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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260401
DTEND;VALUE=DATE:20260501
DTSTAMP:20260403T151748
CREATED:20260323T195127Z
LAST-MODIFIED:20260323T195127Z
UID:10000176-1775001600-1777593599@www.tscalliance.org
SUMMARY:Coffee for a Cause
DESCRIPTION:What if your morning coffee could make an impact? Until April 30\, 33% of every Coffee for a Cause Premium Roast (12oz) purchased through our fundraising page will be donated to TSC Alliance! Pick your roast–Dark\, Medium\, Light\, or Decaf: each bag is roasted on demand and shipped fresh to your door. \nSupport a great cause while enjoying premium coffee. Purchase your coffee here.
URL:https://www.tscalliance.org/event/coffee-for-a-cause/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260411T110000
DTEND;TZID=America/North_Dakota/New_Salem:20260411T130000
DTSTAMP:20260403T151748
CREATED:20260116T012835Z
LAST-MODIFIED:20260330T193312Z
UID:10000164-1775905200-1775912400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Houston\, TX
DESCRIPTION:Join us in Sugar Land\, TX on Saturday\, April 11\, 2026\, at Brazos River Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Houston\, TX area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-houston-tx/
LOCATION:Brazos River Park\, 18427 Southwest Freeway\, Sugar Land\, TX\, 77479\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:29.5711823;-95.6611539
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Brazos River Park 18427 Southwest Freeway Sugar Land TX 77479 United States;X-APPLE-RADIUS=500;X-TITLE=18427 Southwest Freeway:geo:-95.6611539,29.5711823
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260413T200000
DTEND;TZID=America/New_York:20260413T210000
DTSTAMP:20260403T151748
CREATED:20251202T194245Z
LAST-MODIFIED:20251202T194245Z
UID:10000151-1776110400-1776114000@www.tscalliance.org
SUMMARY:Ask an Advocate - April 2026
DESCRIPTION:Join us on Monday\, April 13\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the April 13\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-april-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T200000
DTEND;TZID=America/New_York:20260415T210000
DTSTAMP:20260403T151748
CREATED:20251124T203722Z
LAST-MODIFIED:20251124T203722Z
UID:10000145-1776283200-1776286800@www.tscalliance.org
SUMMARY:Adult Topic Call - April 2026
DESCRIPTION:The April topic call will take place on Wednesday\, April 15\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-april-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260417
DTEND;VALUE=DATE:20260418
DTSTAMP:20260403T151748
CREATED:20260225T165505Z
LAST-MODIFIED:20260225T165505Z
UID:10000170-1776384000-1776470399@www.tscalliance.org
SUMMARY:Panda Express Virtual Fundraiser
DESCRIPTION:Craving some delicious Panda Express? Here’s a perfect excuse to indulge! Order online for pickup or takeout at any Panda Express location nationwide on Friday\, April 17\, and 33% of your purchase will be donated to the TSC Alliance. \n\nSimply use code 9013288 in the Fundraiser Code box at checkout to make a difference with every bite.\n\nLearn more: https://www.community-fundraiser.com/…/4c905…/en/landing
URL:https://www.tscalliance.org/event/panda-express-virtual-fundraiser/
CATEGORIES:Community Gatherings
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260418T103000
DTEND;TZID=America/New_York:20260418T133000
DTSTAMP:20260403T151748
CREATED:20260116T011756Z
LAST-MODIFIED:20260330T174832Z
UID:10000163-1776508200-1776519000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Nashville\, TN
DESCRIPTION:Join us in Nashville\, TN on Saturday\, April 18\, 2026\, at Edwin Warner Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Tennessee area—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:30 am – Registration begins\n11:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-nashville-tn-2/
LOCATION:Edwin Warner Park\, Vaughn Road\, Nashville\, TN\, 37221\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:36.0500101;-86.9041463
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Edwin Warner Park Vaughn Road Nashville TN 37221 United States;X-APPLE-RADIUS=500;X-TITLE=Vaughn Road:geo:-86.9041463,36.0500101
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260419T160000
DTEND;TZID=America/Los_Angeles:20260419T190000
DTSTAMP:20260403T151748
CREATED:20260122T010154Z
LAST-MODIFIED:20260122T010154Z
UID:10000165-1776614400-1776625200@www.tscalliance.org
SUMMARY:Comedy for a Cure®
DESCRIPTION:The 25th Annual Comedy for A Cure® will be held Sunday\, April 19\, 2026 at the iconic Irvine Improv at Irvine Spectrum Center. \nThis year’s headliner\, the legendary Rita Rudner\, will be joined by Mo Collins\, Wendy Liebman\, Craig Shoemaker\, and Priya Mehta. \nDon’t miss out on this incredible event supporting the TSC community! Learn more at www.comedyforacure.org. \nPURCHASE YOUR TICKETS HERE
URL:https://www.tscalliance.org/event/comedy-for-a-cure/
LOCATION:Irvine Imrov\, 527 Spectrum Center Dr\, Irvine\, CA\, 92618\, United States
CATEGORIES:Comedy for a Cure
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/C4C26_1080x1080-3.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T073000
DTEND;TZID=America/Los_Angeles:20260426T100000
DTSTAMP:20260403T151748
CREATED:20260115T220152Z
LAST-MODIFIED:20260331T191102Z
UID:10000161-1777188600-1777197600@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Renton\, WA
DESCRIPTION:Join us in Renton\, WA on Saturday\, April 26\, 2026\, at Renton Community Center for Step Forward to Cure TSC®! This walk brings together the TSC community from the Pacific Northwest—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n7:30 am – Registration begins\n8:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-renton-wa-2/
LOCATION:Renton Community Center\, Maple Valley Highway\, Renton\, WA\, 98057\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:47.4817324;-122.1974966
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Renton Community Center Maple Valley Highway Renton WA 98057 United States;X-APPLE-RADIUS=500;X-TITLE=Maple Valley Highway:geo:-122.1974966,47.4817324
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260426T093000
DTEND;TZID=America/New_York:20260426T120000
DTSTAMP:20260403T151748
CREATED:20260114T214432Z
LAST-MODIFIED:20260331T194026Z
UID:10000155-1777195800-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Rockville\, MD
DESCRIPTION:Join us in Rockville\, MD on Sunday\, April 26\, 2026 at Charles E. Smith Jewish Day School for Step Forward to Cure TSC®! This event will bring together Maryland\, Metro DC\, and surrounding communities for an incredible day of connection and impact. \n 9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-rockville-md-2/
LOCATION:Charles E. Smith Jewish Day School\, Hunters Lane\, Rockville\, MD\, 20852\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.0494131;-77.1001988
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Charles E. Smith Jewish Day School Hunters Lane Rockville MD 20852 United States;X-APPLE-RADIUS=500;X-TITLE=Hunters Lane:geo:-77.1001988,39.0494131
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260426T100000
DTEND;TZID=America/Los_Angeles:20260426T120000
DTSTAMP:20260403T151748
CREATED:20260205T214857Z
LAST-MODIFIED:20260330T184024Z
UID:10000168-1777197600-1777204800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Pasadena\, CA
DESCRIPTION:Join us in Pasadena\, CA on Sunday\, April 26\, 2026\, at the Rose Bowl Stadium – Court of Champions for Step Forward to Cure TSC®! \nThe Step Forward to Cure TSC® Walk is more than an event—it’s a chance to connect with people who truly understand the challenges and triumphs of living with TSC. Together\, we raise awareness\, build community\, and take meaningful steps toward a brighter future for everyone affected by TSC —locally and nationwide. Whether you’re walking for a loved one\, supporting a friend\, or standing up for the TSC community\, your participation makes a real and lasting impact. This walk is a celebration of strength\, resilience\, and hope\, honoring those affected while bringing people together around a shared purpose. Join us at the at the Rose Bowl in Pasadena\, CA for the Step Forward to Cure TSC Walk and help ensure that no one faces TSC alone. Together\, we move closer to a world without TSC. \nThis event will take place rain or shine! For more details or to volunteer\, please contact: Rob Grandia at grandia@verizon.net. \n10:00 am – Registration begins\n \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-pasadena-ca/
LOCATION:Rose Bowl Stadium – Court of Champions\, 1001 Rose Bowl Dr\, Pasadena\, CA\, 91103\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/02/UPDATED-Pasadena-2-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260426T110000
DTEND;TZID=America/Chicago:20260426T140000
DTSTAMP:20260403T151748
CREATED:20260130T191208Z
LAST-MODIFIED:20260330T192824Z
UID:10000167-1777201200-1777212000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Chicago\, IL
DESCRIPTION:Join us in Chicago\, IL on Sunday\, April 26\, 2026\, at Lake Shore Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Chicago\, IL area —all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-chicago-il-2/
LOCATION:Lake Shore Park\, 808 North Lake Shore Drive\, Chicago\, IL\, 60611\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
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ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.8973151;-87.6199492
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Lake Shore Park 808 North Lake Shore Drive Chicago IL 60611 United States;X-APPLE-RADIUS=500;X-TITLE=808 North Lake Shore Drive:geo:-87.6199492,41.8973151
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T200000
DTEND;TZID=America/New_York:20260429T210000
DTSTAMP:20260403T151748
CREATED:20260319T174918Z
LAST-MODIFIED:20260319T175230Z
UID:10000171-1777492800-1777496400@www.tscalliance.org
SUMMARY:TSC 101 for Newly Diagnosed Individuals or Families
DESCRIPTION:The first pre-conference webinar\, TSC 101 for Newly Diagnosed Individuals or Families\, will take place on Wednesday\, April 29\, 2026\, at 8:00 pm ET\, and feature moderator Jennifer McCrave\, RN\, BSN\, CNRN and presenters Raj Rajaraman\, MD\, MS and Elizabeth Thiele\, MD\, PhD. This webinar will provide an overview of TSC and the importance of building a strong network of care.\n \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/tsc-101-for-newly-diagnosed-individuals-or-families/
CATEGORIES:Webinar,2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/TSC-101-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260502T093000
DTEND;TZID=America/New_York:20260502T120000
DTSTAMP:20260403T151748
CREATED:20260115T220833Z
LAST-MODIFIED:20260115T220833Z
UID:10000162-1777714200-1777723200@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Charlotte\, NC
DESCRIPTION:Join us in Charlotte\, NC on Saturday\, May 2\, 2026\, at Park Road Park for Step Forward to Cure TSC®! This walk brings together the TSC community from the Carolinas —united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:30 am – Registration begins\n10:30 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-charlotte-nc/
LOCATION:Park Road Park\, 6220 Park Rd\, Charlotte\, NC\, 28210\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Charlotte-NC-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20260503T090000
DTEND;TZID=America/North_Dakota/New_Salem:20260503T110000
DTSTAMP:20260403T151748
CREATED:20260129T222519Z
LAST-MODIFIED:20260205T215308Z
UID:10000166-1777798800-1777806000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - DFW\, TX
DESCRIPTION:Join us in Dallas-Fort Worth\, TX on Sunday\, May 3\, 2026\, at Doubletree Ranch Park for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n9:00 am – Registration begins\n10:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-dfw-tx/
LOCATION:Doubletree Ranch Park\, 310 Highland Village Rd\, Highland Village\, TX\, 75077\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/01/DFW-1-scaled.jpeg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260511T130000
DTEND;TZID=America/New_York:20260511T140000
DTSTAMP:20260403T151748
CREATED:20260319T175624Z
LAST-MODIFIED:20260319T181122Z
UID:10000172-1778504400-1778508000@www.tscalliance.org
SUMMARY:Consensus Guidelines: What You Need to Know
DESCRIPTION:The second pre-conference webinar\, Consensus Guidelines: What You Need to Know\, will take place on Monday\, May 11\, 2026\, at 1:00 pm ET \, and feature moderator Chris Kingswood\, MD and presenters Darcy Krueger MD\, PhD; and Hope Northrup\, MD. This webinar will provide an overview of the latest Consensus Guidelines for the diagnosis\, surveillance\, and management of TSC. Developed by international experts and updated regularly\, these guidelines offer critical\, evidence-based recommendations to help individuals with TSC receive comprehensive and consistent care.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/consensus-guidelines-what-you-need-to-know/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/ConsensusGdlns-1080x1080-1.jpg
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T083000
DTEND;TZID=America/New_York:20260516T120000
DTSTAMP:20260403T151748
CREATED:20260330T154437Z
LAST-MODIFIED:20260330T154437Z
UID:10000179-1778920200-1778932800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® – Tampa\, FL
DESCRIPTION:Join us in Tampa\, FL on Saturday\, May 16\, 2026\, at the Shanna and Bryan Glazer JCC for Step Forward to Cure TSC®! \nThis beautiful venue provides the perfect backdrop for a day dedicated to hope\, strength\, and community. Whether you are a long-time supporter or joining us for the first time\, we can’t wait to welcome you for a morning of fun and meaningful connection. \nHow can you get involved?\nSuccess starts with you! By registering early\, you help us build momentum for our biggest year yet. \nREGISTER HERE\n 
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-tampa-fl-2/
LOCATION:Shanna and Bryan Glazer JCC\, 522 N Howard Ave\, Tampa\, FL\, 33606\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/03/Tampa-FL-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260403T151748
CREATED:20260115T201528Z
LAST-MODIFIED:20260115T201528Z
UID:10000156-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Perry\, OH
DESCRIPTION:Join us in Perry\, OH on Saturday\, May 16\, 2026 at Perry High School for Step Forward to Cure TSC®! This Northern Ohio walk is easily accessible for our Ohio\, Michigan\, Indiana\, and surrounding communities\, making it a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-perry-oh-2/
LOCATION:Perry High School\, 1 Success Blvd\, Perry\, Ohio\, 44081
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Perry-OH-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.7736217;-81.140118
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Perry High School 1 Success Blvd Perry Ohio 44081;X-APPLE-RADIUS=500;X-TITLE=1 Success Blvd:geo:-81.140118,41.7736217
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T130000
DTSTAMP:20260403T151748
CREATED:20260115T214033Z
LAST-MODIFIED:20260115T214033Z
UID:10000157-1778925600-1778936400@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Yuba City\, CA
DESCRIPTION:Join us in Yuba City\, CA on Saturday\, May 16\, 2026\, at Dibra S. Bains Park for Step Forward to Cure TSC®! This Northern California walk is a perfect opportunity to come together in person—or participate virtually if you can’t make it onsite. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-yuba-city-ca/
LOCATION:Dibra S. Bains Park\, 1340 Harter Pkwy\, Yuba City\, CA\, 95993\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Yuba-City-CA-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260403T151748
CREATED:20260115T214628Z
LAST-MODIFIED:20260211T151852Z
UID:10000158-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - West Chester\, PA
DESCRIPTION:*DATE CHANGE* \nJoin us in West Chester\, PA on Saturday\, May 16\, 2026\, at East High School for Step Forward to Cure TSC®! This walk brings together the TSC community from near and far—including many traveling from out of state—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-west-chester-pa-2/
LOCATION:East High School\, Ellis Lane\, West Chester\, PA\, 19380\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/West-Chester-PA-1-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.9799462;-75.565784
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=East High School Ellis Lane West Chester PA 19380 United States;X-APPLE-RADIUS=500;X-TITLE=Ellis Lane:geo:-75.565784,39.9799462
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T110000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260403T151748
CREATED:20260115T215750Z
LAST-MODIFIED:20260116T013129Z
UID:10000160-1778929200-1778940000@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Brookfield\, CT
DESCRIPTION:Join us in Brookfield\, CT on Saturday\, May 16\, 2026\, at Cadigan Park for Step Forward to Cure TSC®! This walk brings together the TSC community from Connecticut—united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n11:00 am – Registration begins\n12:00 pm – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-brookfield-ct-2/
LOCATION:Cadigan Park\, 465 Candlewood Lake Road\, Brookfield\, CT\, 06804\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Brookfield-CT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:41.483148;-73.4331221
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Cadigan Park 465 Candlewood Lake Road Brookfield CT 06804 United States;X-APPLE-RADIUS=500;X-TITLE=465 Candlewood Lake Road:geo:-73.4331221,41.483148
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260403T151748
CREATED:20251124T203847Z
LAST-MODIFIED:20251124T203847Z
UID:10000146-1779307200-1779310800@www.tscalliance.org
SUMMARY:Adult Topic Call - May 2026
DESCRIPTION:The May topic call will take place on Wednesday\, May 20\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-may-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260603T120000
DTEND;TZID=America/New_York:20260603T130000
DTSTAMP:20260403T151748
CREATED:20260319T180434Z
LAST-MODIFIED:20260319T181130Z
UID:10000173-1780488000-1780491600@www.tscalliance.org
SUMMARY:Seizure Types in TSC
DESCRIPTION:The third pre-conference webinar\, Seizure Types in TSC\, will take place on Wednesday\, June 3\, 2026\, at 12:00 pm ET\, and will address seizure types across the lifespan. This webinar will feature moderator Shelly Meitzler and presenters Sam Amin\, MBCHB\, MRCPCH\, MSc\, PhD and E. Martina Bebin\, MD\, MPA. \nREGISTER HERE
URL:https://www.tscalliance.org/event/seizure-types-in-tsc/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/SeizureTypes-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260606T100000
DTEND;TZID=America/New_York:20260606T130000
DTSTAMP:20260403T151748
CREATED:20260115T215300Z
LAST-MODIFIED:20260115T215300Z
UID:10000159-1780740000-1780750800@www.tscalliance.org
SUMMARY:Step Forward to Cure TSC® - Murray\, UT
DESCRIPTION:Join us in Murray\, UT on Saturday\, June 6\, 2026\, at Wheeler Farm Outdoor Education Center for Step Forward to Cure TSC®! This walk brings together the TSC community from Utah—all united by hope\, connection\, and the drive to make a difference. Whether you join us in person or participate virtually\, your presence matters. \n10:00 am – Registration begins\n11:00 am – Walk begins \nWhether you join us in person or virtually\, this walk is a powerful way to unite the TSC community\, raise awareness\, and move us closer to a cure—together. \nREGISTER HERE
URL:https://www.tscalliance.org/event/step-forward-to-cure-tsc-murray-ut/
LOCATION:Wheeler Farm Outdoor Education Center\, 6475 900 E\, Murray\, UT\, 84121\, United States
CATEGORIES:Step Forward to Cure TSC Walk-Run-Ride,Step Forward to Cure TSC
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2026/01/Murray-UT-scaled.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260615T200000
DTEND;TZID=America/New_York:20260615T210000
DTSTAMP:20260403T151748
CREATED:20251202T194541Z
LAST-MODIFIED:20251202T194541Z
UID:10000152-1781553600-1781557200@www.tscalliance.org
SUMMARY:Ask an Advocate - June 2026
DESCRIPTION:Join us on Monday\, June 15\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the June 15\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-june-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T200000
DTEND;TZID=America/New_York:20260617T210000
DTSTAMP:20260403T151748
CREATED:20260319T180735Z
LAST-MODIFIED:20260319T181138Z
UID:10000174-1781726400-1781730000@www.tscalliance.org
SUMMARY:Genetics Made Simple
DESCRIPTION:The fourth pre-conference webinar\, Genetics Made Simple\, will take place on Wednesday\, June 17\, 2026\, at 8:00 pm ET\, and feature moderator Danielle Nolan\, MD and presenter Hope Northrup\, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens\, why it varies from person to person\, and what this means for families and individuals.  \nREGISTER HERE
URL:https://www.tscalliance.org/event/genetics-made-simple/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/Genetics-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260630T200000
DTEND;TZID=America/New_York:20260630T210000
DTSTAMP:20260403T151748
CREATED:20260319T181039Z
LAST-MODIFIED:20260319T181535Z
UID:10000175-1782849600-1782853200@www.tscalliance.org
SUMMARY:mTOR Inhibitors: Past\, Present and Future
DESCRIPTION:The fifth and final pre-conference webinar\, mTOR Inhibitors: Past\, Present and Future\, will take place on Tuesday\, June 30\, 2026\, at 8:00 pm ET\, and feature moderator Elizabeth Skufca and presenters David Ritter\, MD\, PhD and Michael Wong\, MD\, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC\, from their discovery to current clinical use in managing SEGAs\, kidney tumors\, epilepsy\, skin\, and more. Learn about side effects\, long-term outcomes\, and what the future holds—including new research and emerging therapies.   \nREGISTER HERE
URL:https://www.tscalliance.org/event/mtor-inhibitors-past-present-and-future/
CATEGORIES:2026 TSC World Conference,2026 TSC World Conference Webinar Series
ATTACH;FMTTYPE=image/jpeg:https://www.tscalliance.org/wp-content/uploads/2026/03/mTOR-1080x1080-1.jpg
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260730
DTEND;VALUE=DATE:20260802
DTSTAMP:20260403T151748
CREATED:20241030T182013Z
LAST-MODIFIED:20260318T193135Z
UID:10000086-1785369600-1785628799@www.tscalliance.org
SUMMARY:2026 TSC World Conference
DESCRIPTION:Register today for the 2026 TSC World Conference from July 30 to August 1\, 2026\, at the Gaylord Rockies Resort & Convention Center in Aurora\, CO! Conference programming will begin at 1 pm MT on Thursday\, July 30 and will conclude with a dinner and celebration in the evening on Saturday\, August 1. \n \nThis conference\, held every 4-5 years\, promises to be one of the largest tuberous sclerosis complex (TSC) gatherings around the globe\, covering all aspects of TSC across the lifespan\, including: \n\nThe latest and most comprehensive TSC diagnosis\, treatment and research information from the world’s leading TSC clinicians and scientists\nAssistance through the myriad of educational\, transitional\, financial and emotional challenges of TSC\n\nIn addition\, as a conference attendee you will receive: \n\nThe opportunity to meet hundreds of other families and individuals with TSC and make life-long connections\nA better understanding of the role the TSC Alliance and Tuberous Sclerosis Complex International (TSCi) play in research\, support and government advocacy both in the United States and around the world\nQ&A sessions with expert clinicians and researchers\nProfessionally staffed day camps for children with special needs\, siblings and dependent adults\n\nScholarships will be available for individuals and families who would otherwise be unable to attend the 2026 TSC World Conference. Costs eligible for scholarship coverage include conference registration\, Day Camp\, and/or hotel. Travel to and from the conference is not eligible and must be covered by the attendee(s). \nThe scholarship application window has closed. Applicants will be notified no later than the end of March 2026. \nQuestions about scholarships? Please contact worldconference@tscalliance.org \nJoin us for the 2026 TSC World Conference Webinar Series!\nJoin the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference\, taking place July 30-August 1\, 2026. Participation is not limited to conference attendees. You are welcome to join the webinar series even if you do not plan to attend the 2026 TSC World Conference. We encourage you to join any sessions that may be helpful for yourself or those you support. \nLearn more about the webinar series
URL:https://www.tscalliance.org/event/2026-tsc-world-conference/
LOCATION:Gaylord Rockies Resort & Convention Center\, North Gaylord Rockies Boulevard 6700\, Aurora\, CO\, 80019\, United States
CATEGORIES:2026 TSC World Conference
ATTACH;FMTTYPE=image/png:https://www.tscalliance.org/wp-content/uploads/2024/10/2026TSCWorldConfLogo-solid-fullstacked.png
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
GEO:39.8175697;-104.7509312
X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=Gaylord Rockies Resort & Convention Center North Gaylord Rockies Boulevard 6700 Aurora CO 80019 United States;X-APPLE-RADIUS=500;X-TITLE=North Gaylord Rockies Boulevard 6700:geo:-104.7509312,39.8175697
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260810T200000
DTEND;TZID=America/New_York:20260810T210000
DTSTAMP:20260403T151748
CREATED:20251202T194734Z
LAST-MODIFIED:20251202T194734Z
UID:10000153-1786392000-1786395600@www.tscalliance.org
SUMMARY:Ask an Advocate - August 2026
DESCRIPTION:Join us on Monday\, August 10\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the August 10\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-august-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T200000
DTEND;TZID=America/New_York:20260916T210000
DTSTAMP:20260403T151748
CREATED:20251124T204336Z
LAST-MODIFIED:20251124T204336Z
UID:10000147-1789588800-1789592400@www.tscalliance.org
SUMMARY:Adult Topic Call - September 2026
DESCRIPTION:The September topic call will take place on Wednesday\, September 16\, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. \nREGISTER HERE
URL:https://www.tscalliance.org/event/adult-topic-call-september-2026/
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T200000
DTEND;TZID=America/New_York:20261012T210000
DTSTAMP:20260403T151748
CREATED:20251202T194928Z
LAST-MODIFIED:20251202T194928Z
UID:10000154-1791835200-1791838800@www.tscalliance.org
SUMMARY:Ask an Advocate - October 2026
DESCRIPTION:Join us on Monday\, October 12\, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. \nRegister for the October 12\, 2026 Ask an Advocate session here.
URL:https://www.tscalliance.org/event/ask-an-advocate-october-2026/
CATEGORIES:Ask an Advocate Series
ORGANIZER;CN="TSC Alliance":MAILTO:info@tscalliance.org
END:VEVENT
END:VCALENDAR