSC and improve the lives of those affected. Without them, we would not be where we are today.Read More

TSC Researcher Spotlight – Felix Chan, PhD

The Developmental Synaptopathies Consortium (DSC) is composed of a group of medical centers throughout the US studying three related rare genetic syndromes that often cause autism spectrum disorder and intellectual disability, including tuberous sclerosis complex (TSC). These rare diseases seem to affect certain shared pathways influencing the development of brain connections, or synapses. In May, Felix Chan, PhD, received the DSC’s first-ever TSC Alliance Young Investigator Award. Felix is a post-doctoral fellow in the laboratory of Judy Liu, MD, PhD in the Department of Molecular, Cellular Biology and Biochemistry at Brown University. The TSC Alliance Young Investigator Award is a...Read More