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What is TSC?
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,
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Consensus Guidelines: What You Need to Know
The second pre-conference webinar, Consensus Guidelines: What You Need to Know, took place on Monday, May 11, 2026, at 1:00 pm ET , and featured moderator Chris Kingswood, MD and presenters Darcy Krueger
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Understand TSC
Learn about the disease, the different manifestations, how it is diagnosed and treatment options available. Click on a link below to learn more. What is TSC? Genetics Clinical Manifestations Prognosis
TSC Alert
What’s With the New Look?
On Sunday May 16, the Tuberous Sclerosis Alliance formally unveiled a new brand and new name: TSC Alliance. We also introduced a new tagline, “Hope no matter how complex.”
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Participate in the TSC Alliance Biosample Repository at the 2026 TSC World Conference!
Are you attending the 2026 TSC World Conference and want to participate in the TSC Natural History Database and Biosample Repository? Register for one of our consent webinars taking place
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Coffee for a Cause
What if your morning coffee could make an impact? Until April 30, 33% of every Coffee for a Cause Premium Roast (12oz) purchased through our fundraising page will be donated
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mTOR Inhibitors: Past, Present and Future
The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, will take place on Tuesday, June 30, 2026, at 8:00 pm ET, and feature moderator Elizabeth Skufca and presenters David
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Genetics Made Simple
The fourth pre-conference webinar, Genetics Made Simple, will take place on Wednesday, June 17, 2026, at 8:00 pm ET, and feature moderator Danielle Nolan, MD and presenter Hope Northrup, MD. This webinar will
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Join us for the 2026 TSC World Conference Webinar Series!
Join the TSC Alliance for five webinars that will help you build a strong foundation of knowledge ahead of the TSC World Conference, taking place July 30-August 1, 2026. Participation is not limited to conference
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Ask an Advocate – June 2026
Join us on Monday, June 15, 2026 at 8 pm ET for a practical and empowering Ask an Advocate session to learn how to create a One‑Page Description, a simple,