What is TSC?

Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,


Understanding TSC

Learn about the disease, the different manifestations, how it is diagnosed and treatment options available. Click on a link below to learn more. What is TSC? Genetics Clinical Manifestations Prognosis

TSC Alert

What’s With the New Look?

On Sunday May 16, the Tuberous Sclerosis Alliance formally unveiled a new brand and new name: TSC Alliance. We also introduced a new tagline, “Hope no matter how complex.”


Privacy Policy

Approved by the TSC Alliance Executive Committee: May 4, 2018 Revisions Approved by Executive Committee:  January 30, 2019 The TSC Alliance (“TSC Alliance,” or “we”, “us”, “our”) respects your privacy. 


Honor a loved one

Tributes Tribute gifts can be made in honor or in memory of individuals. It is a wonderful way to send a birthday or anniversary wish, or congratulations for retirement, a


Preclinical research

“The TSC Alliance and the Preclinical Consortium have been instrumental partners in establishing the preclinical models and data necessary for development of our candidate therapeutic. The historical data sets, knowledge


About the TSC Alliance

The TSC Alliance is an internationally recognized nonprofit that does everything it takes to improve the lives of people with TSC. We drive research, improve quality care and access and


Bcureful travel & lodging assistance

The Bcureful Travel Fund® at the TSC Alliance underwrites the TSC Travel and Lodging Patient Assistance Program, which is administered by the National Organization for Rare Disorders (NORD). This travel


Grief & Bereavement

All caregivers should prepare for the possibility of grief or bereavement during the care of a loved one. Caregivers naturally become deeply emotionally invested in the individuals for whom they


Caregiver Mental Health

Being a caregiver can be equally rewarding and overwhelming at the same time – it is completely normal to feel this way. Many caregivers start this journey as parents, yet