The fourth pre-conference webinar, Genetics Made Simple, will take place on Wednesday, June 17, 2026, at 8:00 pm ET, and feature moderator Danielle Nolan, MD and presenter Hope Northrup, MD. This webinar will break down the basics of TSC genetics making it easier to understand how TSC happens, why it varies from person to person, and what this
The fifth and final pre-conference webinar, mTOR Inhibitors: Past, Present and Future, will take place on Tuesday, June 30, 2026, at 8:00 pm ET, and feature moderator Elizabeth Skufca and presenters David Ritter, MD, PhD and Michael Wong, MD, PhD. This webinar will explore the evolution of mTOR inhibitors in treating TSC, from their discovery to current clinical use in
Register today for the 2026 TSC World Conference from July 30 to August 1, 2026, at the Gaylord Rockies Resort & Convention Center in Aurora, CO! Conference programming will begin at 1 pm MT on Thursday, July 30 and will conclude with a dinner and celebration in the evening on Saturday, August 1. This conference,
The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect, get to know one another, share our stories, and exchange support and resources in a welcoming space. Join the Carolinas Community Region on Tuesday, August 4 at 7 PM ET for
Join us on Monday, August 10, 2026 at 8 pm ET for an Ask an Advocate session. Topic TBD. Register for the August 10, 2026 Ask an Advocate session here.
The September topic call will take place on Wednesday, September 16, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
The TSC Alliance: Carolinas Community Region is excited to host a series of informal virtual get‑togethers for the Carolinas community! These calls are a chance to connect, get to know one another, share our stories, and exchange support and resources in a welcoming space. Join the Carolinas Community Region on Sunday, October 11 at 7 PM ET following
Join us on Monday, October 12, 2026 at 8 pm ET for an Ask an Advocate session. This month's call is an informative session designed to help students and families confidently prepare for the shift from high school to college. Led by higher education expert Dr. Theresa Orosz, this workshop will cover key differences in
The October topic call will take place on Wednesday, October 21, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE
Team TSC is headed to the Marine Corps Marathon! We’re thrilled to announce that Team TSC is heading to the 2026 Marine Corps Marathon on October 25, and we’ve officially secured 25 bibs for runners who want to participate. Recognized for its impeccable organization and iconic course through Arlington, VA and the nation’s capital, the Marine Corps Marathon
Run with the Team TSC in the Marine Corps Marathon on Sunday, October 25, 2026. COmplete the Interest form here
The November topic call will take place on Wednesday, November 18, 2026 at 8 pm ET. Adult topic calls provide a forum for independent or semi-independent adults with TSC to connect with other adults via Zoom and learn from experts on a wide array of relevant issues. REGISTER HERE