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What is TSC?
Tuberous sclerosis complex (TSC) is a genetic disorder that causes tumors to form in many different organs, primarily in the brain, eyes, heart, kidney, skin, and lungs. Despite its complexity,
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Understanding TSC
Learn about the disease, the different manifestations, how it is diagnosed and treatment options available. Click on a link below to learn more. What is TSC? Genetics Clinical Manifestations Prognosis
TSC Alert
What’s With the New Look?
On Sunday May 16, the Tuberous Sclerosis Alliance formally unveiled a new brand and new name: TSC Alliance. We also introduced a new tagline, “Hope no matter how complex.”
Event
Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery
Join the Pediatric Epilepsy Surgery Alliance for a special webinar with Dr. Shafali Jeste, Power Hour: Understanding Neurodevelopmental Disorders After Epilepsy Surgery, on Monday, June 30, 2025, at 2 pm PT. This webinar is co-hosted
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2025 Transition Webinar Series – Maximizing Independence and Financial Security: A Comprehensive Guide to ABLE Accounts for Individuals with Disabilities
Join the TSC Alliance for the third webinar of the 2025 Transition Webinar Series! This webinar will take place on Tuesday, June 17, 2025 at 7 pm ET. This webinar
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Terms of Use
Approved by Executive Committee: May 2, 2025 The following Terms of Use are entered into by and between You and the TSC Alliance (the “TSC Alliance”, “we”, or “us”). The
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Update on TSCRP Funding
UPDATE (5/5/25) Dear TSC community members, The TSC Alliance and our grassroots volunteers across the country continue to strongly advocate for continued federal funding for tuberous sclerosis complex (TSC) research
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Frequently Asked Questions (FAQ’s)
ABOUT | ONBOARDING | CURRENT VOLUNTEERS | NETWORKING | RECOGNITION | SUPPORT | MARCH ON CAPITOL HILL | FAQ’s Frequently Asked Questions (FAQ) Our FAQ section is designed to help
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TSC Alliance Statement of Support for Those Impacted by the Los Angeles Wildfires
The TSC Alliance extends our heartfelt thoughts and deepest sympathies to all those impacted by the devastation and destruction caused by the Los Angeles wildfires. We recognize the immense hardship faced
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About
ABOUT | ONBOARDING | CURRENT VOLUNTEERS | NETWORKING | RECOGNITION | SUPPORT | MARCH ON CAPITOL HILL | FAQ’s What is the Community Leadership Hub? Community Leadership Hub—a dynamic platform